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Päivi Lappalainen, Ana Gallego, Katariina Keinonen, Anna-Lotta Lappalainen, Asko Tolvanen & Raimo Lappalainen. (2024) Online and Self-Help Acceptance and Commitment Therapy for Parents of Children with Chronic Conditions and Developmental Disabilities: What Happens after the Intervention?. Child & Family Behavior Therapy 46:1, pages 1-26.
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Christina L. Rush, Ethan G. Lester, Heena Manglani, Emily Woodworth, Ottavio Vitolo, Maurizio Fava, James D. Berry, Kate Brizzi, Suma Babu, Elizabeth C. Lindenberger, J. Randall Curtis & Ana-Maria Vranceanu. (2023) Resilient together-ALS: leveraging the NDD transdiagnostic framework to develop an early dyadic intervention for people with amyotrophic lateral sclerosis and their informal care-partners. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:7-8, pages 719-726.
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Articles from other publishers (21)
Fen Ye, Jung Jae Lee, Dandan Xue & Doris Sau-fung Yu. (2023) Acceptance and Commitment Therapy Among Informal Caregivers of People With Chronic Health Conditions. JAMA Network Open 6:12, pages e2346216.
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Elisa Aust, René Günther, Andreas Hermann & Katharina Linse. (2023) Psychologisch geleitete Gruppentreffen für Angehörige
von ALS-Patient*innen. Fortschritte der Neurologie · Psychiatrie.
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Golnaz L. Atefi, Marjolein E. de Vugt, Rosalia J.M. van Knippenberg, Michael E. Levin, Frans R.J. Verhey & Sara Laureen Bartels. (2023) The use of Acceptance and Commitment Therapy (ACT) in informal caregivers of people with dementia and other long-term or chronic conditions: A systematic review and conceptual integration. Clinical Psychology Review 105, pages 102341.
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Christina L Rush, Ethan G Lester, James D Berry, Kate T Brizzi, Elizabeth C Lindenberger, Jared Randall Curtis & Ana-Maria Vranceanu. (2023) A roadmap for early psychosocial support in palliative care for people impacted by ALS—reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care. Translational Behavioral Medicine 13:9, pages 722-726.
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Heather M. Young, Tina R. Kilaberia, Robin Whitney, Benjamin M. Link, Janice F. Bell, Orly Tonkikh, Jessica Famula & Björn Oskarsson. (2023)
Needs of persons living with
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Emília Márcia Gomes de Souza e Silva, Stephano Tomaz da Silva, Ledycnarf Januário de Holanda, Daniel Tezoni Borges, Ana Paula Mendonça Fernandes, Kelly Evangelista Rodrigues da Silva, Tatiana Souza Ribeiro, Luciana Protásio de Melo, Ricardo Alexsandro de Medeiros Valentim, Danilo Alves Pinto Nagem & Ana Raquel Rodrigues Lindquist. (2023) Effects of a self-care educational program via telerehabilitation on quality of life and caregiver burden in amyotrophic lateral sclerosis: a single-blinded randomized clinical trial protocol. Frontiers in Psychology 14.
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Paul Cafarella, Tanja Effing & Anna Chur-Hansen. (2022) Interventions targeting psychological well-being for motor neuron disease carers: A systematic review. Palliative and Supportive Care 21:2, pages 320-336.
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Cathryn Pinto, Adam W. A. Geraghty, Francesco Pagnini, Lucy Yardley & Laura Dennison. (2023) How do people with MND and caregivers experience a digital mental health intervention? A qualitative study. Frontiers in Psychiatry 14.
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Paola Pierucci, Eleonora Volpato, Francesca Grosso, Maria De Candia, Massimo Casparrini, Elena Compalati, Francesco Pagnini, Paolo Banfi & Giovanna Carpagnano. (2023) Caregivers of Neuromuscular Patients Living with Tracheostomy during COVID-19 Pandemic: Their Experience. Journal of Clinical Medicine 12:2, pages 555.
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Areum Han & Tae Hui Kim. (2022) Efficacy of Internet-Based Acceptance and Commitment Therapy for Depressive Symptoms, Anxiety, Stress, Psychological Distress, and Quality of Life: Systematic Review and Meta-analysis. Journal of Medical Internet Research 24:12, pages e39727.
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Lene Klem Olesen, Karen la Cour, Heidi With, Annette Faber Mahoney & Charlotte Handberg. (2022) A cross-sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments. BMC Health Services Research 22:1.
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K. Jones, A. Methley, G. Boyle, R. Garcia & J. Vseteckova. (2021) A Systematic Review of the Effectiveness of Acceptance and Commitment Therapy for Managing Grief Experienced by Bereaved Spouses or Partners of Adults Who Had Received Palliative Care. Illness, Crisis & Loss 30:4, pages 596-613.
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Vittoria Anita Bilenchi, Paolo Banfi, Francesco Pagnini & Eleonora Volpato. (2022) Psychoeducational groups for people with Amyotrophic Lateral Sclerosis and their caregiver: a qualitative study. Neurological Sciences 43:7, pages 4239-4255.
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Minoo Sharbafshaaer, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Sabrina Esposito, Fabrizio Canale, Giulia D’Alvano, Marcello Silvestro, Antonio Russo, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2022) Psychological Support for Family Caregivers of Patients With Amyotrophic Lateral Sclerosis at the Time of the Coronavirus Disease 2019 Pandemic: A Pilot Study Using a Telemedicine Approach. Frontiers in Psychiatry 13.
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Lene Klem Olesen, Karen la Cour, Heidi With & Charlotte Handberg. (2022) Reflections of family caregivers and health professionals on the everyday challenges of caring for persons with amyotrophic lateral sclerosis and cognitive impairments: a qualitative study. Palliative Care and Social Practice 16, pages 263235242210777.
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Christopher Poppe, Kathi Schweikert, Tanja Krones & Tenzin Wangmo. (2022) Supportive needs of informal caregivers of people with amyotrophic lateral sclerosis in Switzerland: a qualitative study. Palliative Care and Social Practice 16, pages 263235242210777.
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Neil Boyt, Aileen K Ho, Hannah Morris-Bankole & Jacqueline Sin. (2022) Internet-facilitated interventions for informal caregivers of patients with neurodegenerative disorders: Systematic review and meta-analysis. DIGITAL HEALTH 8, pages 205520762211290.
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Giulia D’Alvano, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Luigi Lavorgna, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2021) Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic. Brain Sciences 12:1, pages 49.
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Marion Sommers-Spijkerman, Judith Austin, Ernst Bohlmeijer & Wendy Pots. (2021) New Evidence in the Booming Field of Online Mindfulness: An Updated Meta-analysis of Randomized Controlled Trials. JMIR Mental Health 8:7, pages e28168.
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Pavel Schischlevskij, Isabell Cordts, René Günther, Benjamin Stolte, Daniel Zeller, Carsten Schröter, Ute Weyen, Martin Regensburger, Joachim Wolf, Ilka Schneider, Andreas Hermann, Moritz Metelmann, Zacharias Kohl, Ralf A. Linker, Jan Christoph Koch, Claudia Stendel, Lars H. Müschen, Alma Osmanovic, Camilla Binz, Thomas Klopstock, Johannes Dorst, Albert C. Ludolph, Matthias Boentert, Tim Hagenacker, Marcus Deschauer, Paul Lingor, Susanne Petri & Olivia Schreiber-Katz. (2021) Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives. Brain Sciences 11:6, pages 748.
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