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AJOB Empirical Bioethics Volume 12, 2021 - Issue 3
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Research Article

Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States

Erika Blackshera Department of Bioethics and Humanities, University of Washington, Seattle, Washington, USACorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-0098-7154View further author information
ORCID Icon,
Vanessa Y. Hiratsukab South Central Foundation Research Department, Anchorage, Alaska, USAView further author information
,
Jessica W. Blanchardc Center for Applied Social Research, University of Oklahoma, Norman, Oklahoma, USAView further author information
,
Justin R. Lundf Department of Anthropology, University of Oklahoma, Norman, Oklahoma, USAView further author information
,
Justin Reedyg Department of Communication, University of Oklahoma, Norman, Oklahoma, USAORCID Iconhttps://orcid.org/0000-0002-7581-8558View further author information
ORCID Icon,
Julie A. Beansb South Central Foundation Research Department, Anchorage, Alaska, USAORCID Iconhttps://orcid.org/0000-0003-4363-9763View further author information
ORCID Icon,
Bobby Saunkeahe Chickasaw Nation Department of Health, Division of Research and Public Health, Ada, Oklahoma, USAView further author information
,
Micheal Peercye Chickasaw Nation Department of Health, Division of Research and Public Health, Ada, Oklahoma, USAView further author information
,
Christie Byarse Chickasaw Nation Department of Health, Division of Research and Public Health, Ada, Oklahoma, USAView further author information
,
Joseph Yrachetad Missouri Breaks Industries, Inc, Research Department, Eagle Butte, South Dakota, USAORCID Iconhttps://orcid.org/0000-0002-0691-8504View further author information
ORCID Icon,
Krystal S. Tsosied Missouri Breaks Industries, Inc, Research Department, Eagle Butte, South Dakota, USAView further author information
,
Marcia O’Learyd Missouri Breaks Industries, Inc, Research Department, Eagle Butte, South Dakota, USAView further author information
,
Guthrie Ducheneauxd Missouri Breaks Industries, Inc, Research Department, Eagle Butte, South Dakota, USAView further author information
&
Paul G. Spicerf Department of Anthropology, University of Oklahoma, Norman, Oklahoma, USAView further author information
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Pages 164-178 | Published online: 14 Jun 2021

Citations (9)

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Read on this site (3)

Janet K. Shim, Nicole Foti, Emily Vasquez, Stephanie M. Fullerton, Michael Bentz, Melanie Jeske & Sandra Soo-Jin Lee. (2023) Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity. AJOB Empirical Bioethics 14:4, pages 185-196.
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Elizabeth H. Hurst, Joseph E. Trujillo-Falcón, Justin Reedy & Chris Anderson. (2022) Citizen deliberation at South Carolina’s ‘Our Coastal Future Forum’: Talking through risk related to climate change. Journal of Risk Research 25:6, pages 764-777.
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Jessica Blanchard & Vanessa Hiratsuka. (2021) Being in Good Community: Engagement in Support of Indigenous Sovereignty. The American Journal of Bioethics 21:10, pages 54-56.
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Articles from other publishers (6)

Cathelijne M. Reincke, Annelien L. Bredenoord, Sophie van Baalen & Marc H. W. van Mil. (2022) How to fulfill the expert role in public dialogue: The Dutch dialogue on human germline genetic modification as a case. Frontiers in Communication 7.
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Yue Guan, Sarita Pathak, Denise Ballard, J. K. Veluswamy, Lauren E. McCullough, Colleen M. McBride & Michele C. Gornick. (2022) Testing a deliberative democracy method with citizens of African ancestry to weigh pros and cons of targeted screening for hereditary breast and ovarian cancer risk. Frontiers in Public Health 10.
Crossref
Erika Blacksher, Susan Brown Trinidad, R. Brian Woodbury, Scarlett E. Hopkins, Erica L. Woodahl, Bert B. Boyer, Wylie Burke & Vanessa Hiratsuka. (2022) Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation. Journal of Empirical Research on Human Research Ethics 17:3, pages 304-316.
Crossref
Susan Brown Trinidad, Erika Blacksher, Richard Brian Woodbury, Scarlett E. Hopkins, Wylie Burke, Erica L. Woodahl, Bert B. Boyer & Vanessa Y. Hiratsuka. (2022) Precision medicine research with American Indian and Alaska Native communities: Results of a deliberative engagement with tribal leaders. Genetics in Medicine 24:3, pages 622-630.
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Jake M. Robinson, Nicole Redvers, Araceli Camargo, Christina A. Bosch, Martin F. Breed, Lisa A. Brenner, Megan A. Carney, Ashvini Chauhan, Mauna Dasari, Leslie G. Dietz, Michael Friedman, Laura Grieneisen, Andrew J. Hoisington, Patrick F. Horve, Ally Hunter, Sierra Jech, Anna Jorgensen, Christopher A. Lowry, Ioana Man, Gwynne Mhuireach, Edauri Navarro-Pérez, Euan G. Ritchie, Justin D. Stewart, Harry Watkins, Philip Weinstein & Suzanne L. Ishaq. (2022) Twenty Important Research Questions in Microbial Exposure and Social Equity. mSystems 7:1.
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Ubaka Ogbogu & Natasha Ahmed. (2022) Ethical, Legal, and Social Implications (ELSI) Research: Methods and Approaches. Current Protocols 2:1.
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