Advanced search
Publication Cover
Expert Opinion on Orphan Drugs Volume 6, 2018 - Issue 8
Submit an article Journal homepage
1,183
Views
4
CrossRef citations to date
0
Altmetric
Original Research

Evaluating the impact of peer support and connection on the quality of life of patients with familial chylomicronemia syndrome

Valerie SalvatoreDepartment of Medical Affairs, Akcea Therapeutics, Inc, Cambridge, MA, USACorrespondence[email protected]
View further author information
,
Alan GilstrapDepartment of Patient Advocacy, Akcea Therapeutics, Inc, Cambridge, MA, USAView further author information
,
Karren R WilliamsDepartment of Medical Affairs, Akcea Therapeutics, Inc, Cambridge, MA, USAView further author information
,
Swati ThoratDepartment of Medical Affairs, Akcea Therapeutics, Inc, Cambridge, MA, USAView further author information
,
Michael StevensonDepartment of Medical Affairs, Akcea Therapeutics, Inc, Cambridge, MA, USAView further author information
,
Andrea R GwosdowDepartment is Health Sciences and Medical Writing, Gwosdow Associates Science Consultants LLC, Arlington, MA, USAView further author information
,
Andrew HsiehDepartment of Medical Affairs, Akcea Therapeutics, Inc, Cambridge, MA, USAView further author information
,
Brant C HubbardDepartment of Medical Affairs, Akcea Therapeutics, Inc, Cambridge, MA, USAView further author information
&
David DavidsonDepartment of Medicine, Division of Cardiology, NorthShore University Health System, Bannockburn, IL, USAView further author information
 show all
Pages 497-505 | Received 19 Jun 2018, Accepted 24 Jul 2018, Published online: 05 Aug 2018

Citations (4)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (1)

Rina S. Fox, John Devin Peipert, Montserrat Vera-Llonch, Glenn Phillips & David Cella. (2020) PROMIS® and Neuro-QoLTM measures are valid measures of health-related quality of life among patients with familial chylomicronemia syndrome. Expert Review of Cardiovascular Therapy 18:4, pages 231-238.
Read now

Articles from other publishers (3)

Maria Cristina de Oliveira Izar, Raul Dias dos SantosFilhoFilho, Marcelo Heitor Vieira Assad, Antonio Carlos Palandri Chagas, Alceu de Oliveira ToledoJúniorJúnior, Ana Cláudia Cavalcante Nogueira, Ana Cristina Carneiro Fernandes Souto, Ana Maria Pitta Lottenberg, Ana Paula Marte Chacra, Carlos Eduardo dos Santos Ferreira, Charles Marques Lourenço, Cynthia Melissa Valerio, Dennys Esper Cintra, Francisco Antonio Helfenstein Fonseca, Gustavo Aguiar Campana, Henrique Tria Bianco, Josivan Gomes de Lima, Maria Helane Costa Gurgel Castelo, Marileia Scartezini, Miguel Antonio Moretti, Natasha Slhessarenko Fraife Barreto, Rayana Elias Maia, Renan Magalhães MontenegroJuniorJunior, Renato Jorge Alves, Roberta Marcondes Machado Figueiredo, Rodrigo Ambrosio Fock & Tânia Leme da Rocha Martinez. (2023) Posicionamento Brasileiro sobre Síndrome da Quilomicronemia Familiar – 2023. Arquivos Brasileiros de Cardiologia 120:4.
Crossref
Karen Kaiser, Rina S. Fox, Chelsea Perschon, Montserrat Vera-Llonch, Jordi Alonso, Laia Cubells & David Cella. (2022) Qualitative development of the PROMIS Profile v1.0-Familial Chylomicronemia Syndrome (FCS) 28. Quality of Life Research.
Crossref
C.K. Zigler, K. Ardalan, A. Hernandez, A.E. Caliendo, K.E. Magee, M.A. Terry, C.M. Mann & K.S. Torok. (2020) Exploring the impact of paediatric localized scleroderma on health‐related quality of life: focus groups with youth and caregivers. British Journal of Dermatology 183:4, pages 692-701.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.