Citations (119)
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Francesca Ribenfors & Lauren Blood. (2023) To Report or Not to Report: The Ethical Complexity Facing Researchers When Responding to Disclosures of Harm or Illegal Activities During Fieldwork with Adults with Intellectual Disabilities. Ethics and Social Welfare 17:2, pages 175-190.
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Gillian Cox, Lauren J. Breen & Naomi Cocks. (2023) Being practically, professionally and personally prepared: Supporting people with intellectual disability and dysphagia to eat and drink outside the home. International Journal of Speech-Language Pathology 25:2, pages 256-268.
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Klara Meierer, Pascal Borry & Virginia Sanchini. (2022) Appropriate inclusion of adult research participants with intellectual disability: an in-depth review of guidelines and policy statements. Accountability in Research 0:0, pages 1-22.
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Kyung Mee Kim, Sarah A. Hall & Yu Bin Jung. (2021) Exploring the participation of people with developmental disabilities in self-advocacy groups in Korea: “I like it because I can share my story in front of others with my friends!”. Disability & Society 36:10, pages 1594-1616.
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Chloe Walsh, Sinéad Lydon, Emily O’Dowd & Paul O’Connor. (2020) Barriers to Healthcare for Persons with Autism: A Systematic Review of the Literature and Development of A Taxonomy. Developmental Neurorehabilitation 23:7, pages 413-430.
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Peter Williams. (2020) ‘It all sounds very interesting, but we’re just too busy!’: exploring why ‘gatekeepers’ decline access to potential research participants with learning disabilities. European Journal of Special Needs Education 35:1, pages 1-14.
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Ingrid van der Heijden, Jane Harries & Naeemah Abrahams. (2019) Ethical considerations for disability-inclusive gender-based violence research: Reflections from a South African qualitative case study. Global Public Health 14:5, pages 737-749.
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Helen Charnley, Se Kwang Hwang, Christine Atkinson & Phillip Walton. (2019) ‘If I were given the chance’: understanding the use of leisure time by adults with learning disabilities. Disability & Society 34:4, pages 540-563.
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Maya Sabatello, Annie Janvier, Eduard Verhagen, Wynne Morrison & John Lantos. (2018) Pediatric Participation in Medical Decision Making: Optimized or Personalized?. The American Journal of Bioethics 18:3, pages 1-3.
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Eileen Carey & Colin Griffiths. (2017) Recruitment and consent of adults with intellectual disabilities in a classic grounded theory research study: ethical and methodological considerations. Disability & Society 32:2, pages 193-212.
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Laura Dean, Rachel Tolhurst, Renu Khanna & Kate Jehan. (2017) ‘You’re disabled, why did you have sex in the first place?’ An intersectional analysis of experiences of disabled women with regard to their sexual and reproductive health and rights in Gujarat State, India. Global Health Action 10:sup2.
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Christa B. Fouché & Laura A. Chubb. (2017) Action researchers encountering ethical review: a literature synthesis on challenges and strategies. Educational Action Research 25:1, pages 23-34.
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Ephraim Lemmy Nuwagaba & Peter Rule. (2015) Navigating the ethical maze in disability research: ethical contestations in an African context. Disability & Society 30:2, pages 255-269.
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Michelle F. Morgan, Monica Cuskelly & Karen B. Moni. (2014) Unanticipated ethical issues in a participatory research project with individuals with intellectual disability. Disability & Society 29:8, pages 1305-1318.
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Maurice A. Feldman, Susan M. Battin, Olivia A. Shaw & Ruth Luckasson. (2013) Inclusion of children with disabilities in mainstream child development research. Disability & Society 28:7, pages 997-1011.
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Tim Clement & Christine Bigby. (2013) Ethical challenges in researching in group homes for people with severe learning difficulties: shifting the balance of power. Disability & Society 28:4, pages 486-499.
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Miriam Stevenson. (2010) Flexible and Responsive Research: Developing Rights-Based Emancipatory Disability Research Methodology in Collaboration with Young Adults with Down Syndrome. Australian Social Work 63:1, pages 35-50.
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Kathy Boxall & Sue Ralph. (2009) Research ethics and the use of visual images in research with people with intellectual disability. Journal of Intellectual & Developmental Disability 34:1, pages 45-54.
