Citations (36)
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Read on this site (11)
Sam Miles, Alicia Renedo, Cherelle Augustine, Patrick Ojeer, Nordia Willis & Cicely Marston. (2020) Obstacles to use of patient expertise to improve care: a co-produced longitudinal study of the experiences of young people with sickle cell disease in non-specialist hospital settings. Critical Public Health 30:5, pages 544-554.
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Christine Berg, Allison King & Dorothy Farrar Edwards. (2018) Mentoring Program for Young Adults with Sickle Cell Disease. Occupational Therapy In Health Care 32:2, pages 124-136.
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Autumn Fiester. (2014) Using Mediation Skills in Working With the “Difficult” Family in Rehabilitation. Topics in Stroke Rehabilitation 21:1, pages 1-6.
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Ron Amundson. (2013) Pain, Chronic Pain, and Sickle Cell Chronic Pain. The American Journal of Bioethics 13:4, pages 14-16.
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Carlton Haywood$suffix/text()$suffix/text(). (2013) Disrespectful Care in the Treatment of Sickle Cell Disease Requires More Than Ethics Consultation. The American Journal of Bioethics 13:4, pages 12-14.
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Autumn Fiester. (2013) De-Escalating Conflict: Mediation and the “Difficult” Patient. The American Journal of Bioethics 13:4, pages 11-12.
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Melissa Creary & Arri Eisen. (2013) Acknowledging Levels of Racism in the Definition of “Difficult”. The American Journal of Bioethics 13:4, pages 16-18.
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DowinH. Boatright & Jean Abbott. (2013) Not Your Typical Frequent Flyer: Overcoming Mythology in Caring for Sickle Cell Disease Patients. The American Journal of Bioethics 13:4, pages 18-20.
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Vicki Marsh, George Mocamah, Emmanuel Mabibo, Francis Kombe & ThomasN. Williams. (2013) The “Difficult Patient” Conundrum in Sickle Cell Disease in Kenya: Complex Sociopolitical Problems Need Wide Multidimensional Solutions. The American Journal of Bioethics 13:4, pages 20-22.
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Jane Crowther & Ian Kerridge. (2013) Intractable Difficulties in Caring for People With Sickle Cell Disease. The American Journal of Bioethics 13:4, pages 22-24.
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BenA. Rich. (2013) Distinguishing Difficult Patients From Difficult Maladies. The American Journal of Bioethics 13:4, pages 24-26.
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Articles from other publishers (25)
Edmund G. Howe. (2023) When Should Providers Defer versus Impose Their Views?. The Journal of Clinical Ethics 34:4, pages 289-295.
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Rachel G. Sinkey, Foluso J. Ogunsile, Julie Kanter, Cynthia Bean & Mara Greenberg. (2023) Society for Maternal-Fetal Medicine Consult Series #68: Sickle cell disease in pregnancy. American Journal of Obstetrics and Gynecology.
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Ben Reader, Melana Tysowsky, Andrew B. Collins & Alexandra Power-Hays. (2023) Acute Care Physical Therapy and Sickle Cell Disease. Journal of Acute Care Physical Therapy 14:2, pages 87-92.
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Charles R. Jonassaint, Julia O’Brien, Emily Nardo, Robert Feldman, Michael Stanton, Laura DeCastro & Kaleab Z. Abebe. (2022) Prevalence of Substance Use Disorders in Sickle Cell Disease Compared to Other Chronic Conditions: a Population-Based Study of Black American Adults. Journal of General Internal Medicine 38:5, pages 1214-1223.
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Holly Vo, Georgina D. Campelia & Aleksandra E. Olszewski. (2023) Addressing Racism in Ethics Consultation: An Expansion of the Four-Box Method. The Journal of Clinical Ethics 34:1, pages 11-26.
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Sarah L. Reeves, Hannah K. Peng, Jeffrey J. Wing, Lindsay W. Cogan, Alka Goel, David Anders, Nancy S. Green, Lynda D. Lisabeth & Kevin J. Dombkowski. (2023) Changes in Hydroxyurea Use Among Youths Enrolled in Medicaid With Sickle Cell Anemia After 2014 Revision of Clinical Guidelines. JAMA Network Open 6:3, pages e234584.
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Allison Kestenbaum, Portia Howard & Yuko Abbott. 2023. Palliative Care in Hematologic Malignancies and Serious Blood Disorders. Palliative Care in Hematologic Malignancies and Serious Blood Disorders
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Wally R. Smith, Cecelia Valrie & India Sisler. (2022) Structural Racism and Impact on Sickle Cell Disease. Hematology/Oncology Clinics of North America 36:6, pages 1063-1076.
