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Research Article

“Anything that makes life’s journey better.” Exploring the use of digital technology by people living with motor neurone disease

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Pages 378-387 | Received 19 Sep 2016, Accepted 22 Jan 2017, Published online: 20 Feb 2017

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Liam Knox, Christopher McDermott & Esther Hobson. (2022) Telehealth in long-term neurological conditions: the potential, the challenges and the key recommendations. Journal of Medical Engineering & Technology 46:6, pages 506-517.
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Jochem Helleman, Remko Van Eenennaam, Esther T. Kruitwagen, Willeke J. Kruithof, Marja J. Slappendel, Leonard H. Van Den Berg, Johanna M.A. Visser-Meily & Anita Beelen. (2020) Telehealth as part of specialized ALS care: feasibility and user experiences with “ALS home-monitoring and coaching”. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:3-4, pages 183-192.
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Elizabeth Elliott, Judith Newton, Phillipa Rewaj, Jenna M. Gregory, Lynda Tomarelli, Shuna Colville, Siddharthan Chandran & Suvankar Pal. (2020) An epidemiological profile of dysarthria incidence and assistive technology use in the living population of people with MND in Scotland. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:1-2, pages 116-122.
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Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2023) What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project . Muscle & Nerve 68:3, pages 286-295.
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Jochem Helleman, Barbara Johnson, Cory Holdom, Esther Hobson, Deirdre Murray, Frederik J. Steyn, Shyuan T. Ngo, Anjali Henders, Madhura B. Lokeshappa, Johanna M. A. Visser-Meily, Leonard H. van den Berg, Orla Hardiman, Anita Beelen, Chris McDermott & Ruben P. A. van Eijk. (2022) Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey. Journal of Neurology 269:11, pages 6003-6013.
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Deidre D. Morgan, Renée R. Taylor, Mack Ivy, Stacey George, Caroline Farrow & Vincci Lee. (2022) Contemporary occupational priorities at the end of life mapped against Model of Human Occupation constructs: A scoping review. Australian Occupational Therapy Journal 69:3, pages 341-373.
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Salah Hamdoun, Katina Michael, Rebecca Monteleone & Terri Bookman. (2021) Assistive Technologies for Greatly Improved Quality of Life for People Living With MND/ALS. IEEE Consumer Electronics Magazine 10:3, pages 76-81.
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Simanto Saha, Khondaker A. Mamun, Khawza Ahmed, Raqibul Mostafa, Ganesh R. Naik, Sam Darvishi, Ahsan H. Khandoker & Mathias Baumert. (2021) Progress in Brain Computer Interface: Challenges and Opportunities. Frontiers in Systems Neuroscience 15.
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Susana Pinto, Stefano Quintarelli & Vincenzo Silani. (2020) New technologies and Amyotrophic Lateral Sclerosis – Which step forward rushed by the COVID-19 pandemic?. Journal of the Neurological Sciences 418, pages 117081.
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Esther Hobson, Wendy Baird, Mike Bradburn, Cindy Cooper, Susan Mawson, Ann Quinn, Pamela J Shaw, Theresa Walsh & Christopher J McDermott. (2019) Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre. BMJ Open 9:10, pages e028526.
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Jessica de Wit, Carin D. Schröder, Julia el Mecky, Anita Beelen, Leonard H. van den Berg & Johanna M. A. Visser-Meily. (2018) Support needs of caregivers of patients with amyotrophic lateral sclerosis: A qualitative study. Palliative and Supportive Care 17:2, pages 195-201.
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Ileana M. Howard & Marla S. Kaufman. (2018) Telehealth applications for outpatients with neuromuscular or musculoskeletal disorders. Muscle & Nerve 58:4, pages 475-485.
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