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Original Articles

Transition from a Pediatric HIV Intramural Clinical Research Program to Adolescent and Adult Community-Based Care Services

Assessing Transition Readiness

, , &
Pages 1-19 | Received 01 Jun 2006, Accepted 01 Sep 2006, Published online: 22 Sep 2008

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (7)

Patrick Ryscavage, Thomas Macharia, Devang Patel, Robyn Palmeiro & Vicki Tepper. (2016) Linkage to and retention in care following healthcare transition from pediatric to adult HIV care. AIDS Care 28:5, pages 561-565.
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Renee Smith & Megan Wilkins. (2015) Perinatally acquired HIV infection: Long-term neuropsychological consequences and challenges ahead. Child Neuropsychology 21:2, pages 234-268.
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Maria E Ferris, Donna H Harward, Kristi Bickford, J. Bradley Layton, M. Ted Ferris, Susan L Hogan, Debbie S Gipson, Lynn P McCoy & Stephen R Hooper. (2012) A Clinical Tool to Measure the Components of Health-Care Transition from Pediatric Care to Adult Care: The UNC TRANSITION Scale. Renal Failure 34:6, pages 744-753.
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Cynthia D. Fair, Kristen Sullivan & Amy Gatto. (2010) Best practices in transitioning youth with HIV: Perspectives of pediatric and adult infectious disease care providers. Psychology, Health & Medicine 15:5, pages 515-527.
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Tiffany Chenneville, Kimberly Sibille & Debra Bendell-Estroff. (2010) Decisional Capacity Among Minors With HIV: A Model for Balancing Autonomy Rights With the Need for Protection. Ethics & Behavior 20:2, pages 83-94.
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Tomás Campbell, Hannah Beer, Rebecca Wilkins, Ella Sherlock, Anna Merrett & Jayne Griffiths. (2010) “I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation. AIDS Care 22:2, pages 263-269.
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Articles from other publishers (61)

Laura C. Hart & Deena Chisolm. (2023) Improving the use of transition readiness measures in research and clinical care. Pediatric Research 94:3, pages 926-930.
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Mackenzie Mulkey, A. Brooke Baggett & Dmitry Tumin. (2022) Readiness for transition to adult health care among US adolescents, 2016–2020. Child: Care, Health and Development 49:2, pages 321-331.
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Megan Brundrett & Laura C. Hart. (2023) Development, pilot implementation, and preliminary assessment of a transition process for youth living with HIV. Journal of Pediatric Nursing 68, pages 93-98.
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Colleen Stiles-Shields, Tessa K. Kritikos, Meredith Starnes, Zoe R. Smith & Grayson N. Holmbeck. (2022) The Transition from Pediatric to Adult Health Care in Young Adults with Spina Bifida: Demographic and Physician-Related Correlates. Journal of Developmental & Behavioral Pediatrics 43:3, pages e179-e187.
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Shelley Doucet, Jennifer Splane, Alison Luke, Kathryn E. Asher, Sydney Breneol, Jackie Pidduck, Amy Grant, Emilie Dionne, Cathie Scott, Lisa Keeping‐Burke, Jessie‐Lee McIsaac, Jan Willem Gorter & Janet Curran. (2022) Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: A scoping review. Child: Care, Health and Development.
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Emily A. Barr, Jennifer L. Raybin, Hillary Dunlevy, Lisa Abuogi & Jacqueline Jones. (2022) Transition From Pediatric and Adolescent HIV Care to Adult HIV Care and the Patient–Provider Relationship: A Qualitative Metasynthesis. Journal of the Association of Nurses in AIDS Care 33:2, pages 132-154.
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Seema T. Meloni, Patricia Agaba, Charlotte A. Chang, Esther Yiltok, Stephen Oguche, Emeka Ejeliogu, Oche Agbaji, Prosper Okonkwo & Phyllis J. Kanki. (2020) Longitudinal evaluation of adherence, retention, and transition patterns of adolescents living with HIV in Nigeria. PLOS ONE 15:7, pages e0236801.
