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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 21, 2020 - Issue 3-4
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Clinical

ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors

Richard BedlackDepartment of Neurology, Duke University, Durham, NC, USA, Correspondence[email protected]
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,
Allison PogemillerALS Connect, Cave Creek, AZ, USA, View further author information
,
Jeremy ShefnerDepartments of Neurology, Barrow Neurological Institute, University of Arizona College of Medicine, Creighton University, Phoenix, AZ, USA, View further author information
,
Merit CudkowiczSean M Healey & AMG Center for ALS, Mass General Hospital, Boston, MA, USA, and View further author information
&
Terri Heiman-PattersonMDA/ALS Center of Hope, Temple Health, Philadelphia, PA, USAView further author information
Pages 216-221 | Received 29 Jul 2019, Accepted 21 Oct 2019, Published online: 15 Nov 2019

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. (2022) Theme 09 - Clinical Trials and Trial Design. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:sup1, pages 133-149.
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James D. Berry, Richard Bedlack, Debra Mathews, Wendy Agnese & Stephen Apple. (2021) Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 147-150.
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Articles from other publishers (1)

Christina N. Fournier. (2022) Considerations for Amyotrophic Lateral Sclerosis (ALS) Clinical Trial Design. Neurotherapeutics 19:4, pages 1180-1192.
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