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Original Articles

Families with Children with Disabilities - Inequalities and the Social Model

Pages 21-35 | Published online: 01 Jul 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (26)

Janet Vella Gera, Gillian M. Martin & Amy J. Camilleri Zahra. (2021) An insight into the lives of young siblings of disabled children in Malta. Disability & Society 36:1, pages 58-80.
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Jenny McMahon, Gilly-Elle Wiltshire, Kerry R. McGannon & Christopher Rayner. (2020) Children with autism in a sport and physical activity context: a collaborative autoethnography by two parents outlining their experiences. Sport, Education and Society 25:9, pages 1002-1014.
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Elizabeth Spruin, Nicola Abbott & Nicole Holt. (2018) Examining the Experiences of a Short Break Scheme amongst Adolescents with Disabilities (Service Users) and their Parents. International Journal of Disability, Development and Education 65:2, pages 148-162.
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Isabelle Cloquet, Marco Palomino, Gareth Shaw, Gemma Stephen & Tim Taylor. (2018) Disability, social inclusion and the marketing of tourist attractions. Journal of Sustainable Tourism 26:2, pages 221-237.
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Heather Davey, Christine Imms & Ellie Fossey. (2015) “Our child’s significant disability shapes our lives”: experiences of family social participation. Disability and Rehabilitation 37:24, pages 2264-2271.
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Bob Heyman, Elizabeth Lavender, Shahid Islam, Alvin Adey, Trevor Ramsay & Neil Taffs. (2015) The journey effect: how travel affects the experiences of mental health in-patient service-users and their families. Disability & Society 30:6, pages 880-895.
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Meng Ee Wong, Kenneth K. Poon, Sarinajit Kaur & Zi Jia Ng. (2015) Parental perspectives and challenges in inclusive education in Singapore. Asia Pacific Journal of Education 35:1, pages 85-97.
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Carmen Frances Jarrett, Rachel Mayes & Gwynnyth Llewellyn. (2014) The impact of disablism on the psycho-emotional well-being of families with a child with impairment. Scandinavian Journal of Disability Research 16:3, pages 195-210.
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Rhonda Breitkreuz, Laura Wunderli, Amber Savage & David McConnell. (2014) Rethinking resilience in families of children with disabilities: a socioecological approach. Community, Work & Family 17:3, pages 346-365.
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Ruth Jeanes & Jonathan Magee. (2010) Social exclusion and access toleisure in Northern Ireland communities :Examining the experiences of parents with disabled children. Loisir et Société / Society and Leisure 33:2, pages 221-249.
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Hayley Fitzgerald & David Kirk. (2009) Identity work: young disabled people, family and sport. Leisure Studies 28:4, pages 469-488.
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Sara Ryan & Katherine Runswick‐Cole. (2008) Repositioning mothers: mothers, disabled children and disability studies. Disability & Society 23:3, pages 199-210.
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Deb Keen. (2007) Parents, Families, and Partnerships: Issues and considerations. International Journal of Disability, Development and Education 54:3, pages 339-349.
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Suellen Murray. (2007) FAMILIES’ CARE OF THEIR CHILDREN WITH SEVERE DISABILITIES IN AUSTRALIA. Community, Work & Family 10:2, pages 215-230.
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Clare Connors & Kirsten Stalker. (2007) Children’s experiences of disability: pointers to a social model of childhood disability. Disability & Society 22:1, pages 19-33.
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Barbara A. Cole . (2005) ‘Good faith and effort?’ Perspectives on educational inclusion. Disability & Society 20:3, pages 331-344.
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Berni Kelly . (2005) ‘Chocolate … makes you autism’: impairment, disability and childhood identities. Disability & Society 20:3, pages 261-275.
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JohnC. Bricout, ShirleyL. Porterfield, ColleenM. Tracey & MatthewO. Howard. (2004) Linking Models of Disability for Children with Developmental Disabilities. Journal of Social Work in Disability & Rehabilitation 3:4, pages 45-67.
