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Research Article

Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS study

Shelagh K. Genuis1 Division of Neurology, Department of Medicine, University of Alberta, Edmonton, AB, Canada
,
Westerly Luth1 Division of Neurology, Department of Medicine, University of Alberta, Edmonton, AB, Canada
,
Claire Magnussen2 Montreal Neurological Institute-Hospital, McGill University, Montreal, QC, Canada
,
Christine Vande Velde3 Department of Neurosciences, Université de Montréal, Montreal, QC, Canada
,
David Taylor4 ALS Society of Canada, Toronto, ON, Canada, and
, CAPTURE ALS Participant Partner Advisory Council &
Wendy S. Johnston1 Division of Neurology, Department of Medicine, University of Alberta, Edmonton, AB, CanadaCorrespondence[email protected]
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Received 06 Dec 2023, Accepted 04 Mar 2024, Published online: 22 Mar 2024

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