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Original Articles

Quality of life and depression in carers of patients with early onset dementia

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Pages 299-306 | Received 12 Oct 2009, Accepted 01 Feb 2010, Published online: 25 Jan 2011

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (8)

Liv Bjerknes Taranrød, Siren Eriksen, Ingeborg Pedersen & Øyvind Kirkevold. (2020) Characteristics, Burden of Care and Quality of Life of Next of Kin of People with Dementia Attending Farm-Based Day Care in Norway: A Descriptive Cross-Sectional Study. Journal of Multidisciplinary Healthcare 13, pages 1363-1373.
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Oriol Turró-Garriga, Josep Lluís Conde-Sala, Vanesa Viñas, Antoni Turon-Estrada, Marta Cullell-Juncà, Laia Calvó-Perxas, Dolors Juvinyà-Canal, Eneida Mioshi & Josep Garre-Olmo. (2020) Antonovsky’s sense of coherence and resistance resources reduce perception of burden in family carers of people with Alzheimer’s disease. Aging & Mental Health 24:10, pages 1717-1725.
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Lara Hvidsten, Knut Engedal, Geir Selbaek, Torgeir Bruun Wyller, Jūratė Šaltytė Benth, Frøydis Bruvik & Hege Kersten. (2020) Quality of life of family carers of persons with young-onset compared to late-onset dementia. Aging & Mental Health 24:9, pages 1394-1401.
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Torhild Holthe, Rita Jentoft, Cathrine Arntzen & Kirsten Thorsen. (2018) Benefits and burdens: family caregivers’ experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD). Disability and Rehabilitation: Assistive Technology 13:8, pages 754-762.
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Ainslea J. Cross, Gulcan Garip & David Sheffield. (2018) The psychosocial impact of caregiving in dementia and quality of life: a systematic review and meta-synthesis of qualitative research. Psychology & Health 33:11, pages 1321-1342.
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Joany Millenaar, Lara Hvidsten, Marjolein E. de Vugt, Knut Engedal, Geir Selbæk, Torgeir Bruun Wyller, Aud Johannessen, Per Kristian Haugen, Christian Bakker, Deliane van Vliet, Raymond T.C.M. Koopmans, Frans R.J. Verhey & Hege Kersten. (2017) Determinants of quality of life in young onset dementia – results from a European multicenter assessment. Aging & Mental Health 21:1, pages 24-30.
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Abir K. Bekhet & Jaclene A. Zauszniewski. (2013) Psychometric Assessment of the Depressive Cognition Scale in Caregivers of Persons with Dementia. Issues in Mental Health Nursing 34:9, pages 678-684.
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Articles from other publishers (36)

