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Journal of Intellectual & Developmental Disability Volume 34, 2009 - Issue 3
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Articles

Service and support needs of Australian carers supporting a family member with disability at homeFootnote

Rosanne Burton-Smith University of Tasmania, Hobart, Australia
,
Keith R. McVilly Deakin University, Melbourne, AustraliaCorrespondence[email protected]
,
Marie Yazbeck Centre for Developmental Disability Studies, University of Sydney, Australia
,
Trevor R. Parmenter Centre for Developmental Disability Studies, University of Sydney, Australia
&
Takako Tsutsui National Institute of Health and Medical Sciences, Japan
Pages 239-247 | Published online: 19 Sep 2009

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Read on this site (5)

Cong Xia, Ting Wei, Qi Tang, Hongying Zheng, Mei Sun, Gang Chen & Jun Lv. (2023) Anxiety, Depression, Quality of Life, and Family Support Among Family Caregivers of Children with Disabilities. International Journal of General Medicine 16, pages 5063-5075.
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Audrey Landuran, Hélène Sauzéon, Charles Consel & Bernard N’Kaoua. (2023) Evaluation of a smart home platform for adults with Down syndrome. Assistive Technology 35:4, pages 347-357.
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Siméon T. A. Lahaije, Jorien Luijkx, Aly Waninge & Annette A. J. van der Putten. (2023) Support needs of families with a child with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 0:0, pages 1-14.
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Joyce Man & Maria Kangas. (2020) Carer experiences of services for adults with intellectual disabilities and Co-morbid mental ill health or challenging behaviour. Advances in Mental Health 18:2, pages 166-178.
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Kristy Muir & Beth Goldblatt. (2011) Complementing or conflicting human rights conventions? Realising an inclusive approach to families with a young person with a disability and challenging behaviour. Disability & Society 26:5, pages 629-642.
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Felix Chukwuka Ugbe, Israel Aruoriwo Abiodun Etobro, Omabehere Innocent Ejeh, Cynthia Blessing Chiazor & Emmanuel Emioge. (2023) Petrographic and geotechnical evaluation of Ogwashi-Asaba ferruginised sandstone, Niger Delta, as aggregates for construction. International Journal of ADVANCED AND APPLIED SCIENCES 10:5, pages 93-101.
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Vassilios Argyropoulos & Katerina Riga. (2023) Personal needs of parents who raise children with blindness or visual impairment. British Journal of Visual Impairment, pages 026461962311705.
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Jacqueline Fitzgerald & Louise Gallagher. (2021) Parental stress and adjustment in the context of rare genetic syndromes: A scoping review. Journal of Intellectual Disabilities 26:2, pages 522-544.
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Susan Abel, Tanya Machin & Charlotte Brownlow. (2019) Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups. Research in Autism Spectrum Disorders 61, pages 10-21.
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Anna Balcells-Balcells, Climent Giné, Joan Guàrdia-Olmos, Jean Ann Summers & Joana M. Mas. (2019) Impact of supports and partnership on family quality of life. Research in Developmental Disabilities 85, pages 50-60.
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Ami Tint & Jonathan A Weiss. (2017) A qualitative study of the service experiences of women with autism spectrum disorder. Autism 22:8, pages 928-937.
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Viviana Lucía Aya-Gómez, Amalia Alexandra Ovalle Parra, Victoria Cabrera-Garcia, Diana Sthefania Muñoz-Gómez & Claudia Alejandra Duque Romero. (2017) Validation of the family needs assessment scale for Colombian families with children with intellectual disability. International Journal on Disability and Human Development 16:3.
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Rosa Vilaseca, Marta Gràcia, Francesc S. Beltran, Mariona Dalmau, Elisabeth Alomar, Ana Luisa Adam-Alcocer & David Simó-Pinatella. (2017) Needs and Supports of People with Intellectual Disability and Their Families in Catalonia. Journal of Applied Research in Intellectual Disabilities 30:1, pages 33-46.
