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Topics in Stroke Rehabilitation Volume 20, 2013 - Issue 4: Interdisciplinary Stroke Rehabilitation Research
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Original Articles

Psychosocial Experiences and Needs of Australian Caregivers of People with Stroke: Prognosis Messages, Caregiver Resilience, and Relationships

Yasmeen El MasryDepartment of PsychologyThe University of Sydney, Sydney, Australia
,
Barbara MullanSenior LecturerDepartment of Psychology, The University of Sydney, Australia
&
Maree HackettAssociate Professor Head, Mental Health and Chronic Disease Program, Neurological & Mental Health Division, The George Institute for Global Health, The University of Sydney, Australia
Pages 356-368 | Published online: 05 Jan 2015

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Ayesha Qureshi, Nicola Swain, Daniela Aldabe & Leigh Hale. (2023) Exploring challenges affecting resilience in carers of stroke survivors: a qualitative descriptive study. Disability and Rehabilitation 45:22, pages 3696-3704.
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Jingwen Wu, Min Wang & Hong Yan. (2023) Web-based interventions on the resilience of informal caregivers: a systematic review and meta-analysis. Psychology, Health & Medicine 0:0, pages 1-14.
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Bonnie B. Y. Cheng, Brooke J. Ryan, David A. Copland & Sarah J. Wallace. (2023) Prognostication in post-stroke aphasia: Perspectives of people with aphasia on receiving information about recovery. Neuropsychological Rehabilitation 33:5, pages 871-902.
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Bonnie B. Y. Cheng, Brooke Ryan, David A. Copland & Sarah J. Wallace. (2022) Prognostication in post-stroke aphasia: speech pathologists’ clinical insights on formulating and delivering information about recovery. Disability and Rehabilitation 44:18, pages 5046-5059.
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Laura Condon, Penny Benford, Eirini Kontou, Shirley Thomas & Marion Walker. (2019) The use of carer perspectives and expert consensus to define key components of a biopsychosocial support intervention for stroke carers. Topics in Stroke Rehabilitation 26:6, pages 440-447.
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Franca Butera-Prinzi, Nella Charles & Karen Story. (2016) Holding Resilience in Trust: Working Systemically With Families Following an Acquired Brain Injury. Journal of Social Work in Disability & Rehabilitation 15:3-4, pages 285-304.
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Tamilyn Bakas, Nenette M. Jessup, Susan M. McLennon, Barbara Habermann, Michael T. Weaver & Gwendolyn Morrison. (2016) Tracking patterns of needs during a telephone follow-up programme for family caregivers of persons with stroke. Disability and Rehabilitation 38:18, pages 1780-1790.
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Nadine E Andrew, Monique F Kilkenny, Rebecca Naylor, Tara Purvis & Dominique A Cadilhac. (2015) The relationship between caregiver impacts and the unmet needs of survivors of stroke. Patient Preference and Adherence 9, pages 1065-1073.
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Articles from other publishers (24)

