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Original Articles

From Individualism to Co-construction and Back Again: Rethinking Research Methodology for Children with Profound and Multiple Learning Disabilities

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Read on this site (7)

Ann Dhondt, Ines Van keer, Eva Ceulemans, Annette van der Putten & Bea Maes. (2023) Describing the communicative profiles of young children with a significant cognitive and motor developmental delay. Augmentative and Alternative Communication 39:2, pages 84-95.
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Ben Simmons. (2021) The production of social spaces for children with profound and multiple learning difficulties: a Lefebvrian analysis. British Journal of Sociology of Education 42:5-6, pages 828-844.
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Jonathan Rix, Helena Garcia-Carrizosa, Simon Hayhoe, Jane Seale & Kieron Sheehy. (2021) Emergent analysis and dissemination within participatory research. International Journal of Research & Method in Education 44:3, pages 287-302.
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Jonathan Rix, Helena Garcia Carrizosa, Jane Seale, Kieron Sheehy & Simon Hayhoe. (2020) The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments. Disability & Society 35:7, pages 1031-1057.
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Articles from other publishers (22)

Meg Clish, Eimear Enright, Leigh Sperka & Sean Tweedy. (2022) Engaging young people with disabilities in research about their experiences of physical education and sport: A scoping review of methodologies and methods. European Physical Education Review 29:3, pages 331-350.
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Synne Nese Skarsaune. (2023) Persons with profound and multiple learning disabilities as individuals of knowledge: Exploring the possibilities of empathy. British Journal of Learning Disabilities.
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Laura Esteban, Patricia Navas, Miguel Ángel Verdugo, Edurne García Iriarte & Víctor B. Arias. (2023) A community living experience: Views of people with intellectual disability with extensive support needs, families, and professionals. Research in Developmental Disabilities 137, pages 104503.
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Stephanie Lewis-Dagnell, Sarah Parsons & Hanna Kovshoff. (2023) Creative methods developed to facilitate the voices of children and young people with complex needs about their education: A systematic review and conceptual analysis of voice. Educational Research Review 39, pages 100529.
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C. Laverty, G. Agar, L. Sinclair‐Burton, C. Oliver, J. Moss, L. Nelson & C. Richards. (2023) The 10‐year trajectory of aggressive behaviours in autistic individuals. Journal of Intellectual Disability Research 67:4, pages 295-309.
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Anita Gjermestad, Synne N Skarsaune & Ruth L Bartlett. (2022) Advancing inclusive research with people with profound and multiple learning disabilities through a sensory-dialogical approach. Journal of Intellectual Disabilities 27:1, pages 40-53.
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Synne Nese Skarsaune & Halvor Melbye Hanisch. (2023) Holding and Professional Care: On Self-Determination for Persons With Profound Intellectual and Multiple Disabilities. Research and Practice for Persons with Severe Disabilities 48:1, pages 25-40.
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Synne Nese Skarsaune. (2022) Self‐determination of people with profound intellectual and multiple disabilities. Developmental Medicine & Child Neurology 65:1, pages 16-23.
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Eduarda Sousa Pires. 2021. Handbook of Disability. Handbook of Disability 1 25 .
Olympia Palikara, Susana Castro-Kemp, Maria Ashworth & Jo Van Herwegen. (2022) All views my own? Portraying the voices of children with complex neurodevelopmental disorders in statutory documents. Research in Developmental Disabilities 129, pages 104321.
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Anita Gjermestad & Synne N. Skarsaune. 2022. Lived citizenship for persons in vulnerable life situations. Lived citizenship for persons in vulnerable life situations 180 195 .
Catherine de Haas, Joanna Grace, Joanna Hope & Melanie Nind. (2022) Doing Research Inclusively: Understanding What It Means to Do Research with and Alongside People with Profound Intellectual Disabilities. Social Sciences 11:4, pages 159.
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Synne Nese Skarsaune, Halvor Hanisch & Anita Gjermestad. (2021) Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities?. Scandinavian Journal of Disability Research 23:1, pages 317-327.
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Clare Carroll & Miriam Twomey. (2020) Voices of Children with Neurodevelopmental Disorders in Qualitative Research: a Scoping Review. Journal of Developmental and Physical Disabilities 33:5, pages 709-724.
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Ingunn Fylkesnes & Borgunn Ytterhus. (2021) Whose Voices Matter? Use, Misuse and Non-Use of Augmentative and Alternative Communication (AAC) Among Severely Disabled Children in Small Group Homes. Scandinavian Journal of Disability Research 23:1, pages 94-103.
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Bea Maes, Sara Nijs, Sien Vandesande, Ines Van keer, Michael Arthur‐Kelly, Juliane Dind, Juliet Goldbart, Geneviève Petitpierre & Annette Van der Putten. (2020) Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities. Journal of Applied Research in Intellectual Disabilities 34:1, pages 250-262.
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Catherine Stewart & Caroline Walker‐Gleaves. (2020) A narrative exploration of how curricula for children with profound and multiple learning difficulties shape and are shaped by the practices of their teachers. British Journal of Special Education 47:3, pages 350-375.
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AJ Doherty, SP Jones, U Chauhan & JME Gibson. (2018) Eating well, living well and weight management: A co-produced semi-qualitative study of barriers and facilitators experienced by adults with intellectual disabilities. Journal of Intellectual Disabilities 24:2, pages 158-176.
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Deborah Robinson, Nicki Moore & Catherine Harris. (2019) The impact of books on social inclusion and development and well‐being among children and young people with severe and profound learning disabilities: Recognising the unrecognised cohort. British Journal of Learning Disabilities 47:2, pages 91-104.
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Miriam Roemer, Ellen Verheul & Frank Velthausz. (2018) Identifying perception behaviours in people with profound intellectual and multiple disabilities. Journal of Applied Research in Intellectual Disabilities 31:5, pages 820-832.
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Gail Teachman, Peggy McDonough, Colin Macarthur & Barbara E. Gibson. (2017) A Critical Dialogical Methodology for Conducting Research With Disabled Youth Who Use Augmentative and Alternative Communication. Qualitative Inquiry 24:1, pages 35-44.
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Gulshan Tajuria, Sue Read & Helena M. Priest. (2017) Using Photovoice as a method to engage bereaved adults with intellectual disabilities in research: listening, learning and developing good practice principles. Advances in Mental Health and Intellectual Disabilities 11:5/6, pages 196-206.
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