References
- Allen G., Courchesne E. Differential effects of developmental cerebellar abnormality on cognitive and motor functions in the cerebellum: An fMRI study of autism,. American Journal of Psychiatry 2003; 160: 262–273
- Bach M., Rock M. Seeking consent to participate in research from people whose ability to make an informed decision could be questioned: The supported decision‐making model. The Roeher Institute, Ontario 1996
- Balandin S. Happily ever after: Communicating results to participants in research. Journal of Intellectual & Developmental Disability 2003; 28: 87–89
- Beecher H. Ethics and clinical research. New England Journal of Medicine 1966; 274: 1354–1360
- Clements J., Rapley M., Cummins R. On, to, for, with – vulnerable people and the practices of the research community. Behavioural and Cognitive Psychotherapy 1999; 27: 103–115
- Dalton A. J., McVilly K. R. Ethics guidelines for international, multicenter research involving people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities 2004; 1: 57–70
- Fisher C. A goodness‐of‐fit ethic of informed consent. Fordham Urban Law Journal 2002; 30: 159–171
- Griffin T., Balandin S. Ethical research involving people with intellectual disabilities. The international handbook of applied research in intellectual disabilities, Emerson E, Hatton C, Thompson T, Parmenter T. R. John Wiley & Sons, Chichester, UK 2004; 61–82
- Iacono T., Murray V. Issues of informed consent in conducting medical research involving people with intellectual disability. Journal of Applied Research in Intellectual Disabilities 2003; 16: 41–51
- Monash University Standing Committee on Ethics in Research Involving Humans. 2004. Application for ethics approval for research involving humans guidelines. Available at: http://www.monash.edu.au/research/ethics/human/researchers/v3‐form1guidelines‐2004.doc (accessed 30 November 2005)
- National Health and Medical Research Council (NHMRC). National statement on ethical conduct in research involving humans. NHMRC, Canberra 1999
- National Health and Medical Research Council (NHMRC). 2001. Intellectual or mental impairment, consent and consent for incompetent adults. In. Human research ethics handbook. Available at: http://www7.health.gov.au/nhmrc/publications/hrecbook/03_law/15.htm (accessed 22 August 2005)
- National Health and Medical Research Council (NHMRC). 2004. Review of the national statement on ethical conduct in research involving humans: First consultation draft (December 2004). Available at: http://www.nhmrc.gov.au/publications/_files/nsec.pdf (accessed 22 November 2005)
- National Health and Medical Research Council and Consumers' Health Forum of Australia. 2001. Statement on consumer and community participation in health and medical research (December 2001). Available at: http://www.nhmrc.gov.au/publications/synopses/r22syn.htm (accessed 20 October 2004)
- Office of the Health Services Commissioner. Author, Melbourne 2002, Statutory guidelines on research [Health Records Act 2001 (Vic)]
- Pettit P. Instituting a research ethic: Chilling and cautionary tales. Bioethics 1992; 6: 89–112
- World Medical Association. 2004. World Medical Association Declaration of Helsinki: Ethical principles for medical research involving human subjects. Available at: http://www.wma.net/e/policy/pdf/17c.pdf (accessed 22 November 2005)
- Victorian State Government. Author, Melbourne 1986, Guardianship and Administration Act (version no. 050)