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Victoria Logan Kennedy, Kaitlyn Luisa Mellor, Jason Brophy, Ari Bitnun, Ariane Alimenti, Fatima Kakkar, Carmen Helen Logie, Kath Webster, Karène Proulx-Boucher, Erin Ding, Shahab Jabbari, Angela Kaida, Alexandra de Pokomandy & Mona Loutfy. (2020) Transition from Pediatric to Adult HIV Care for Young Women Living with HIV. Journal of the International Association of Providers of AIDS Care (JIAPAC) 19, pages 232595822090357.
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Kathleen J. Sawin, Rachel Margolis, Jaclyn R. MacFarlane Bookman, Melissa H. Bellin, Lynne Romeiser Logan, Jason Woodward & Timothy J. Brei. 2020. Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions. Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions 71 109 .
Irene NjugunaKristin Beima-SofieCaren MburuCyrus MugoDanae A BlackJillian NearyJanet ItindiAlvin OnyangoJennifer SlykerLaura OyiengoGrace John-StewartDalton Wamalwa. (2019) Managing the transition from paediatric to adult care for HIV, Kenya. Bulletin of the World Health Organization 97:12, pages 837-845.
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Laura C. Hart, Sonya V. Patel-Nguyen, Meredith G. Merkley & Daniel E. Jonas. (2019) An Evidence Map for Interventions Addressing Transition from Pediatric to Adult Care: A Systematic Review of Systematic Reviews. Journal of Pediatric Nursing 48, pages 18-34.
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Siyan Yi, Sovannary Tuot, Khuondyla Pal, Vohith Khol, Say Sok, Pheak Chhoun, Laura Ferguson & Gitau Mburu. (2018) Characteristics of adolescents living with HIV receiving care and treatment services in antiretroviral therapy clinics in Cambodia: descriptive findings from a cross-sectional study. BMC Health Services Research 18:1.
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Yi Zhong, Donna B. Gilleskie, Miranda A.L. van Tilburg, Stephen R. Hooper, Eniko Rak, Karina Javalkar, Meaghan Nazareth, Brian Pitts, Maggwa Ndugga, Nina Jain, Laura Hart, Suneet Bhansali, Jordan Richards, Randal K. Detwiler, Karin True, Alexandre S.F. de Pomposo & Maria E. Ferris. (2018) Longitudinal Self-Management and/or Transition Readiness per the TRANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings. The Journal of Pediatrics 203, pages 361-370.e1.
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Wendy N Gray, Megan R Schaefer, Alana Resmini-Rawlinson & Scott T Wagoner. (2018) Barriers to Transition From Pediatric to Adult Care: A Systematic Review. Journal of Pediatric Psychology 43:5, pages 488-502.
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Nicola J. Gray, Jonathan Burton, Roisin Campbell & Janet E. McDonagh. 2018. Health Care Transition. Health Care Transition 279 292 .
Lisa A. Schwartz, Alexandra M. Psihogios & Emily M. Fredericks. 2018. Health Care Transition. Health Care Transition 119 128 .
Nadia A. Sam-Agudu, Jennifer R. Pharr, Tamara Bruno, Chad L. Cross, Llewellyn J. Cornelius, Prosper Okonkwo, Bolanle Oyeledun, Hadiza Khamofu, Ayodotun Olutola, Salome Erekaha, William Nii Ayitey Menson & Echezona E. Ezeanolue. (2017) Adolescent Coordinated Transition (ACT) to improve health outcomes among young people living with HIV in Nigeria: study protocol for a randomized controlled trial. Trials 18:1.
