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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 18, 2017 - Issue 5-6
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Research Article

“Anything that makes life’s journey better.” Exploring the use of digital technology by people living with motor neurone disease

Esther V. HobsonSheffield Institute for Translational Neurosciences, University of Sheffield, Sheffield, UK and ;School of Health and Related Research, University of Sheffield, Sheffield, UKCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-8497-2338
ORCID Icon,
Saima FazalSheffield Institute for Translational Neurosciences, University of Sheffield, Sheffield, UK and
,
Pamela J ShawSheffield Institute for Translational Neurosciences, University of Sheffield, Sheffield, UK and ORCID Iconhttp://orcid.org/0000-0002-8925-2567
ORCID Icon &
Christopher J McDermottSheffield Institute for Translational Neurosciences, University of Sheffield, Sheffield, UK and ORCID Iconhttp://orcid.org/0000-0002-1269-9053
ORCID Icon
Pages 378-387 | Received 19 Sep 2016, Accepted 22 Jan 2017, Published online: 20 Feb 2017

Citations (14)

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Liam Knox, Christopher McDermott & Esther Hobson. (2022) Telehealth in long-term neurological conditions: the potential, the challenges and the key recommendations. Journal of Medical Engineering & Technology 46:6, pages 506-517.
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Rachel Tattersall, Simon Carty, Dara Meldrum, Orla Hardiman & Deirdre Murray. (2022) The patient's perspective of remote respiratory assessments during the COVID-19 pandemic. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:1-2, pages 76-80.
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Jochem Helleman, Remko Van Eenennaam, Esther T. Kruitwagen, Willeke J. Kruithof, Marja J. Slappendel, Leonard H. Van Den Berg, Johanna M.A. Visser-Meily & Anita Beelen. (2020) Telehealth as part of specialized ALS care: feasibility and user experiences with “ALS home-monitoring and coaching”. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:3-4, pages 183-192.
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Elizabeth Elliott, Judith Newton, Phillipa Rewaj, Jenna M. Gregory, Lynda Tomarelli, Shuna Colville, Siddharthan Chandran & Suvankar Pal. (2020) An epidemiological profile of dysarthria incidence and assistive technology use in the living population of people with MND in Scotland. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:1-2, pages 116-122.
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Articles from other publishers (10)

Hitesh Yadav & Surita Maini. (2023) Electroencephalogram based brain-computer interface: Applications, challenges, and opportunities. Multimedia Tools and Applications 82:30, pages 47003-47047.
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Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2023) What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project . Muscle & Nerve 68:3, pages 286-295.
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Jochem Helleman, Barbara Johnson, Cory Holdom, Esther Hobson, Deirdre Murray, Frederik J. Steyn, Shyuan T. Ngo, Anjali Henders, Madhura B. Lokeshappa, Johanna M. A. Visser-Meily, Leonard H. van den Berg, Orla Hardiman, Anita Beelen, Chris McDermott & Ruben P. A. van Eijk. (2022) Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey. Journal of Neurology 269:11, pages 6003-6013.
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Deidre D. Morgan, Renée R. Taylor, Mack Ivy, Stacey George, Caroline Farrow & Vincci Lee. (2022) Contemporary occupational priorities at the end of life mapped against Model of Human Occupation constructs: A scoping review. Australian Occupational Therapy Journal 69:3, pages 341-373.
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Salah Hamdoun, Katina Michael, Rebecca Monteleone & Terri Bookman. (2021) Assistive Technologies for Greatly Improved Quality of Life for People Living With MND/ALS. IEEE Consumer Electronics Magazine 10:3, pages 76-81.
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Simanto Saha, Khondaker A. Mamun, Khawza Ahmed, Raqibul Mostafa, Ganesh R. Naik, Sam Darvishi, Ahsan H. Khandoker & Mathias Baumert. (2021) Progress in Brain Computer Interface: Challenges and Opportunities. Frontiers in Systems Neuroscience 15.
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Susana Pinto, Stefano Quintarelli & Vincenzo Silani. (2020) New technologies and Amyotrophic Lateral Sclerosis – Which step forward rushed by the COVID-19 pandemic?. Journal of the Neurological Sciences 418, pages 117081.
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Esther Hobson, Wendy Baird, Mike Bradburn, Cindy Cooper, Susan Mawson, Ann Quinn, Pamela J Shaw, Theresa Walsh & Christopher J McDermott. (2019) Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre. BMJ Open 9:10, pages e028526.
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Jessica de Wit, Carin D. Schröder, Julia el Mecky, Anita Beelen, Leonard H. van den Berg & Johanna M. A. Visser-Meily. (2018) Support needs of caregivers of patients with amyotrophic lateral sclerosis: A qualitative study. Palliative and Supportive Care 17:2, pages 195-201.
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Ileana M. Howard & Marla S. Kaufman. (2018) Telehealth applications for outpatients with neuromuscular or musculoskeletal disorders. Muscle & Nerve 58:4, pages 475-485.
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