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Teresa Iacono. (2006) Further comments on the researched, researchers and ethics committees: A response. Journal of Intellectual & Developmental Disability 31:3, pages 189-191.
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Keith R. McVilly & Arthur J. Dalton. (2006) Commentary on Iacono (2006): “Ethical challenges and complexities of including people with intellectual disability as participants in research”. Journal of Intellectual & Developmental Disability 31:3, pages 186-188.
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Paul Ramcharan. (2006) Ethical challenges and complexities of including vulnerable people in research: Some pre‐theoretical considerations. Journal of Intellectual & Developmental Disability 31:3, pages 183-185.
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Michael G. Aman & Benjamin Handen. (2006) Reactions to “Ethical challenges and complexities of including people with intellectual disability as participants in research” by Dr Teresa Iacono. Journal of Intellectual & Developmental Disability 31:3, pages 180-182.
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Betty-Jean M. Dee-Price. (2023) Using Communication Assistants in Qualitative Health Research. Qualitative Health Research 33:8-9, pages 663-672.
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Jung Hyoung Yoon. (2023) Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges. International Journal of Qualitative Methods 22.
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Joyce John Mathan, Samantha Kaye Simkin, Akilesh Gokul & Charles Ninian John McGhee. (2022) Down syndrome and the eye: Ocular characteristics and ocular assessment. Survey of Ophthalmology 67:6, pages 1631-1646.
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Mohamed M. Y. Kaddah, Heba M. Ali, Sherin F. Hammad & Samah F. El‐Malla. (2022)
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Olympia Palikara, Susana Castro-Kemp, Maria Ashworth & Jo Van Herwegen. (2022) All views my own? Portraying the voices of children with complex neurodevelopmental disorders in statutory documents. Research in Developmental Disabilities 129, pages 104321.
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Danielle Rudd & Se Kwang Hwang. (2021) Participatory research in a pandemic: The impact of Covid-19 on co-designing research with autistic people. Qualitative Social Work 21:5, pages 869-879.
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Nick Boettcher, Camille Duque & Bonnie M. Lashewicz. (2022) Negotiating Research Participant Consent With, for and by Adults With Developmental Disabilities in Interaction With Their Third-Party Consent Providers. International Journal of Qualitative Methods 21, pages 160940692110549.
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Nathaniel R. Riggs, Susan L. Hepburn, Miranda E. Pinks & Deborah J. Fidler. (2021) A prevention science approach to promoting health and quality of life for individuals with intellectual and developmental disabilities. Infant and Child Development 31:1.
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Muriel Mac-Seing, Louise Ringuette, Kate Zinszer, Béatrice Godard & Christina Zarowsky. (2021) How to navigate the application of ethics norms in global health research: reflections based on qualitative research conducted with people with disabilities in Uganda. BMC Medical Ethics 22:1.
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Caroline Jagoe, Caitlin McDonald, Minerva Rivas & Nora Groce. (2021) Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review. PLOS ONE 16:10, pages e0258575.
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Erin Vinoski Thomas, Jan Warren-Findlow, Charlie L. Reeve, Jennifer B. Webb, Sarah B. Laditka & Margaret M. Quinlan. (2020) Universal Design for Measurement: Centering the Experiences of Individuals With Disabilities Within Health Measurement Research. Evaluation & the Health Professions 44:3, pages 203-209.
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Boris Handal, Chris Campbell, Kevin Watson, Marguerite Maher, Keagan Brewer, Anne-Marie Irwin & Marc Fellman. (2021) Human research ethics committees members: ethical review personal perceptions. Monash Bioethics Review 39:1, pages 94-114.
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Sarah Earle, Sue Ledger, Elizabeth Tilley, Jan Walmsley, Rohhss Chapman & Lou Townson. (2020) A critical reflection on accessing women with learning disabilities to participate in research about sensitive subjects through organisational partnerships. British Journal of Learning Disabilities 48:2, pages 162-169.
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Henrietta Trip, Lisa Whitehead & Marie Crowe. (2018) Perceptions of ageing and future aspirations by people with intellectual disability: a grounded theory study using photo-elicitation. Ageing and Society 40:5, pages 966-983.
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Susan Taylor & Susan Balandin. (2020) The Ethics of Inclusion in AAC Research of Participants with Complex Communication Needs. Scandinavian Journal of Disability Research 22:1, pages 108-115.
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