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Jayne Clapton. (2004) Disability, Ethics, and Biotechnology. Journal of Religion, Disability & Health 8:1-2, pages 21-31.
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Anders Gustavsson. (2004) The role of theory in disability research ‐springboard or strait‐jacket?. Scandinavian Journal of Disability Research 6:1, pages 55-70.
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Steen Bengtsson. (2003) Overcoming goal displacement and power displacement in social service provision. Scandinavian Journal of Disability Research 5:3, pages 262-280.
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Articles from other publishers (52)

Anne-Catherine Dubois, Noor Seghers, Isa Van Dorsselaer, Yves Dario, Isabelle Swolfs & Pierre Gérain. (2023) “Already too late”: A qualitative study of respite care among mothers of children with special healthcare needs and disabilities. Journal of Pediatric Nursing 72, pages e114-e121.
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Chang Su & Nazilla Khanlou. (2023) Effects of Stress, Social Support, Experience of Shame, and Loss of Face on Mental Health of Chinese Immigrant Mothers of Children with Developmental Disabilities in Canada. INYI Journal.
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Nicola Brimblecombe. (2023) The consequences for unpaid carers of unmet need for long-term care services in England. International Journal of Care and Caring 7:1, pages 114-130.
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Keiko Shikako, Jonathan K. Y. Lai, Shikha Saxena & Maya Sabatello. 2023. Neurodevelopmental Pediatrics. Neurodevelopmental Pediatrics 753 762 .
Rosamund Greiner. (2022) Towards Critical Studies of Disabilities: engaging Latin American theoretical perspectives on Congenital Zika Syndrome. Horizontes Antropológicos 28:64, pages 143-172.
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Sandra Marquis, Renee O'Leary, Nikita K. Hayden & Jennifer Baumbusch. (2022) A realist review of programs for siblings of children who have an intellectual/developmental disability. Family Relations.
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Bora AKDEMİR, Emine ÇAPAR & Murat BAYRAKDAR. (2022) İLKOKUL ÖĞRETMENLERİNİN KAYNAŞTIRMA UYGULAMASINA İLİŞKİN TUTUMLARI VE YETERLİLİK ALGILARI: BİR KARMA YÖNTEM ARAŞTIRMASI. Trakya Eğitim Dergisi 12:2, pages 1036-1056.
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Laura Crane, Freddie Adu, Francesca Arocas, Rachel Carli, Simon Eccles, Stewart Harris, Jayne Jardine, Chloe Phillips, Sue Piper, Lucia Santi, Matthew Sartin, Claire Shepherd, Kerry Sternstein, Gilly Taylor & Adrienne Wright. (2021) Vulnerable and Forgotten: The Impact of the COVID-19 Pandemic on Autism Special Schools in England. Frontiers in Education 6.
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Chang Su, Nazilla Khanlou & Nida Mustafa. (2018) Chinese Immigrant Mothers of Children with Developmental Disabilities: Stressors and Social Support. International Journal of Mental Health and Addiction 19:1, pages 1-18.
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Jessica Nina Lester & Michelle O'ReillyJessica Nina Lester & Michelle O’Reilly. 2021. The Social, Cultural, and Political Discourses of Autism. The Social, Cultural, and Political Discourses of Autism 95 129 .
Gregorius Abanit Asa, Nelsensius Klau Fauk, Paul Russell Ward & Lillian Mwanri. (2020) The psychosocial and economic impacts on female caregivers and families caring for children with a disability in Belu District, Indonesia. PLOS ONE 15:11, pages e0240921.
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Julie L Ramisch & Nicole Piland. 2020. The Handbook of Systemic Family Therapy. The Handbook of Systemic Family Therapy 369 396 .
Julie L Ramisch & Nicole Piland. 2020. The Handbook of Systemic Family Therapy. The Handbook of Systemic Family Therapy 369 396 .