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Siyan Yi, Chanrith Ngin, Khuondyla Pal, Vohith Khol, Sovannary Tuot, Sokunmealiny Sau, Pheak Chhoun, Gitau Mburu, Sok Chamreun Choub, Kolab Chhim & Penhsun Ly. (2017) Transition into adult care: factors associated with level of preparedness among adolescents living with HIV in Cambodia. AIDS Research and Therapy 14:1.
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Rachel Margolis, Lori Wiener, Maryland Pao, Harry L. Malech, Steven M. Holland & Patricia Driscoll. (2017) Transition From Pediatric to Adult Care by Young Adults With Chronic Granulomatous Disease: The Patient's Viewpoint. Journal of Adolescent Health 61:6, pages 716-721.
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Phabinly Gabriel, Margaret McManus, Katherine Rogers & Patience White. (2017) Outcome Evidence for Structured Pediatric to Adult Health Care Transition Interventions: A Systematic Review. The Journal of Pediatrics 188, pages 263-269.e15.
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Sophia A. Hussen, Rana Chakraborty, Andrea Knezevic, Andres Camacho-Gonzalez, Eugene Huang, Rob Stephenson & Carlos del Rio. (2017) Transitioning young adults from paediatric to adult care and the HIV care continuum in Atlanta, Georgia, USA: a retrospective cohort study. Journal of the International AIDS Society 20:1, pages 21848.
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Kristin Wong, Jason Zucker, Helen Fernandes & David Cennimo. (2016) Adolescent HIV viral load in an urban hospital in Newark, New Jersey. International Journal of Pediatrics and Adolescent Medicine 3:3, pages 103-108.
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Karina Javalkar, Meredith Johnson, Abhijit V. Kshirsagar, Sofia Ocegueda, Randal K. Detwiler & Maria Ferris. (2016) Ecological Factors Predict Transition Readiness/Self-Management in Youth With Chronic Conditions. Journal of Adolescent Health 58:1, pages 40-46.
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Tomás Campbell & Jayne Griffiths. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 399 420 .
Corry Azzopardi, Robyn Salter, Stephanie Savage, Jason Brophy, Ari Bitnun & Stanley Read. 2016. Children and Young People Living with HIV/AIDS. Children and Young People Living with HIV/AIDS 379 398 .
Mary-Ann Davies, Jorge Pinto & Marlène Bras. (2015) Getting to 90-90-90 in paediatric HIV: What is needed?. Journal of the International AIDS Society 18, pages 20770.
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Sonia Lee & Rohan Hazra. (2015) Achieving 90-90-90 in paediatric HIV: adolescence as the touchstone for transition success. Journal of the International AIDS Society 18, pages 20257.
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Donna Maturo, Alexis Powell, Hannah Major-Wilson, Kenia Sanchez, Joseph P. De Santis & Lawrence B. Friedman. (2015) Transitioning Adolescents and Young Adults With HIV Infection to Adult Care: Pilot Testing the “Movin’ Out” Transitioning Protocol. Journal of Pediatric Nursing 30:5, pages e29-e35.
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Barbara Speller-Brown, Katherine Patterson Kelly, Brigit VanGraafeiland, Suzanne Feetham, Anne Sill, Deepika Darbari & Emily R. Meier. (2015) Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease. Journal of Pediatric Nursing 30:5, pages 788-796.
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Patricia Y. Chu, Gary R. Maslow, Megan von Isenburg & Richard J. Chung. (2015) Systematic Review of the Impact of Transition Interventions for Adolescents With Chronic Illness on Transfer From Pediatric to Adult Healthcare. Journal of Pediatric Nursing 30:5, pages e19-e27.
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Ambra Righetti, Roberta Prinapori, Loredana Nulvesu, Laura Fornoni, Claudio Viscoli & Antonio Di Biagio. (2015) Transitioning HIV-infected Children and Adolescents into Adult Care: An Italian Real-life Experience. Journal of the Association of Nurses in AIDS Care 26:5, pages 652-659.
