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Original Articles

Quality of life in dementia care – differences in quality of life measurements performed by residents with dementia and by nursing staff

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Pages 819-827 | Received 23 Oct 2011, Accepted 05 Feb 2012, Published online: 10 Apr 2012

Keep up to date with the latest research on this topic with citation updates for this article.

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Muhammad Haroon, Nadeeka N. Dissanayaka, Anthony J. Angwin & Tracy Comans. (2023) How Effective are Pictures in Eliciting Information from People Living with Dementia? A Systematic Review. Clinical Gerontologist 46:4, pages 511-524.
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Yi-Yin Lin, Ching-Teng Yao, Tzu-Yu Lin & Chien-Hsun Li. (2022) A study of reminiscence activities program on dementia behavioral problems care for long-term care older adults in Taiwan. Educational Gerontology 48:12, pages 598-609.
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Carin Lennartsson, Johan Rehnberg & Lena Dahlberg. (2022) The association between loneliness, social isolation and all-cause mortality in a nationally representative sample of older women and men. Aging & Mental Health 26:9, pages 1821-1828.
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Rozanne Wilson, Lena Cuthbertson, Lewis Kazis & Richard Sawatzky. (2022) Measuring Health Status in Long-Term Residential Care: Adapting the Veterans RAND 12 Item Health Survey (VR-12©). Clinical Gerontologist 45:3, pages 562-574.
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Mariann Hedström, Marianne Carlsson, Anna Ekman, Ulrika Gillespie, Christina Mörk & Kerstin Hulter Åsberg. (2018) Development of the PHASE-Proxy scale for rating drug-related signs and symptoms in severe cognitive impairment. Aging & Mental Health 22:1, pages 53-60.
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Lena Dahlberg, Lars Andersson, Kevin J. McKee & Carin Lennartsson. (2015) Predictors of loneliness among older women and men in Sweden: A national longitudinal study. Aging & Mental Health 19:5, pages 409-417.
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Wendy Moyle & Jenny E Murfield. (2013) Health-related quality of life in older people with severe dementia: challenges for measurement and management. Expert Review of Pharmacoeconomics & Outcomes Research 13:1, pages 109-122.
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Articles from other publishers (55)

