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The American Journal of Bioethics Volume 8, 2008 - Issue 10
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Target Article

A Duty to Participate in Research: Does Social Context Matter?

Inmaculada de Melo-Martín Weill Cornell Medical College,
Pages 28-36 | Received 08 Apr 2008, Accepted 05 Aug 2008, Published online: 17 Nov 2008

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Helena Länsimies, Arja Halkoaho, Anna-Maija Pietilä, Niina Lintu, Mari Kangasniemi, Aino-Maija Eloranta, Anna Viitasalo, Virpi Lindi & Timo A. Lakka. (2016) Is there a duty to participate in a health research? A viewpoint of children 6–8 years of age and their parents. International Diabetes Nursing 13:1-3, pages 49-54.
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JudithB. Gordon, RobertJ. Levine, CarolynM. Mazure, PhilipE. Rubin, BarryR. Schaller & JohnL. Young. (2011) Social Contexts Influence Ethical Considerations of Research. The American Journal of Bioethics 11:5, pages 24-30.
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Heidi Malm. (2009) Genetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information?. The American Journal of Bioethics 9:6-7, pages 52-54.
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Inmaculada de Melo-Martín. (2008) Response to Open Peer Commentaries on “A Duty to Participate in Research: Does Social Context Matter?”. The American Journal of Bioethics 8:10, pages W3-W4.
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CraigL. Fry. (2008) Research Participation and Internal Normativity: Understanding Why People Participate. The American Journal of Bioethics 8:10, pages 43-44.
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Rosamond Rhodes. (2008) In Defense of the Duty to Participate in Biomedical Research. The American Journal of Bioethics 8:10, pages 37-38.
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Anita Ho. (2008) Correcting Social Ills Through Mandatory Research Participation. The American Journal of Bioethics 8:10, pages 39-40.
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RobertH. McLaughlin. (2008) Participation in Research and Social Context: The Case of Population-Based Cancer Registration, Surveillance, and Research. The American Journal of Bioethics 8:10, pages 41-42.
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Articles from other publishers (8)

Anita Ho, Soodabeh Joolaee, Michael McDonald, Don Grant, Michel M. White, Holly Longstaff & Eirikur Palsson. (2023) Navigating Informed Consent Requirements and Expectations in Cluster Randomized Trials: Research Ethics Board Members’ and Researchers’ Views. Ethics & Human Research 45:6, pages 31-45.
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Angeliki Kerasidou & Charalampia Kerasidou. (2023) Data-driven research and healthcare: public trust, data governance and the NHS. BMC Medical Ethics 24:1.
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Sebastian Müller. (2022) Is there a civic duty to support medical AI development by sharing electronic health records?. BMC Medical Ethics 23:1.
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. (2022) The Margin of Moral Duty of Human Being to Participate in Biomedical Research. Law and World 8:3, pages 38-47.
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Angela Ballantyne & G Owen Schaefer. (2018) Consent and the ethical duty to participate in health data research. Journal of Medical Ethics 44:6, pages 392-396.
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Daniel B. Mark & Christopher M. O’Connor. (2016) When Business and Science Clash, How Can We Avoid Harming Patients?. JACC: Heart Failure 4:2, pages 106-108.
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Alan J. Kearns. (2014) Catholic Social Teaching as a Framework for Research Ethics. Journal of Academic Ethics 12:2, pages 145-159.
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Mark A. Rothstein. 2013. Environmental Epigenomics in Health and Disease. Environmental Epigenomics in Health and Disease 297 308 .

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