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Steve Chaplin. (2015) Literature Review: Transition From Paediatric to Adult Services in Haemophilia. The Journal of Haemophilia Practice 2:2, pages 29-51.
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Lorena F Zhang, Jane SW Ho & Sean E Kennedy. (2014) A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease. BMC Pediatrics 14:1.
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Sophia A Hussen, Ann Chahroudi, Ashley Boylan, Andres F Camacho-Gonzalez, Stephanie Hackett & Rana Chakraborty. (2014) Transition of youth living with HIV from pediatric to adult-oriented healthcare: a review of the literature. Future Virology 9:10, pages 921-929.
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Lisa McCann, Nora Kearney & Yvonne Wengström. (2014) “It’s Just Going to a New Hospital … That’s It.” Or Is It? An Experiential Perspective on Moving From Pediatric to Adult Cancer Services. Cancer Nursing 37:5, pages E23-E31.
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L. A. Schwartz, L. C. Daniel, L. D. Brumley, L. P. Barakat, K. M. Wesley & L. K. Tuchman. (2014) Measures of Readiness to Transition to Adult Health Care for Youth With Chronic Physical Health Conditions: A Systematic Review and Recommendations for Measurement Testing and Development. Journal of Pediatric Psychology 39:6, pages 588-601.
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Christy NewmanAsha PerssonAngela MillerElena Cama. (2014) Bridging Worlds, Breaking Rules: Clinician Perspectives on Transitioning Young People with Perinatally Acquired HIV Into Adult Care in a Low Prevalence Setting. AIDS Patient Care and STDs 28:7, pages 381-393.
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Niraj Sharma, Elizabeth Willen, Ana Garcia & Tanvi S. Sharma. (2014) Attitudes Toward Transitioning in Youth With Perinatally Acquired HIV and Their Family Caregivers. Journal of the Association of Nurses in AIDS Care 25:2, pages 168-175.
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Niraj Sharma, Kitty O’Hare, Richard C. Antonelli & Gregory S. Sawicki. (2014) Transition Care: Future Directions in Education, Health Policy, and Outcomes Research. Academic Pediatrics 14:2, pages 120-127.
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Mathieu Kuchenbuch, Nicole Chemaly, Catherine Chiron, Olivier Dulac & Rima Nabbout. (2013) Transition and transfer from pediatric to adult health care in epilepsy: A families' survey on Dravet syndrome. Epilepsy & Behavior 29:1, pages 161-165.
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Cecily L. Betz, Marie L. Lobo, Wendy M. Nehring & Kim Bui. (2013) Voices not heard: A systematic review of adolescents' and emerging adults' perspectives of health care transition. Nursing Outlook 61:5, pages 311-336.
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Rana Chakraborty, Russell B. Van Dyke, Patricia M. Flynn, Grace M. Aldrovandi, Ellen Gould Chadwick, Ellen Rae Cooper, Heidi Schwarzwald & Jaime Martinez. (2013) Transitioning HIV-Infected Youth Into Adult Health Care. Pediatrics 132:1, pages 192-197.
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Mona R Loutfy, Lorraine Sherr, Ulrike Sonnenberg-Schwan, Sharon L Walmsley, Margaret Johnson & Antonella d'Arminio Monforte. (2013) Caring for women living with HIV: gaps in the evidence. Journal of the International AIDS Society 16:1, pages 18509.
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Jennifer Downing, Helena K. Gleeson, Peter E. Clayton, Julian R. E. Davis, Jerry K. Wales & Peter Callery. (2012) Transition in endocrinology: the challenge of maintaining continuity. Clinical Endocrinology 78:1, pages 29-35.
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Cynthia D. FairKristen SullivanRachel DizneyAvra Stackpole. (2012) “It's Like Losing a Part of My Family”: Transition Expectations of Adolescents Living with Perinatally Acquired HIV and Their Guardians. AIDS Patient Care and STDs 26:7, pages 423-429.