Mercedes Ruiz-Lozano, Pilar Tirado-Valencia, Antonio Sianes, Antonio Ariza-Montes, Vicente Fernández-Rodríguez & Mª Carmen López-Martín. (2020) SROI Methodology for Public Administration Decisions about Financing with Social Criteria. A Case Study. Sustainability 12:3, pages 1070.
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Brian Tigere & Jabulani C. Makhubele. (2019) The experiences of parents of children living with disabilities at Lehlaba Protective Workshop in Sekhukhune district of Limpopo province. African Journal of Disability 8.
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Sandra Marquis, Michael V. Hayes & Kimberlyn McGrail. (2019) Factors Affecting the Health of Caregivers of Children Who Have an Intellectual/Developmental Disability. Journal of Policy and Practice in Intellectual Disabilities 16:3, pages 201-216.
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Hedda MeadanMelinda R. Snodgrass. (2018) Introduction to the Special Issue on Partnering With Families of Individuals With Developmental and Intellectual Disabilities Throughout the Lifespan. Intellectual and Developmental Disabilities 56:5, pages 305-306.
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Rebecca C. Fauth, Lucinda Platt & Samantha Parsons. (2017) The development of behavior problems among disabled and non-disabled children in England. Journal of Applied Developmental Psychology 52, pages 46-58.
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David McConnell & Amber Savage. 2017. Working with Families for Inclusive Education. Working with Families for Inclusive Education 37 61 .
Mustafa Kale, Ayperi Dikici Sığırtmaç, İmray Nur & İdris Kara. (2017) Okul Öncesinde Kaynaştırma Eğitimi Üzerine Bir Çalışma: Tezlerde Sunulan Önerilerin Uygulamalara Yansımaları. İnönü Üniversitesi Eğitim Fakültesi Dergisi, pages 220-220.
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Sara E. Green, Rosalyn Benjamin Darling & Loren Wilbers. 2016. Sociology Looking at Disability: What Did We Know and When Did We Know it. Sociology Looking at Disability: What Did We Know and When Did We Know it 261 285 .
Gerard Crotty & Owen Doody. (2015) Transcultural care and individuals with an intellectual disability. Journal of Intellectual Disabilities 20:4, pages 386-396.
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Stella Chatzitheochari, Samantha Parsons & Lucinda Platt. (2016) Doubly Disadvantaged? Bullying Experiences among Disabled Children and Young People in England. Sociology 50:4, pages 695-713.
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Myrthe Jacobs, Lisa Marks Woolfson & Simon C. Hunter. (2016) Attributions of Stability, Control and Responsibility: How Parents of Children with Intellectual Disabilities View their Child's Problematic Behaviour and Its Causes. Journal of Applied Research in Intellectual Disabilities 29:1, pages 58-70.
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Gill Valentine, Aneta Piekut & Catherine Harris. (2014) Intimate encounters: the negotiation of difference within the family and its implications for social relations in public space. The Geographical Journal 181:3, pages 280-294.
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David McConnell, Amber Savage & Rhonda Breitkreuz. (2014) Resilience in families raising children with disabilities and behavior problems. Research in Developmental Disabilities 35:4, pages 833-848.
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Hayfaa Y. Al-Kandari. (2013) Parents’ and Professionals’ Perceptions of the Services of Families of Children with Intellectual Developmental Disabilities. Child and Adolescent Social Work Journal 31:2, pages 119-142.
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Sara E. Green, Rosalyn Benjamin Darling & Loren Wilbers. 2013. Disability and Intersecting Statuses. Disability and Intersecting Statuses 97 168 .
Herawati I Nowak, Malin Broberg & Mikaela Starke. (2013) Parents’ experience of support in Sweden. Journal of Intellectual Disabilities 17:2, pages 134-144.
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Lloyd Purdy. (2012) How to fail as a family therapist working with adults with learning disabilities: a paradoxical literature review. Journal of Family Therapy 34:4, pages 419-430.
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Susan L. Neely-Barnes & J. Carolyn Graff. (2011) Are There Adverse Consequences to Being a Sibling of a Person With a Disability? A Propensity Score Analysis. Family Relations 60:3, pages 331-341.
