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AJOB Empirical Bioethics Volume 11, 2020 - Issue 1
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Articles

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing

Jacqueline SavardFaculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, The University of Sydney, Sydney, NSW, Australia; ;School of Medicine, Faculty of Health, Deakin University, Victoria, Australia; ORCID Iconhttps://orcid.org/0000-0002-7965-6103View further author information
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Chriselle HickertonGenetics Education and Health Research, Murdoch Children’s Research Institute, Victoria, Australia; ;Department of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia; ORCID Iconhttps://orcid.org/0000-0001-6909-0970View further author information
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Sylvia A. MetcalfeGenetics Education and Health Research, Murdoch Children’s Research Institute, Victoria, Australia; ;Department of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia; ORCID Iconhttps://orcid.org/0000-0002-5714-5716View further author information
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Clara GaffDepartment of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia; ;Walter and Eliza Hall Institute of Medical Research, Victoria, Australia; ORCID Iconhttps://orcid.org/0000-0003-0160-4159View further author information
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Anna MiddletonSociety and Ethics Research, Wellcome Genome Campus Society and Ethics Research Group, Hinxton, Cambridge, United Kingdom; ;Faculty of Education, University of Cambridge, Cambridge, United KingdomORCID Iconhttps://orcid.org/0000-0003-3103-8098View further author information
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Ainsley J. NewsonFaculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, The University of Sydney, Sydney, NSW, Australia; Correspondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-3460-772XView further author information
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Pages 63-76 | Published online: 30 Dec 2019

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Read on this site (2)

Kelly E. Ormond. (2023) Expanding Our Thoughts about Autonomy in Relation to Whether We Should Offer Genetic Testing for Nonmedical Traits. The American Journal of Bioethics 23:3, pages 21-23.
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Sardana Kononova, Dekabrina Vinokurova, Nikolay A Barashkov, Ariadna Semenova, Sargylana Sofronova, Sidorova Oksana, Davydova Tatiana, Valentin Struchkov, Tatiana Burtseva, Anna Romanova & Sardana Fedorova. (2021) The attitude of young people in the city of Yakutsk to DNA-testing. International Journal of Circumpolar Health 80:1.
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Articles from other publishers (4)

Joshua J. Nolan & Elizabeth Ormondroyd. (2023) Direct‐to‐consumer genetic tests providing health risk information: A systematic review of consequences for consumers and health services. Clinical Genetics 104:1, pages 3-21.
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Sukeshini A. Grandhi & Linda Plotnick. (2022) Do I Spit or Do I Pass?. Proceedings of the ACM on Human-Computer Interaction 6:GROUP, pages 1-26.
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Amy C. Sturm, Rebecca Truty, Thomas E. Callis, Sienna Aguilar, Edward D. Esplin, Sarah Garcia, Eden V. Haverfield, Ana Morales, Robert L. Nussbaum, Susan Rojahn, Matteo Vatta & Daniel J. Rader. (2021) Limited-Variant Screening vs Comprehensive Genetic Testing for Familial Hypercholesterolemia Diagnosis. JAMA Cardiology 6:8, pages 902.
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Zhijun Yin, Lijun Song, Ellen W. Clayton & Bradley A. Malin. (2020) Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions. PLOS ONE 15:9, pages e0238644.
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