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The American Journal of Bioethics Volume 18, 2018 - Issue 4
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Open Peer Commentaries

Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations

Maya SabatelloColumbia UniversityCorrespondence[email protected]
,
Shawneequa CallierGeorge Washington University
,
Nanibaa' A. GarrisonSeattle Children's Research Institute and University of WashingtonORCID Iconhttps://orcid.org/0000-0002-6228-3216
ORCID Icon &
Elizabeth G. CohnCity University of New York and Columbia University
Pages 34-36 | Published online: 05 Apr 2018

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Kadija Ferryman. (2023) Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine. The American Journal of Bioethics 23:7, pages 27-33.
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Stephanie A. Kraft & Nanibaa’ A. Garrison. (2019) An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice. The American Journal of Bioethics 19:4, pages 44-46.
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Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Nina Varsava, Kelly E. Ormond, Benjamin S. Wilfond & Sandra Soo-Jin Lee. (2018) Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent. The American Journal of Bioethics 18:5, pages W6-W8.
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Anna Middleton, Avery Adams, Hugbaad Aidid, Jerome Atutornu, Daniela Boraschi, Julian Borra, Tuba Bircan, Claudette Burch, Alessia Costa, Anna Dickinson, Ann Enticknap, Catherine Galloway, Francesca Gale, Emma Garlick, Em Haydon, Sasha Henriques, Marion Mitchell, Richard Milne, Jack Monaghan, Katherine I Morley, Milena Muella Santos, Laura Olivares Boldu, Fifi Olumogba, Kate Orviss, Vivienne Parry, Christine Patch, Lauren Robarts, Sam Shingles, Cindy Smidt, Ben Tomlin & Sarah Parkinson. (2023) Public engagement with genomics. Wellcome Open Research 8, pages 310.
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Anna Middleton, Avery Adams, Hugbaad Aidid, Jerome Atutornu, Daniela Boraschi, Julian Borra, Tuba Bircan, Claudette Burch, Alessia Costa, Anna Dickinson, Ann Enticknap, Catherine Galloway, Francesca Gale, Emma Garlick, Em Haydon, Sasha Henriques, Marion Mitchell, Richard Milne, Jack Monaghan, Katherine I Morley, Milena Muella Santos, Laura Olivares Boldu, Fifi Olumogba, Kate Orviss, Vivienne Parry, Christine Patch, Lauren Robarts, Sam Shingles, Cindy Smidt, Ben Tomlin & Sarah Parkinson. (2023) Public engagement with genomics. Wellcome Open Research 8, pages 310.
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Andrew J. Barnhart & Kris Dierickx. (2022) The Many Moral Matters of Organoid Models: A systematic review of reasons. Medicine, Health Care and Philosophy 25:3, pages 545-560.
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Katharine McCarthy, Sheela Maru, Sarah Nowlin, Payal Ram, Kimberly B. Glazer & Teresa Janevic. (2022) The validity of self‐reported SARS‐CoV‐2 results among postpartum respondents. Paediatric and Perinatal Epidemiology 36:4, pages 518-524.
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Yuwen Huang. (2022) Influence of Cultural Differences on the Establishment of Consumer Trust in a Socialized Cross-Border E-Commerce. Mobile Information Systems 2022, pages 1-7.
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Huang Yuwen, Song Guanxing,Ye Qiongwei. (2022) Consumers’ Perceived Trust Evaluation of Cross-border E-commerce Platforms in the Context of Socialization. Procedia Computer Science 199, pages 548-555.
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Stephanie A Kraft, Erin Rothwell, Seema K Shah, Devan M Duenas, Hannah Lewis, Kristin Muessig, Douglas J Opel, Katrina A B Goddard & Benjamin S Wilfond. (2021) Demonstrating ‘respect for persons’ in clinical research: findings from qualitative interviews with diverse genomics research participants. Journal of Medical Ethics 47:12, pages e8-e8.
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Michelle Kamp, Amanda Krause & Michele Ramsay. (2021) Has translational genomics come of age in Africa?. Human Molecular Genetics 30:R2, pages R164-R173.
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Luisa Pereira, Leon Mutesa, Paulina Tindana & Michèle Ramsay. (2021) African genetic diversity and adaptation inform a precision medicine agenda. Nature Reviews Genetics 22:5, pages 284-306.
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Katianne M. Howard Sharp, Niki Jurbergs, Annastasia Ouma, Lynn Harrison, Elsie Gerhardt, Leslie Taylor, Kayla Hamilton, Rose B. McGee, Regina Nuccio, Emily Quinn, Stacy Hines-Dowell, Chimene Kesserwan, Anusha Sunkara, Jami S. Gattuso, Michelle Pritchard, Belinda Mandrell, Mary V. Relling, Cyrine E. Haidar, Guolian Kang, Liza-Marie Johnson & Kim E. Nichols. (2020) Factors Associated With Declining to Participate in a Pediatric Oncology Next-Generation Sequencing Study. JCO Precision Oncology:4, pages 202-211.
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Janet K. Williams, Vence L. Bonham, Catherine Wicklund, Bernice Coleman, Jacquelyn Y. Taylor & Ann K. Cashion. (2019) Advocacy and actions to address disparities in access to genomic health care: A report on a National Academies workshop. Nursing Outlook 67:5, pages 605-612.
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Janet K. Williams & Cindy M. Anderson. (2018) Omics research ethics considerations. Nursing Outlook 66:4, pages 386-393.
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