Elizabeth Redford & Sabine Heuer. (2023) A Visual Analog Scale for Self-Reported Quality of Life. Alzheimer Disease & Associated Disorders 37:4, pages 343-348.
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Young-Ran Chin & Hyo Young Lee. (2023) Evaluating person-centered care in residential care facilities from the perspective of caregivers in South Korea: a survey. BMC Health Services Research 23:1.
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Roaa Zayed Atef, Bernhard Michalowsky, Anika Raedke, Moritz Platen, Wiebke Mohr, Franka Mühlichen, Jochen René Thyrian & Wolfgang Hoffmann. (2023) Impact of Hearing Aids on Progression of Cognitive Decline, Depression, and Quality of Life Among People with Cognitive Impairment and Dementia. Journal of Alzheimer's Disease 92:2, pages 629-638.
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Daniel Lüdecke, Martin Nikolaus Dichter, Stefan Nickel & Christopher Kofahl. (2023) Item distribution, scalability and internal consistency of the QUALIDEM quality of life assessment for patients with dementia in acute hospital settings. Health and Quality of Life Outcomes 21:1.
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Irina Kinchin, Iracema Leroi, Sean P. Kennelly, Slavica Kochovska, Conor Brady, Deborah Fitzhenry, Cathy McHale, Philip Kinghorn & Joanna Coast. (2022) What does a “good life” mean for people living with dementia? A protocol for a think-aloud study informing the value of care. Frontiers in Aging Neuroscience 14.
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Frauke Claes & Paul Enzlin. (2022) Dementia and Sexuality: A Story of Continued Renegotiation. The Gerontologist.
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Claire Hutchinson, Anthea Worley, Jyoti Khadka, Rachel Milte, Jenny Cleland & Julie Ratcliffe. (2022) Do we agree or disagree? A systematic review of the application of preference-based instruments in self and proxy reporting of quality of life in older people. Social Science & Medicine 305, pages 115046.
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Noortje Kloos, Constance H. C. Drossaert, Ernst T. Bohlmeijer & Gerben J. Westerhof. (2020) How well do nursing staff assess the wellbeing of nursing home residents? An explorative study of using single-question scales. Ageing and Society 42:4, pages 812-828.
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Sarah D. Holmes, Barbara Resnick, Elizabeth Galik, Ann Gruber-Baldini & Nancy Kusmaul. (2020) Reliability and Validity of the Resident Satisfaction Index in Assisted Living. Journal of Applied Gerontology 40:6, pages 638-647.
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Johan Fritzell, Carin Lennartsson & Asghar Zaidi. (2020) Trends and Inequality in the New Active Ageing and Well-Being Index of the Oldest Old: a Case Study of Sweden. Journal of Population Ageing 14:1, pages 5-22.
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Alys W. Griffiths, Sarah J. Smith, Adam Martin, David Meads, Rachael Kelley & Claire A. Surr. (2019) Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes. Quality of Life Research 29:2, pages 463-472.
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S. Robertson, C. Cooper, J. Hoe, K. Lord, P. Rapaport, L. Marston, S. Cousins, C. G. Lyketsos & G. Livingston. (2019) Comparing proxy rated quality of life of people living with dementia in care homes. Psychological Medicine 50:1, pages 86-95.
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Johannes Gräske, Annika Schmidt & Karin Wolf-Ostermann. (2019) More staff = better quality of life for people with dementia? results of a secondary data analysis in German shared-housing arrangements. Israel Journal of Health Policy Research 8:1.
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James Caiels, Stacey Rand, Tanya Crowther, Grace Collins & Julien Forder. (2019) Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT). BMC Health Services Research 19:1.
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Jeehoon Cha, Jan-Niklas Voigt-Antons, Carola Trahms, Julie Lorraine O’Sullivan, Paul Gellert, Adelheid Kuhlmey, Sebastian Möller & Johanna Nordheim. (2019) Finding critical features for predicting quality of life in tablet-based serious games for dementia. Quality and User Experience 4:1.
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Sarah Robertson, Claudia Cooper, Juanita Hoe, Kathryn Lord, Penny Rapaport & Gill Livingston. (2019) Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes. International Journal of Geriatric Psychiatry 34:12, pages 1784-1791.
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Fang-Yu Hsu, Ya-Ping Yang, Feng-Ping Lee, Chi-Jane Wang & Jing-Jy Wang. (2019) Effects of Group Reminiscence Therapy on Agitated Behavior and Quality of Life in Taiwanese Older Adults With Dementia. Journal of Psychosocial Nursing and Mental Health Services 57:8, pages 30-36.
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Martin N Dichter, Sven Reuther, Diana Trutschel, Sascha Köpke & Margareta Halek. (2019) Organizational interventions for promoting person-centred care for people with dementia. Cochrane Database of Systematic Reviews.
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Gaëtane Picard, Jean-Christophe Bier, Isabelle Capron, Peter Paul De Deyn, Olivier Deryck, Sebastiaan Engelborghs, Bernard Hanseeuw, Jean-Claude Lemper, Eric Mormont, Mirko Petrovic, Eric Salmon, Kurt Segers, Anne Sieben, Evert Thiery, Manfredi Ventura, Jan Versijpt & Adrian Ivanoiu. (2019) Dementia, End of Life, and Euthanasia: A Survey Among Dementia Specialists Organized by the Belgian Dementia Council. Journal of Alzheimer's Disease 69:4, pages 989-1001.
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Josephine Römhild, Steffen Fleischer, Gabriele Meyer, Astrid Stephan, Sandra Zwakhalen, Helena Leino-Kilpi, Adelaida Zabalegui, Kai Saks, Maria Soto-Martin, Caroline Sutcliffe, Ingalill Rahm Hallberg & Almuth Berg. (2018) Inter-rater agreement of the Quality of Life-Alzheimer’s Disease (QoL-AD) self-rating and proxy rating scale: secondary analysis of RightTimePlaceCare data. Health and Quality of Life Outcomes 16:1.