Anna Tsiakiri, Pinelopi Vlotinou, Aikaterini Paschalidou, Christos Konstantinidis, Foteini Christidi, Dimitrios Tsiptsios, Georgia Detsaridou, Alexandra Petridou, Aimilios Gkantzios, Stella Karatzetzou, Konstantinos Tsamakis, Erasmia Giannakou, Maria Emmanouilidou, Konstantinos Vadikolias & Nikolaos Aggelousis. (2023) A Scoping Review on Coping Strategies and Quality of Life of Stroke Caregivers: Often Underestimated Variables in Stroke Recovery Process?. BioMed 3:3, pages 349-368.
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Elton H. Lobo, Anne Frølich, Mohamed Abdelrazek, Lene J. Rasmussen, John Grundy, Patricia M. Livingston, Sheikh Mohammed Shariful Islam & Finn Kensing. (2023) Information, involvement, self-care and support—The needs of caregivers of people with stroke: A grounded theory approach. PLOS ONE 18:1, pages e0281198.
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Anna Garnett, Jenny Ploeg, Maureen Markle-Reid & Patricia H. Strachan. (2022) Formal Health and Social Services That Directly and Indirectly Benefit Stroke Caregivers: A Scoping Review of Access and Use. Canadian Journal of Nursing Research 54:2, pages 211-233.
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Anna Garnett, Jenny Ploeg, Maureen Markle-Reid & Patricia H. Strachan. (2022) Factors impacting the access and use of formal health and social services by caregivers of stroke survivors: an interpretive description study. BMC Health Services Research 22:1.
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Bonnie B. Y. Cheng, Brooke J. Ryan, David A. Copland & Sarah J. Wallace. (2022) Prognostication in Poststroke Aphasia: Perspectives of Significant Others of People With Aphasia on Receiving Information About Recovery. American Journal of Speech-Language Pathology 31:2, pages 896-911.
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Lun Li & Andrew Wister. (2021) Geographic distance and social isolation among family care-givers providing care to older adults in Canada. Ageing and Society, pages 1-26.
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Louisa-Jane Burton, Anne Forster, Judith Johnson, Thomas F. Crocker, Sarah F. Tyson, Faye Wray & David J. Clarke. (2021) Experiences and views of receiving and delivering information about recovery in acquired neurological conditions: a systematic review of qualitative literature. BMJ Open 11:4, pages e045297.
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Elton H. Lobo, Anne Frølich, Finn Kensing, Lene J. Rasmussen, Patricia M. Livingston, John Grundy & Mohamed Abdelrazek. (2020) mHealth applications to support caregiver needs and engagement during stroke recovery: A content review. Research in Nursing & Health 44:1, pages 213-225.
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Yong-Xia Mei, Beilei Lin, Weihong Zhang, Dong-Bin Yang, Shan-Shan Wang, Zhen-Xiang Zhang & Daphne Sze Ki Cheung. (2020) Benefits finding among Chinese family caregivers of stroke survivors: a qualitative descriptive study. BMJ Open 10:10, pages e038344.
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Alexandra MJ Denham, Olivia Wynne, Amanda L Baker, Neil J Spratt & Billie Bonevski. (2019) The unmet needs of carers of stroke survivors: An evaluation of Google search results. Health Informatics Journal 26:2, pages 934-944.
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Michelle R. Caunca, Marialaura Simonetto, Gregory Hartley, Clinton B. Wright & Sara J. Czaja. (2020) Design and Usability Testing of the Stroke Caregiver Support System: A Mobile-Friendly Website to Reduce Stroke Caregiver Burden. Rehabilitation Nursing 45:3, pages 166-177.
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Ann Lin, Ana-Maria Vranceanu, Mary Guanci, Danielle Salgueiro, Jonathan Rosand & Emily L. Zale. (2019) Gender Differences in Longitudinal Associations Between Intimate Care, Resiliency, and Depression Among Informal Caregivers of Patients Surviving the Neuroscience Intensive Care Unit. Neurocritical Care 32:2, pages 512-521.
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Kristina M. Kokorelias, Fiana K.T. Lu, Jennifer R. Santos, Yi Xu, Robin Leung & Jill I. Cameron. (2019) “Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis. Health & Social Care in the Community 28:2, pages 325-340.
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Robyn Maddern & Ian I Kneebone. (2018) Receiving Bad News: A Thematic Analysis of Stroke Survivor Experiences. Journal of Patient Experience 6:4, pages 271-277.
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Judith Redfern, Clare Gordon & Dominique Cadilhac. 2019. Stroke Nursing. Stroke Nursing 323 345 .
Lily Kosminsky, Nidhi Y. Shah & Philip Chang. (2019) Prognosis after Stroke #374. Journal of Palliative Medicine 22:5, pages 593-594.
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Margaret McGrath, Sandra Lever, Annie McCluskey & Emma Power. (2018) How is sexuality after stroke experienced by stroke survivors and partners of stroke survivors? A systematic review of qualitative studies. Clinical Rehabilitation 33:2, pages 293-303.
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Dominika M. Pindus, Ricky Mullis, Lisa Lim, Ian Wellwood, A. Viona Rundell, Noor Azah Abd Aziz & Jonathan Mant. (2018) Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services – A systematic review and meta-ethnography. PLOS ONE 13:2, pages e0192533.
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Lisa Whitehead, Elisabeth Jacob, Amanda Towell, Ma'en Abu-qamar & Amanda Cole-Heath. (2018) The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review. Journal of Clinical Nursing 27:1-2, pages 22-30.
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Yongxia Mei, Beilei Lin, Yingshuang Li, Chunge Ding & Zhenxiang Zhang. (2017) Validity and reliability of Chinese version of Adult Carer Quality of Life questionnaire (AC-QoL) in family caregivers of stroke survivors. PLOS ONE 12:11, pages e0186680.
Crossref
Shilpa Krishnan, Monique R. Pappadis, Susan C. Weller, Marsja Stearnes, Amit Kumar, Kenneth J. Ottenbacher & Timothy A. Reistetter. (2017) Needs of Stroke Survivors as Perceived by Their Caregivers. American Journal of Physical Medicine & Rehabilitation 96:7, pages 487-505.
Crossref
Celia H. Schulz, Kyler M. Godwin, Gayle I. Hersch, Leslie K. Hyde, Jocelyn J. Irabor & Sharon K. Ostwald. (2017) Return to work predictors of stroke survivors and their spousal caregivers. Work 57:1, pages 111-124.
Crossref
Francesca Rosa, Annamaria Bagnasco, Giuseppe Aleo, Sally Kendall & Loredana Sasso. (2017) Resilience as a concept for understanding family caregiving of adults with Chronic Obstructive Pulmonary Disease (COPD): an integrative review. Nursing Open 4:2, pages 61-75.
Crossref
Mary W. Hildebrand. 2016. Stroke Rehabilitation. Stroke Rehabilitation 309 327 .

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