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Sasha Scambler & Paul Newton. (2011) Capital transactions, disruptions and the emergence of personal capital in a lifeworld under attack. Social Theory & Health 9:2, pages 130-146.
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Paul Devereux & Charlie Bullock. 2011. Public Health Perspectives on Disability. Public Health Perspectives on Disability 55 79 .
Sasha Scambler & Paul Newton. 2010. New Directions in the Sociology of Chronic and Disabling Conditions. New Directions in the Sociology of Chronic and Disabling Conditions 77 105 .
Lauren J. Breen. (2009) Early Childhood Service Delivery for Families Living with Childhood Disability: Disabling Families through Problematic Implicit Ideology. Australasian Journal of Early Childhood 34:4, pages 14-21.
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Catherine McDonald. (2009) Children and Poverty Why their experience of their lives matter for policy. Australian Journal of Social Issues 44:1, pages 5-21.
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Lucy Barnard-Brak & David Thomson. (2009) How is Taking Care of Caregivers of Children with Disabilities Related to Academic Achievement?. Child & Youth Care Forum 38:2, pages 91-102.
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Joe Caldwell. (2008) Health and Access to Health Care of Female Family Caregivers of Adults With Developmental Disabilities. Journal of Disability Policy Studies 19:2, pages 68-79.
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Meg Gordon, Monica Cuskelly & Linda Rosenman. (2008) Influences on Mothers' Employment When Children Have Disabilities. Journal of Policy and Practice in Intellectual Disabilities 5:3, pages 203-210.
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Alice Home. (2008) Is it all bad? Rewards and challenges of mothering children with hidden disabilities. Social Work and Social Sciences Review 13:3, pages 7-24.
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J. Carolyn Graff, Susan Neely‐Barnes & Heather Smith. 2008. 233 280 .
Mary Law, Johanna Darrah, Nancy Pollock, Peter Rosenbaum, Dianne Russell, Stephen D Walter, Theresa Petrenchik, Brenda Wilson & Virginia Wright. (2007) Focus on Function – a randomized controlled trial comparing two rehabilitation interventions for young children with cerebral palsy. BMC Pediatrics 7:1.
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Gordon Grant. (2010) Invisible Contributions in Families with Children and Adults with Intellectual Disabilities. Canadian Journal on Aging / La Revue canadienne du vieillissement 26:S1, pages 15-26.
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Donna Anderson, Serge Dumont, Philip Jacobs & Leila Azzaria. (2016) The Personal Costs of Caring for a Child with a Disability: A Review of the Literature. Public Health Reports 122:1, pages 3-16.
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Debra Skinner & Thomas S. Weisner. (2007) Sociocultural studies of families of children with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews 13:4, pages 302-312.
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Michael Curtin & Gill Clarke. (2016) Living with Impairment: Learning from Disabled Young People's Biographies. British Journal of Occupational Therapy 68:9, pages 401-408.
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Susan E. Kelly. (2016) “A Different Light”. Journal of Contemporary Ethnography 34:2, pages 180-205.
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Susan Neely-Barnes & Maureen Marcenko. (2004) Predicting Impact of Childhood Disability on Families: Results From the 1995 National Health Interview Survey Disability Supplement. Mental Retardation 42:4, pages 284-293.
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Kirsten Stalker & Clare Connors. (2006) Children's perceptions of their disabled siblings: ‘she's different but it's normal for us’. Children & Society 18:3, pages 218-230.
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J. Clapton. (2003) Tragedy and catastrophe: contentious discourses of ethics and disability. Journal of Intellectual Disability Research 47:7, pages 540-547.
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Gordon Grant, Paul Ramcharan & Peter Goward. 2003. 135 173 .
Kylie Valentine, Marianne Rajkovic, Brooke Dinning & Denise Thompson. (2011) Post-Diagnosis Support for Children with Autism Spectrum Disorder, Their Families and Carers. SSRN Electronic Journal.
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