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Mélina Dell’armi, Jeanne Kruck, Mohammad Hassan Afzali & Bernadette Rogé. (2016) Adaptation et validation française du « Family Needs Questionnaire » : évaluation des besoins familiaux des parents d’enfants avec troubles du spectre de l’autisme. Journal de Thérapie Comportementale et Cognitive 26:4, pages 150-161.
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Donatella Scarzello. (2015) Benessere percepito in genitori di soggetti adulti con disabilità intellettive: risorse emotive e strategie di coping. PSICOLOGIA DELLA SALUTE:2, pages 26-46.
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A. Zaidman-Zait, D. Curle, J. R. Jamieson, R. Chia & F. K. Kozak. (2014) Cochlear Implantation Among Deaf Children With Additional Disabilities: Parental Perceptions of Benefits, Challenges, and Service Provision. Journal of Deaf Studies and Deaf Education 20:1, pages 41-50.
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Sylvie Tétreault, Sophie Blais-Michaud, Pascale Marier Deschênes, Pauline Beaupré, Hubert Gascon, Normand Boucher & Monique Carrière. (2014) How to support families of children with disabilities? An exploratory study of social support services. Child & Family Social Work 19:3, pages 272-281.
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Yona Lunsky, Ami Tint, Suzanne Robinson, Marcia Gordeyko & Hélène Ouellette-Kuntz. (2014) System-Wide Information About Family Carers of Adults With Intellectual/Developmental Disabilities-A Scoping Review of the Literature. Journal of Policy and Practice in Intellectual Disabilities 11:1, pages 8-18.
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Glenn T. Fujiura. (2014) The Political Arithmetic of Disability and the American Family: A Demographic Perspective. Family Relations 63:1, pages 7-19.
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Geneviève Piérart, Sylvie Tétreault, Pascale Marier Deschênes & Sophie Blais-Michaud. (2014) Handicap, famille et soutien. Regard croisé Québec-Suisse. Enfances, Familles, Générations:20, pages 128-147.
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Chun-Yu Chiu, Ann P. Turnbull & Jean Ann Summers. (2013) What Families Need: Validation of the Family Needs Assessment for Taiwanese Families of Children with Intellectual Disability and Developmental Delay. Research and Practice for Persons with Severe Disabilities 38:4, pages 247-258.
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Kimiko Ueda, Donald B. BaileyJr.Jr., Naohiro Yonemoto, Kuniko Kajikawa, Yuko Nishigami, Sachiko Narisawa, Misako Nishiwaki, Mariko Shibata, Kiyotaka Tomiwa, Akihiro Matsushita, Nodoka Fujie & Kazuo Kodama. (2013) Validity and reliability of the Japanese version of the family needs survey. Research in Developmental Disabilities 34:10, pages 3596-3606.
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F. Rillotta, N. Kirby, J. Shearer & T. Nettelbeck. (2011) Family quality of life of Australian families with a member with an intellectual/developmental disability. Journal of Intellectual Disability Research 56:1, pages 71-86.
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S. Neikrug, D. Roth & J. Judes. (2011) Lives of quality in the face of challenge in Israel. Journal of Intellectual Disability Research 55:12, pages 1176-1184.
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M. Bertelli, A. Bianco, M. Rossi, D. Scuticchio & I. Brown. (2011) Relationship between individual quality of life and family quality of life for people with intellectual disability living in Italy. Journal of Intellectual Disability Research 55:12, pages 1136-1150.
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M. Bertoli, G. Biasini, M. T. Calignano, G. Celani, G. De Grossi, M. C. Digilio, C. C. Fermariello, G. Loffredo, F. Luchino, A. Marchese, S. Mazotti, B. Menghi, C. Razzano, C. Tiano, A. Zambon Hobart, G. Zampino & G. Zuccal?. (2011) Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy. Journal of Intellectual Disability Research 55:8, pages 801-820.
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Rosanne Burton-Smith, Keith R. McVilly, Marie Yazbeck, Trevor R. Parmenter & Takako Tsutsui. (2009) Quality of Life of Australian Family Carers: Implications for Research, Policy, and Practice. Journal of Policy and Practice in Intellectual Disabilities 6:3, pages 189-198.
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