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Child Care in Practice Volume 27, 2021 - Issue 2
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Articles

“We Know What We Are Talking about”: Experiences of Young People with a Chronic Condition Involved in a Participatory Youth Panel and Their Perceived Impact

Femke van Schelvena Department Perspective of Patients and Clients in Healthcare, Netherlands Institute for Health Services Research, Utrecht, The NetherlandsCorrespondence[email protected]
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Hennie Boeijea Department Perspective of Patients and Clients in Healthcare, Netherlands Institute for Health Services Research, Utrecht, The NetherlandsView further author information
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Maj-Britt Inhulsena Department Perspective of Patients and Clients in Healthcare, Netherlands Institute for Health Services Research, Utrecht, The Netherlands;b Department of Health Sciences, Faculty of Science, Vrije Universiteit, Amsterdam, The NetherlandsView further author information
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Jane Sattoea Department Perspective of Patients and Clients in Healthcare, Netherlands Institute for Health Services Research, Utrecht, The Netherlands;c Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The NetherlandsView further author information
&
Jany Rademakersa Department Perspective of Patients and Clients in Healthcare, Netherlands Institute for Health Services Research, Utrecht, The Netherlands;d Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The NetherlandsView further author information
Pages 191-207 | Published online: 15 Nov 2019

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Vivian W. G. Burgers, Annemiek Dickhout, Niels C. G. L. Harthoorn, Simone A. M. M. Frissen, Marloes J. Noordhoek, Suzanne A. Franssen, Milou J. P. Reuvers, Winette T. A. van der Graaf & Olga Husson. (2023) Involving adolescents and young adults (AYA) with an uncertain or poor cancer prognosis as research partners. Acta Oncologica 0:0, pages 1-8.
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Articles from other publishers (7)

Bethan Spencer, Siobhan Hugh-Jones, David Cottrell & Simon Pini. (2023) The INSCHOOL project: showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions. Research Involvement and Engagement 9:1.
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Ciara Thomas, Emma Cockcroft, Georgia Jenkins & Kristin Liabo. (2023) Working with children and young people in research: Supportive practices and pathways to impact. Journal of Child Health Care, pages 136749352311714.
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Camila Rosalinde van Ham, Vivian Wilhelmina Gerarda Burgers, Sophia Helena Eva Sleeman, Annemiek Dickhout, Niels Christiaan Gerardus Laurus Harthoorn, Eveliene Manten-Horst, Mies Christina van Eenbergen & Olga Husson. (2022) A qualitative study on the involvement of adolescents and young adults (AYAs) with cancer during multiple research phases: “plan, structure, and discuss”. Research Involvement and Engagement 8:1.
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Ana Cerqueira, Fábio Botelho Guedes, Tania Gaspar, Emmanuelle Godeau & Margarida Gaspar de Matos. (2022) Shedding Light on the Lifestyle and Participation of Portuguese Adolescents with Chronic Conditions—Data from the HBSC 2018 Study. Children 9:11, pages 1717.
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Femke van Schelven, Hennie Boeije & Jany Rademakers. (2021) Evaluating meaningful impact of Patient and Public Involvement: A Q methodology study among researchers and young people with a chronic condition. Health Expectations 25:2, pages 712-720.
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Femke Schelven, Peter Groenewegen, Peter Spreeuwenberg, Jany Rademakers & Hennie Boeije. (2021) Exploring the impact of patient and public involvement with young people with a chronic condition: A multilevel analysis. Child: Care, Health and Development 47:3, pages 349-356.
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Femke van Schelven, Eline van der Meulen, Noortje Kroeze, Marjolijn Ketelaar & Hennie Boeije. (2020) Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program. Research Involvement and Engagement 6:1.
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