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Sarah L. ReevesPooja N. PatelBrian MaddenSophia NgSusan E. CrearyDominic SmithChad Ellimoottil. (2022) Telehealth Use Before and During the COVID-19 Pandemic Among Children with Sickle Cell Anemia. Telemedicine and e-Health 28:8, pages 1166-1171.
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Johnathan H. Goree & Jaleesa Jackson. (2022) Do racial and ethnic disparities lead to the undertreatment of pain? Are there solutions?. Current Opinion in Anaesthesiology 35:3, pages 273-277.
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Hasan Symum & José Zayas-Castro. (2022) Impact of the COVID-19 Pandemic on the Pediatric Hospital Visits: Evidence from the State of Florida. Pediatric Reports 14:1, pages 58-70.
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Peter J Collins, Alicia Renedo & Cicely A Marston. (2020) Communicating and understanding pain: Limitations of pain scales for patients with sickle cell disorder and other painful conditions. Journal of Health Psychology 27:1, pages 103-118.
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Jena L Welch-Coltrane, Anthony A Wachnik, Meredith C B Adams, Cherie R Avants, Howard A Blumstein, Amber K Brooks, Andrew M Farland, Joshua B Johnson, Manoj Pariyadath, Erik C Summers & Robert W Hurley. (2021) Implementation of Individualized Pain Care Plans Decreases Length of Stay and Hospital Admission Rates for High Utilizing Adults with Sickle Cell Disease. Pain Medicine 22:8, pages 1743-1752.
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Aindrea B. Maddray & Shannon M. Phillips. (2020) Instruments to Measure Perceptions in the Emergency Department Provider-Patient with Sickle Cell Disease Interaction: Findings of an Integrative Review from a Ph.D. Project. The Open Nursing Journal 14:1, pages 263-284.
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Alicia Renedo, Sam Miles, Subarna Chakravorty, Andrea Leigh, John O Warner & Cicely Marston. (2020) Understanding the health-care experiences of people with sickle cell disorder transitioning from paediatric to adult services: This Sickle Cell Life, a longitudinal qualitative study. Health Services and Delivery Research 8:44, pages 1-94.
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Amy E. Caruso Brown & Katherine Frega. (2018) Who Deserves Access to Care in Children's Hospitals?. Hastings Center Report 48:6, pages 7-11.
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Matthew R. Schefft, Caitlan Swaffar, Jennifer Newlin, Cady Noda & India Sisler. (2018) A novel approach to reducing admissions for children with sickle cell disease in pain crisis through individualization and standardization in the emergency department. Pediatric Blood & Cancer 65:10, pages e27274.
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Adrienne Lerner, Hervé Picard, Adrien May, Vincent Gajdos, Louise Malou-Dhaussy, Flaviana Maroja-Cox, Laurence Salomon & Marie-Hélène Odièvre. (2017) Implications of a paediatrician-psychologist tandem for sickle cell disease care and impact on cognitive functioning. European Journal of Pediatrics 177:2, pages 193-203.
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Lydia H. Pecker & Jane Little. 2018. Sickle Cell Disease and Hematopoietic Stem Cell Transplantation. Sickle Cell Disease and Hematopoietic Stem Cell Transplantation
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Vani A. Mathur, Kasey B. Kiley, Carlton HaywoodJrJr, Shawn M. Bediako, Sophie Lanzkron, C. Patrick Carroll, Luis F. Buenaver, Megan Pejsa, Robert R. Edwards, Jennifer A. Haythornthwaite & Claudia M. Campbell. (2016) Multiple Levels of Suffering. The Clinical Journal of Pain 32:12, pages 1076-1085.
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John Hoberman. (2016) Why Bioethics Has a Race Problem. Hastings Center Report 46:2, pages 12-18.
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Rebekah M. Ciribassi & Crystal L. Patil. (2016) “We don't wear it on our sleeve”: Sickle cell disease and the (in)visible body in parts. Social Science & Medicine 148, pages 131-138.
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Helen J. Crowther & Ian Kerridge. (2015) Making reasonable decisions: a qualitative study of medical decision making in the care of patients with a clinically significant haemoglobin disorder. Journal of Evaluation in Clinical Practice 21:5, pages 802-807.
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Shan-Estelle Brown, Daniel F. Weisberg, Gabriela Balf-Soran & William H. Sledge. (2015) Sickle Cell Disease Patients With and Without Extremely High Hospital Use: Pain, Opioids, and Coping. Journal of Pain and Symptom Management 49:3, pages 539-547.
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Edmund G. Howe. (2014) New Approaches with Surrogate Decision Makers. The Journal of Clinical Ethics 25:4, pages 261-272.
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