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Original Articles

Online Support Groups for Parkinson's Patients

A Pilot Study of Effectiveness

, , , , , & show all
Pages 23-38 | Received 04 Aug 2004, Accepted 07 Dec 2004, Published online: 08 Oct 2008

References

  • Budman , S. H. , Simeone , R. R. , Reilly , R. and Demby , A. 1994 . “ Progress in short-term and time-limited group psychotherapy: Evidence and implications ” . In Handbook of group psychotherapy: An empirical and clinical synthesis , Edited by: Fuhriman , A. and Burlingame , G. 319 – 339 . New York : John Wiley & Sons, Inc. .
  • Burns , M. E. , Tai , S. , Lai , R. and Nazareth , I. 2004 . Interactive health communication applications for people with chronic disease . The Cochrane Database , Issue 4. Art No: CD004274
  • Bushnell , D. M. and Martin , M. L. 1999 . Quality of life and Parkinson's disease: Translation and validation of the US Parkinson's Disease Questionnaire (PDQ-39) . Qual Life Res , 8 : 345 – 350 .
  • Cooper , G. A. 2001 . Online assistance for problem gamblers: An examination of participant characteristics and the role of stigma). Dissertation Abstracts International Section A . Humanities & Social Sciences , 62 ( 4-A ) : 13 – 34 .
  • Damiano , A. M. , Snyder , C. , Strausser , B. and William , M. K. 1999 . A review of health related quality-of-life concepts and measures for Parkinson's disease) . Qual Life Res , 8 : 235 – 243 .
  • Ehmann , T. S. , Beninger , R. J. , Gawel , M. J. and Riopelle , R. J. 1990 . Coping, social support, and depressive symptoms in Parkinson's disease) . J Geriatr Psychiatry Neurol , 3 : 85 – 90 .
  • Finn , J. and Lavitt , M. 1994 . Computer based self help groups for sexual abuse survivors . Social Work with Groups , 17 : 21 – 46 .
  • Gustafson , D. H. , Bosworth , K. , Hawkins , R. P. , Boberg , E. W. and Bricker , E. 1992 . CHESS: A computer-based system for providing information, referrals, decision support and social support to people facing medical and other health-related crises . Symposium on Computer Applications in Medical Care , : 161 – 165 .
  • Gustafson , D. H. , Hawkins , R. , Pingree , S. , McTavish , F. , Arora , N. K. , Mendenhall , J. , Cella , D. F. , Serlin , R. C. , Apantaku , F. M. , Stewart , J. and Salner , A. 2001 . Effect of computer support on younger women with breast cancer) . Journal of General Internal Medicine , 16 : 435 – 445 .
  • Harvey-Berino , J. Pintauro , S. J. 2002 . “The feasibility of using Internet support for the maintenance of weight loss.” Behavior Modification . Special Issue: Autism , 26 ( 1 ) : 103 – 116 . Part 2
  • Houston , T. K. , Cooper , L. A. and Ford , D. E. 2002 . Internet support groups for depression: A 1-year prospective cohort study . American Journal of Psychiatry , 159 ( 12 ) : 2062 – 2068 .
  • Johnson , F. 1988 . Encounter group therapy. Six group therapies. S. Long , 115 – 158 . New York, NY : Plenum Press .
  • Kessler , R. C. , Mickelson , K. D. and Zhao , S. 1997 . Patterns and correlates of self-help group membership in the United States) . Social Policy , 27 : 27 – 46 .
  • Kivlighan , D. M. Jr. and Coleman , M. N. 1999 . Values, exchange relationships, group composition, and leader-member differences: A potpourri of reactions to Dose (1999) . Group Dynamics , 3 ( 1 ) : 33 – 39 .
  • Klaassen , T. , Verhey , F. R.J. , Sneijders , G. H.J.M. , de Vet , H. C.W. and van Praag , H. M. 1995 . Treatment of depression in Parkinson's disease: A meta-analysis) . Jr. of Neuropsychiatry and Clinical Neurosciences , 7 : 281 – 28 .
  • Klein , E. E. and Dologite , D. G. 2000 . The role of computer support tools and gender composition in innovative information system idea generation by small groups) . Computers in Human Behavior , 16 ( 2 ) : 111 – 139 .
  • Klemm , P. , Bunnell , D. , Cullen , M. , Soneji , R. , Gibbons , P. and Holeck , A. 2003 . Online Cancer Support Groups: A review of the Research Literature) . CIN: Computers, Informatics, Nursing , 21 ( 3 ) : 136 – 142 .
