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Original Articles

Online Support Groups for Parkinson's Patients

A Pilot Study of Effectiveness

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Pages 23-38 | Received 04 Aug 2004, Accepted 07 Dec 2004, Published online: 08 Oct 2008

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Indu Subramanian, Kate Perepezko, Britt Stone, Ray K Chaudhuri & Gregory M Pontone. (2023) Wellness in Parkinson’s Disease: A Framework for Management Using a Holistic Culturally Sensitive Approach. US Neurology 19:1, pages 8.
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M Wade, N Brown, J Steele, S Mann, B Dancy, S Winter & A Majumdar. (2022) The impact of signposting and group support pathways on a community-based physical activity intervention grounded in motivational interviewing. Journal of Public Health 44:4, pages 851-862.
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Esther Vera Gerritzen, Abigail Rebecca Lee, Orii McDermott, Neil Coulson & Martin Orrell. (2022) Online Peer Support for People With Multiple Sclerosis: A Narrative Synthesis Systematic Review. International Journal of MS Care 24:6, pages 252-259.
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Esther Vera Gerritzen, Abigail Rebecca Lee, Orii McDermott, Neil Coulson & Martin Orrell. (2022) Online Peer Support for People With Parkinson Disease: Narrative Synthesis Systematic Review. JMIR Aging 5:3, pages e35425.
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Laura Ketigian, Nicholas Piniella, Kaylie McGivney, Samantha Lui, Austin Dukat, Min-Kyung Jung, Rosemary Gallagher & Adena Leder. (2022) Transition and Sustainability of an Online Care Model for People With Parkinson's Disease in Response to the COVID-19 Pandemic. Frontiers in Public Health 9.
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John T.H. Tsiang & Benjamin K.P. Woo. 2020. Diagnosis and Management in Parkinson's Disease. Diagnosis and Management in Parkinson's Disease 283 294 .
Sigal Kaplan & Yael Shalit. (2019) Using patient support programs for pregnancy surveillance: Current paradigm, emerging opportunity. Reproductive Toxicology 84, pages 122-124.
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Stephanie T. Gumuchian, Vanessa C. Delisle, Sandra Peláez, Vanessa L. Malcarne, Ghassan El‐Baalbaki, Linda Kwakkenbos, Lisa R. Jewett, Marie‐Eve Carrier, Mia Pépin, Brett D. Thombs, Kerri Connolly, Robert Riggs, Laura Dyas, Stephen Elrod, Karen Gottesman, Catherine Fortune, Anna McCusker, Maureen Sauve, Michelle Richard & Nancy Stephens. (2018) Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study. Arthritis Care & Research 70:2, pages 275-283.
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Nathalie Duroseau, Tobi Abramson, Kathleen Pergament, Vivian Chan, John Paul Govindavari, Christina Ciraco, David Tegay & Bhuma Krishnamachari. (2016) Acceptance of technology-based tools in a sample of Parkinson’s patients. Chronic Illness 13:1, pages 3-13.
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Sherry-Ann Brown. (2016) Patient Similarity: Emerging Concepts in Systems and Precision Medicine. Frontiers in Physiology 7.
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Magaly Ramirez, Shinyi Wu, Haomiao Jin, Kathleen Ell, Sandra Gross-Schulman, Laura Myerchin Sklaroff & Jeffrey Guterman. (2016) Automated Remote Monitoring of Depression: Acceptance Among Low-Income Patients in Diabetes Disease Management. JMIR Mental Health 3:1, pages e6.
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Chitat Chan & Michael J. Holosko. (2015) A Review of Information and Communication Technology Enhanced Social Work Interventions. Research on Social Work Practice 26:1, pages 88-100.
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Karen Fergus, Saunia Ahmad, Deborah L McLeod, Joanne Stephen, Sandra Gardner, Amanda Pereira, Ellen Warner & Wendy Carter. (2015) Couplelinks - an online intervention for young women with breast cancer and their male partners: study protocol for a randomized controlled trial. Trials 16:1.
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Susan Stewart Loane, Cynthia M. Webster & Steven D’Alessandro. (2014) Identifying Consumer Value Co-created through Social Support within Online Health Communities. Journal of Macromarketing 35:3, pages 353-367.
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Martijn van der Eijk, Frouke A.P. Nijhuis, Marjan J. Faber & Bastiaan R. Bloem. (2013) Moving from physician-centered care towards patient-centered care for Parkinson's disease patients. Parkinsonism & Related Disorders 19:11, pages 923-927.
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Adina Rojubally, Joanne Stephen, Karen Fergus, Scott Sellick, Deborah McLeod, Michael Speca, Jill Taylor-Brown, Kate Collie & Jill Turner. (2013) Professional Positions on Online Psychosocial Care in Canada: A Review of Current Policy Statements. Canadian Journal of Community Mental Health 32:3, pages 69-87.
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Angelica Attard & Neil S. Coulson. (2012) A thematic analysis of patient communication in Parkinson’s disease online support group discussion forums. Computers in Human Behavior 28:2, pages 500-506.
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Christiane Eichenberg & Ralf Ott. (2011) Klinisch-psychologische Intervention im InternetInternet-based psychological intervention. Psychotherapeut 57:1, pages 58-69.
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Sumaira Malik & Neil S. Coulson. (2011) The Therapeutic Potential of the Internet. Gastroenterology Nursing 34:6, pages 439-448.
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SUMAIRA H. MALIK & NEIL S. COULSON. (2011) A Comparison of Lurkers and Posters Within Infertility Online Support Groups. CIN: Computers, Informatics, Nursing 29:10, pages 564-573.
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ROSANNA F. HESS, JO ANN WEINLAND & KELLY BEEBE. (2010) "I Am Not Alone". CIN: Computers, Informatics, Nursing 28:4, pages 215-221.
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Terri K. Pogoda, Irene E. Cramer, Mark Meterko, Hai Lin, Ann Hendricks, Robert G. Holloway & Martin P. Charns. (2009) Patient and organizational factors related to education and support use by Veterans with Parkinson's disease. Movement Disorders 24:13, pages 1916-1924.
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Kathleen M Griffiths, Alison L Calear & Michelle Banfield. (2009) Systematic Review on Internet Support Groups (ISGs) and Depression (1): Do ISGs Reduce Depressive Symptoms?. Journal of Medical Internet Research 11:3, pages e40.
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Stephen A. Rains & Valerie Young. (2009) A Meta-Analysis of Research on Formal Computer-Mediated Support Groups: Examining Group Characteristics and Health Outcomes. Human Communication Research 35:3, pages 309-336.
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Susanne Hempel, Gill Norman, Su Golder, Raquel Aguiar-Ibáñez & Alison Eastwood. (2008) Psychosocial interventions for non-professional carers of people with Parkinson’s disease: a systematic scoping review. Journal of Advanced Nursing 64:3, pages 214-228.
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Sumaira H. Malik & Neil S. Coulson. (2008) Computer-mediated infertility support groups: An exploratory study of online experiences. Patient Education and Counseling 73:1, pages 105-113.
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Morton A. Lieberman. (2008) Effects of disease and leader type on moderators in online support groups. Computers in Human Behavior 24:5, pages 2446-2455.
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Morton A. Lieberman. (2007) Psychological Characteristics of People with Parkinson's Disease Who Prematurely Drop Out of Professionally Led Internet Chat Support Groups. CyberPsychology & Behavior 10:6, pages 741-748.
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