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Mary E. Boudreau & Colleen M. Fisher. (2012) Providing Effective Medical and Case Management Services to HIV-Infected Youth Preparing to Transition to Adult Care. Journal of the Association of Nurses in AIDS Care 23:4, pages 318-328.
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Asha Persson & Christy Newman. (2012) When HIV-Positive Children Grow Up. Qualitative Health Research 22:5, pages 656-667.
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Jordan Gilleland, Sandra Amaral, Laura Mee & Ronald Blount. (2012) Getting Ready to Leave: Transition Readiness in Adolescent Kidney Transplant Recipients. Journal of Pediatric Psychology 37:1, pages 85-96.
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James D Katz, Gulnara Mamyrova, Shilpi Agarwal, Olcay Y Jones, Harriet Bollar, Adam M Huber, Lisa G Rider & Patience H White. (2011) Parents' perception of self-advocacy of children with myositis: an anonymous online survey. Pediatric Rheumatology 9:1.
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L. A. Schwartz, L. K. Tuchman, W. L. Hobbie & J. P. Ginsberg. (2011) A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child: Care, Health and Development 37:6, pages 883-895.
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Nadia DowshenLawrence D'Angelo. (2011) Health Care Transition for Youth Living With HIV/AIDS. Pediatrics 128:4, pages 762-771.
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Patricia P. Gilliam, Jonathan M. Ellen, Lori Leonard, Sara Kinsman, Cecilia M. Jevitt & Diane M. Straub. (2011) Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions. Journal of the Association of Nurses in AIDS Care 22:4, pages 283-294.
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Tziona Lugasi, Marie Achille & Moire Stevenson. (2011) Patients' Perspective on Factors That Facilitate Transition From Child-centered to Adult-centered Health Care: A Theory Integrated Metasummary of Quantitative and Qualitative Studies. Journal of Adolescent Health 48:5, pages 429-440.
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L. S. Wiener, B.-A. Kohrt, H. B. Battles & M. Pao. (2009) The HIV Experience: Youth Identified Barriers for Transitioning from Pediatric to Adult Care. Journal of Pediatric Psychology 36:2, pages 141-154.
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Gregory S. Sawicki, Katryne Lukens-Bull, Xiaoping Yin, Nathan Demars, I-Chan Huang, William Livingood, John Reiss & David Wood. (2011) Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ—Transition Readiness Assessment Questionnaire. Journal of Pediatric Psychology 36:2, pages 160-171.
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J. M. Valenzuela, C. L. Buchanan, J. Radcliffe, C. Ambrose, L. A. Hawkins, M. Tanney & B. J. Rudy. (2009) Transition to Adult Services among Behaviorally Infected Adolescents with HIV--A Qualitative Study. Journal of Pediatric Psychology 36:2, pages 134-140.
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Donna Maturo, Alexis Powell, Hanna Major-Wilson, Kenia Sanchez, Joseph P. De Santis & Lawrence B. Friedman. (2011) Development of a Protocol for Transitioning Adolescents With HIV Infection to Adult Care. Journal of Pediatric Health Care 25:1, pages 16-23.
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Grace Wang, Barbara Burns McGrath & Carolyn Watts. (2010) Health Care Transitions Among Youth With Disabilities or Special Health Care Needs: An Ecological Approach. Journal of Pediatric Nursing 25:6, pages 505-550.
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Lisa K. TuchmanLisa A. SchwartzGregory S. Sawicki & Maria T. Britto. (2010) Cystic Fibrosis and Transition to Adult Medical Care. Pediatrics 125:3, pages 566-573.
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P Rapley & PM Davidson. (2010) Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness. Journal of Clinical Nursing 19:3-4, pages 313-323.
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Tomás Campbell, Hannah Beer & Rebecca Wilkins. (2010) The Looking Forward Day: an evaluation of group work with HIV+ young people in London. Clinical Psychology Forum 1:205, pages 26-30.
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