  • Lieberman , M. A. , Golant , M. , Giese-Davis , J. , Winzelberg , A. , Benjamin , H. , Humphreys , K. , Kronenwetter , C. , Russo , S. and Spiegel , D. 2003 . Electronic support groups for breast carcinoma) . Cancer , 97 : 920 – 925 .
  • Loader , B. D. , Muncer , S. , Burrows , R. , Pleace , N. and Nettleton , S. 2002 . Medicine on the line? Computer-mediated social support and advice for people with diabetes) . International Journal of Social Welfare , 11 ( 1 ) : 53 – 65 .
  • Meier , A. 2002 . An online stress management support group for social workers . Journal of Technology in Human Service Part 1 , Vol 20 ( 1-2 ) : 107 – 132 .
  • Perron , B. 2002 . Online support for caregivers of people with a mental illness) . Psychiatric Rehabilitation Journal , 26 ( 1 ) : 70 – 77 .
  • Peto , V. , Jenkinson , C. and Fitzpatrick , K. R. 1998 . PDQ-39: A review of the development, validation and application of a Parkinson's disease quality of life questionnaire) . J Neurol , 245 : S10 – S14 .
  • Pew Internet & American Life Project . 2001 . Online Communities: Networks that nurture long-distance relationships and local ties Retrieved September 12, 2003, from http://www.pewinternet.org/reports/toc.asp?Report=47
  • Pew Internet & American Life Project . 2003 . Internet Health Resources: Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access. Retrieved September 12, 2003, from http://www.pewinternet.org/reports/toc.asp?Report=58
  • Posen , J. , Moore , O. , Tassa , D. S. , Ginzburg , K. , Drory , M. and Giladi , N. 2000 . Young women with PD: A group work experience) . Soc Work Health Care , 32 ( 1 ) : 77 – 91 .
  • Radloff , L. S. 1977 . The CES-D Scale: A Self-Report Depression Scale for Research in the General Population) . Applied Psychological Measurement , 1 : 385 – 401 .
  • Rubenstein , L. M. , Voelker , M. D. , Chrischilles , E. A. , Glenn , D. C. , Wallace , R. B. and Rodnitzky , R. L. 1998 . Applied Psychological Measurement , 7 ( 4 ) May : 279 – 90 . The usefulness of the Functional Status Questionnaire and Medical Outcomes Study Short Form in Parkinson's disease research
  • Sanders , N. E. J. 1999 . An assessment of coping and adjustment in individuals with Parkinson's disease and their caregivers). Dissertation Abstracts International: Section B . The Sciences & Engineering , 60 : 0842
  • Schrag , A. , Jahanshahi , M. and Quin , N. 2000 . What contributes to quality of life in patients with Parkinson's disease . Jr. of Neurology and Psychiatry , 69 : 308 – 31 .
  • Schwab , R. 1995 . Bereaved parents and support group participation) . Omega , 32 : 49 – 61 .
  • Shaw , McTavish , Hawkins , Gustafson and Pingree . 2000 . Experiences of women with breast cancer: Exchanging social support over the CHESS computer network . Journal of Health Communication; Apr-Jun , 5 ( 2 ) : 135 – 59 .
  • Siebert , M. J. and Dorfman , W. L. 1995 . Group composition and its impact on effective group treatment of HIV and AIDS patients) . Journal of Developmental & Physical Disabilities , 7 ( 4 ) : 317 – 334 .
  • Vernaleken , C. C. 1997 . The relationship of sex composition of psychotherapy groups to therapeutic outcomes, group process, and gender role) . Dissertation Abstracts International: Section B: The Sciences & Engineering , 58 ( 3-B ) : 1551
  • Winzelberg , A. J. , Classen , C. , Alpers , G. W. , Roberts , H. , Koopman , C. , Adams , R. E. , Ernst , H. , Dev , P. and Taylor , C. B. 2003 . Evaluation of an internet support group for women with primary breast cancer) . Cancer , 97 : 1164 – 1173 .
  • Winzelberg , A. , Taylor , C. B. , Sharpe , T. , Eldredge , K. , Dev , P. and Costantino , P. 1998 . Evaluation of a computer-mediated eating disorder intervention program) . International Journal of Eating Disorders , 24 ( 4 ) : 339 – 349 .

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