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The American Journal of Bioethics Volume 18, 2018 - Issue 4
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Open Peer Commentaries

Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations

Maya SabatelloColumbia UniversityCorrespondence[email protected]
,
Shawneequa CallierGeorge Washington University
,
Nanibaa' A. GarrisonSeattle Children's Research Institute and University of WashingtonORCID Iconhttps://orcid.org/0000-0002-6228-3216
ORCID Icon &
Elizabeth G. CohnCity University of New York and Columbia University
Pages 34-36 | Published online: 05 Apr 2018

REFERENCES

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  • Cohn, E. G., M. Husamudeen, E. L. Larson, and J. K. Williams. 2015. Increasing participation in genomic research and biobanking through community-based capacity building. Journal of Genetic Counseling 24 (3):491–502. doi: 10.1007/s10897-014-9768-6
  • Garrison, N. A. 2013. Genomic justice for Native Americans: Impact of the Havasupai case on genetic research. Science, Technology and Human Values 38 (2):201–23. doi:10.1177/0162243912470009
  • Halbert, C. H., J. McDonald, S. Vadaparampil, L. Rice, and M. Jefferson. 2016. Conducting precision medicine research with African Americans. PLoS ONE 11 (7):e0154850. doi: 10.1371/journal.pone.0154850
  • King, P. A. 1998. Race, justice and research. In Beyond consent: Seeking justice in research, ed. J. P. Kahn and A. C. Mastroianni, 88–110. New York, NY: Oxford University Press.
  • Kraft, S., M. Cho, K. Gillespie, et al. 2018. Beyond consent: Building trusting relationships with diverse populations in precision medicine research. American Journal of Bioethics 18 (4):3–20.
  • Mikat-Stevens, N. A., I. A. Larson, and B. A. Tarini. 2015. Primary-care providers' perceived barriers to integration of genetics services: A systematic review of the literature. Genetics in Medicine 17 (3):169–76. doi: 10.1038/gim.2014.101
  • Reverby, S. M. 2009. Examining Tuskegee: The infamous syphilis study and its legacy. Chapel Hill, NC: University of North Carolina Press.
  • Sabatello, M. 2017. Precision medicine, health disparities, and ethics: The case for disability inclusion. Genetics in Medicine 19:1202–4. doi: 10.1038/gim.2017.
  • Sohn, H. 2017. Racial and ethnic disparities in health insurance coverage: Dynamics of gaining and losing coverage over the life-course. Population Research and Policy Review 36 (2):181–201. doi:10.1007/s11113-016-9416-y
  • Yu, J. H., J. Crouch, S. M. Jamal, H. K. Tabor, and M. J. Bamshad. 2013. Attitudes of African Americans toward return of results from exome and whole genome sequencing. American Journal of Medical Genetics Part A 161a (5):1064–72. doi: 10.1002/ajmg.a.36610

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