Sasha Binford, Margaret I. Wallhagen & Heather Leutwyler. (2023) Role Identity Transition: A Conceptual Framework for Being the Spouse of a Person With Early Onset Dementia. Journal of Gerontological Nursing 49:8, pages 27-34.
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Xiaoping Lin, Stephanie A. Ward, Elizabeth Pritchard, Susannah Ahern, Madeleine Gardam, Henry Brodaty, Joanne Ryan, John McNeil, Tess Tsindos, Kasey Wallis, Yun‐Hee Jeon, Sandra Robinson, Karolina Krysinska & Darshini Ayton. (2022) Carer‐reported measures for a dementia registry: A systematic scoping review and a qualitative study. Australasian Journal on Ageing 42:1, pages 34-52.
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Stephanie Perin, Rhoda Lai, Janine Diehl-Schmid, Emily You, Alexander Kurz, Maria Tensil, Michael Wenz, Bettina Foertsch & Nicola T Lautenschlager. (2023) Online counselling for family carers of people with young onset dementia: The RHAPSODY-Plus pilot study. DIGITAL HEALTH 9, pages 205520762311619.
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Mary Larkin, Melanie Henwood & Alisoun Milne. (2020) Older Carers and Carers of People with Dementia: Improving and Developing Effective Support. Social Policy and Society 21:2, pages 242-256.
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Iris van der Heide, Nienke van Wezel, Marco Blom, Peter Spreeuwenberg, Walter L.J.M. Devillé & Anneke L. Francke. (2021) Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial. Patient Education and Counseling 104:5, pages 1168-1175.
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Rebecca N. Collins & Naoko Kishita. (2019) Prevalence of depression and burden among informal care-givers of people with dementia: a meta-analysis. Ageing and Society 40:11, pages 2355-2392.
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Alex McKeown, Andrew Turner, Zuzanna Angehrn, Dianne Gove, Amanda Ly, Clementine Nordon, Mia Nelson, Claire Tochel, Brent Mittelstadt, Alex Keenan, Michael Smith & Ilina Singh. (2020) Health Outcome Prioritization in Alzheimer’s Disease: Understanding the Ethical Landscape. Journal of Alzheimer's Disease 77:1, pages 339-353.
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Vivian W. Wang, Nagaendran Kandiah, Xuling Lin & Hwee‐Lin Wee. (2020) Does health‐related quality of life in Asian informal caregivers differ between early‐onset dementia and late‐onset dementia?. Psychogeriatrics 20:5, pages 608-619.
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Jennifer F. W. Wong, Andrew Kirk, Landon Perlett, Chandima Karunanayake, Debra Morgan & Megan E. O’Connell. (2020) Characteristics of Young-Onset and Late-Onset Dementia Patients at a Remote Memory Clinic. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 47:3, pages 320-327.
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Lara Hvidsten, Knut Engedal, Geir Selbæk, Torgeir Bruun Wyller, Jūratė Šaltytė Benth & Hege Kersten. (2019) Quality of life of family carers of persons with young-onset dementia: A Nordic two-year observational multicenter study. PLOS ONE 14:7, pages e0219859.
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JH Spreadbury & CM Kipps. (2016) Measuring younger onset dementia: A comprehensive literature search of the quantitative psychosocial research. Dementia 18:1, pages 135-156.
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Brittany Watson, Gemma Tatangelo & Marita McCabe. (2018) Depression and Anxiety Among Partner and Offspring Carers of People With Dementia: A Systematic Review. The Gerontologist.
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I. Conrad, S. Alltag, H. Matschinger, R. Kilian & S. G. Riedel-Heller. (2018) Lebensqualität älterer pflegender Angehöriger von DemenzerkranktenQuality of life among older informal caregivers of people with dementia. Der Nervenarzt 89:5, pages 500-508.
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Ari Voutilainen, Nora Ruokostenpohja & Tarja Välimäki. (2018) Associations Across Caregiver and Care Recipient Symptoms: Self-Organizing Map and Meta-analysis. The Gerontologist 58:2, pages e138-e149.
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Magen Mhaka-Mutepfa. (2018) Sociodemographic Factors and Health-Related Characteristics That Influence the Quality of Life of Grandparent Caregivers in Zimbabwe. Gerontology and Geriatric Medicine 4, pages 233372141875699.
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Raymond Smith, Ann Ooms & Nan Greenwood. (2017) Supporting people with young onset dementia and their families: An evaluation of a training course for care workers. Nurse Education in Practice 27, pages 7-12.
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Monica Cations, Adrienne Withall, Ruth Horsfall, Nicole Denham, Fiona White, Julian Trollor, Clement Loy, Henry Brodaty, Perminder Sachdev, Peter Gonski, Apo Demirkol, Robert G. Cumming & Brian Draper. (2017) Why aren't people with young onset dementia and their supporters using formal services? Results from the INSPIRED study. PLOS ONE 12:7, pages e0180935.