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Martin Nikolaus Dichter, Eva-Maria Wolschon, Christian G. G. Schwab, Gabriele Meyer & Sascha Köpke. (2018) Item distribution and inter-rater reliability of the German version of the quality of life in Alzheimer’s disease scale (QoL-AD) proxy for people with dementia living in nursing homes. BMC Geriatrics 18:1.
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Sarah Robertson, Claudia Cooper, Juanita Hoe, Olivia Hamilton, Aisling Stringer & Gill Livingston. (2017) Proxy rated quality of life of care home residents with dementia: a systematic review. International Psychogeriatrics 29:4, pages 569-581.
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Stacey Rand, James Caiels, Grace Collins & Julien Forder. (2017) Developing a proxy version of the Adult social care outcome toolkit (ASCOT). Health and Quality of Life Outcomes 15:1.
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Martin Nikolaus Dichter, Christian G. G. Schwab, Gabriele Meyer, Sabine Bartholomeyczik & Margareta Halek. (2016) Item distribution, internal consistency and inter-rater reliability of the German version of the QUALIDEM for people with mild to severe and very severe dementia. BMC Geriatrics 16:1.
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Valérie Baud Mermoud & Diane Morin. (2016) Regards croisés entre l’évaluation de la qualité de vie perçue par le résident hébergé en établissement médico-social et par le soignant référent. Recherche en soins infirmiers N° 126:3, pages 38-50.
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Clarissa M Giebel, David J Challis & Daniela Montaldi. (2016) A revised interview for deterioration in daily living activities in dementia reveals the relationship between social activities and well-being. Dementia 15:5, pages 1068-1081.
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Hanneke C. Beerens, Bram de Boer, Sandra M.G. Zwakhalen, Frans E.S. Tan, Dirk Ruwaard, Jan P.H. Hamers & Hilde Verbeek. (2016) The association between aspects of daily life and quality of life of people with dementia living in long-term care facilities: a momentary assessment study. International Psychogeriatrics 28:8, pages 1323-1331.
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Elke G Kaufmann & Sabine A Engel. (2014) Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs. Dementia 15:4, pages 774-788.
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Martin Nikolaus Dichter, Christian G.G. Schwab, Gabriele Meyer, Sabine Bartholomeyczik & Margareta Halek. (2016) Linguistic validation and reliability properties are weak investigated of most dementia-specific quality of life measurements—a systematic review. Journal of Clinical Epidemiology 70, pages 233-245.
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Sandra P. Hirst & Annette M. Lane. (2016) How Do Nursing Students Perceive the Needs of Older Clients? Addressing a Knowledge Gap. Journal of Geriatrics 2016, pages 1-7.
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Johannes Gräske, Saskia Meyer, Andreas Worch & Karin Wolf-Ostermann. (2015) Family visits in shared-housing arrangements for residents with dementia – a cross-sectional study on the impact on residents’ quality of life. BMC Geriatrics 15:1.
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Emmanuelle Bédard, Hélène Kergoat, Marie-Jeanne Kergoat & Bernard-Simon Leclerc. (2015) Systematic review of vision-related quality of life questionnaires for older institutionalised seniors with dementia. Ophthalmic and Physiological Optics 35:4, pages 377-387.
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Johannes Gräske, Saskia Meyer & Karin Wolf-Ostermann. (2014) Quality of life ratings in dementia care – a cross-sectional study to identify factors associated with proxy-ratings. Health and Quality of Life Outcomes 12:1.
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Martin Nikolaus Dichter, Christian G. G. Schwab, Gabriele Meyer, Sabine Bartholomeyczik, Olga Dortmann & Margareta Halek. (2014) Measuring the quality of life in mild to very severe dementia: Testing the inter-rater and intra-rater reliability of the German version of the QUALIDEM. International Psychogeriatrics 26:5, pages 825-836.
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Peter Makai, Franziska Beckebans, Job van Exel & Werner B. F. Brouwer. (2014) Quality of Life of Nursing Home Residents with Dementia: Validation of the German Version of the ICECAP-O. PLoS ONE 9:3, pages e92016.
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Johannes Gräske, Hilde Verbeek, Paul Gellert, Thomas Fischer, Adelheid Kuhlmey & Karin Wolf-Ostermann. (2013) How to measure quality of life in shared-housing arrangements? A comparison of dementia-specific instruments. Quality of Life Research 23:2, pages 549-559.
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Karin Wolf-Ostermann, Andreas Worch, Saskia Meyer & Johannes Gräske. (2014) Quality of Care and Its Impact on Quality of Life for Care-Dependent Persons With Dementia in Shared-Housing Arrangements: Results of the Berlin WGQual-Study. Applied Nursing Research 27:1, pages 33-40.
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Rebecca Palm, Kerstin Köhler, Christian GG Schwab, Sabine Bartholomeyczik & Bernhard Holle. (2013) Longitudinal evaluation of dementia care in German nursing homes: the “DemenzMonitor” study protocol. BMC Geriatrics 13:1.
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Hanneke C. Beerens, Sandra M.G. Zwakhalen, Hilde Verbeek, Dirk Ruwaard & Jan P.H. Hamers. (2013) Factors associated with quality of life of people with dementia in long-term care facilities: A systematic review. International Journal of Nursing Studies 50:9, pages 1259-1270.
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