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Lynn Chenoweth, Jane Stein-Parbury, Danielle White, Georgene McNeill, Yun-Hee Jeon & Beverley Zaratan. (2016) Coaching in self-efficacy improves care responses, health and well-being in dementia carers: a pre/post-test/follow-up study. BMC Health Services Research 16:1.
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Aud Johannessen, Knut Engedal & Kirsten Thorsen. (2016) Family Carers of People with Young-Onset Dementia: Their Experiences with the Supporter Service. Geriatrics 1:4, pages 28.
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Marcia C. N. Dourado, Jerson Laks & Daniel Mograbi. (2016) Functional Status Predicts Awareness in Late-Onset but not in Early-Onset Alzheimer Disease. Journal of Geriatric Psychiatry and Neurology 29:6, pages 313-319.
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Cathrine Arntzen, Torhild Holthe & Rita Jentoft. (2014) Tracing the successful incorporation of assistive technology into everyday life for younger people with dementia and family carers. Dementia 15:4, pages 646-662.
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Karen Hutchinson, Chris Roberts, Susan Kurrle & Michele Daly. (2014) The emotional well-being of young people having a parent with younger onset dementia. Dementia 15:4, pages 609-628.
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Margaret Pozzebon, Jacinta Douglas & David Ames. (2016) Spouses’ experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. International Psychogeriatrics 28:4, pages 537-556.
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Maria Alice Tourinho Baptista, Raquel Luiza Santos, Nathália Kimura, Isabel Barbeito Lacerda, Aud Johannenssen, Maria Lage Barca, Knut Engedal & Marcia Cristina Nascimento Dourado. (2016) Quality of life in young onset dementia: an updated systematic review. Trends in Psychiatry and Psychotherapy 38:1, pages 6-13.
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Nathália R. S. Kimura, Virgínia L. R. Maffioletti, Raquel L. Santos, Maria Alice Tourinho Baptista & Marcia C. N. Dourado. (2015) Psychosocial impact of early onset dementia among caregivers. Trends in Psychiatry and Psychotherapy 37:4, pages 213-219.
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Adriana Shnall. (2015) Public Advocacy and Community Engagement. Psychiatric Clinics of North America 38:2, pages 353-362.
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May-Karin Rognstad, Mette Sagbakken & Dagfinn Nåden. (2015) Pårørendes rolle som ressurs og samarbeidspartner: En studie med fokus på pårørende til pasienter med demenssykdom i sykehjem. Nordic Journal of Nursing Research 35:1, pages 57-64.
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Christian Bakker, Marjolein E. de Vugt, Deliane van Vliet, Frans Verhey, Yolande A. Pijnenburg, Myrra J.F.J. Vernooij-Dassen & Raymond T.C.M. Koopmans. (2014) Unmet Needs and Health-Related Quality of Life in Young-Onset Dementia. The American Journal of Geriatric Psychiatry 22:11, pages 1121-1130.
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Ramit Ravona-Springer & Michael Davidson. (2013) Considerations in psychotropic treatments in dementia – can polypharmacy be avoided?. The International Journal of Neuropsychopharmacology 17:07, pages 1107-1117.
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M. A. Lambert, H. Bickel, M. Prince, L. Fratiglioni, E. Von Strauss, D. Frydecka, A. Kiejna, J. Georges & E. L. Reynish. (2014) Estimating the burden of early onset dementia; systematic review of disease prevalence. European Journal of Neurology 21:4, pages 563-569.
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Evridiki Papastavrou, Panayiota Andreou, Nicos Middleton, Savvas Papacostas & Irini Kyriacou Georgiou. (2013) Factors associated with quality of life among family members of patients with dementia in Cyprus. International Psychogeriatrics 26:3, pages 443-452.
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Raymond T.C.M. Koopmans & Denise Thompson. 2013. Designing and Delivering Dementia Services. Designing and Delivering Dementia Services 33 45 .
Elizabeth Armari, Anna Jarmolowicz & Peter K. Panegyres. (2012) The Needs of Patients With Early Onset Dementia. American Journal of Alzheimer's Disease & Other Dementiasr 28:1, pages 42-46.
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Christian Bakker, Marjolein E. de Vugt, Deliane van Vliet, Frans R.J. Verhey, Yolande A. Pijnenburg, Myrra J.F.J. Vernooij-Dassen & Raymond T.C.M. Koopmans. (2013) The Use of Formal and Informal Care in Early Onset Dementia: Results From the NeedYD Study. The American Journal of Geriatric Psychiatry 21:1, pages 37-45.
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Lina María Vargas-Escobar. (2012) Nursing's Contribution to the Quality of Life of Family Caregivers of Alzheimer Patients. Aquichan 12:1, pages 62-76.
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Froydis Kristine Bruvik, Ingun Dina Ulstein, Anette Hylen Ranhoff & Knut Engedal. (2012) The Quality of Life of People with Dementia and Their Family Carers. Dementia and Geriatric Cognitive Disorders 34:1, pages 7-14.
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