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Review

Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis

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Pages 117-124 | Published online: 21 Oct 2016

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (4)

Joshua M. Nadeau & Sim Yin Tan. (2023) Considerations for intensive treatment programs among youth with medical and behavioral health concerns. Children's Health Care 52:1, pages 1-6.
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Courtney Lynn, Emma Lyons & Emily Muther. (2023) Delivery of cystic fibrosis psychosocial care across developmental stages. Children's Health Care 52:1, pages 70-90.
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Zumi Mehta, Khalid M. Kamal, Richard Miller, Jordan R. Covvey & Vincent Giannetti. (2021) Adherence to cystic fibrosis transmembrane conductance regulator (CFTR) modulators: analysis of a national specialty pharmacy database. Journal of Drug Assessment 10:1, pages 62-67.
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Mallory Schneider, Jessica Simpson & Kimberly Zlomke. (2021) A comparison study: caregiver functioning and family resilience among families of children with cystic fibrosis, asthma, and healthy controls. Children's Health Care 50:2, pages 142-158.
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Articles from other publishers (34)

Maximilian Kurscheidt, Kirsten Schaffer, Patrick Slevin, Maximilian Westers, Yasmin Hollenbenders & Wendelin Schramm. (2022) Human-centered Design for a Chronic Disease Management System: An Explorative Case for Cystic Fibrosis. Human-centered Design for a Chronic Disease Management System: An Explorative Case for Cystic Fibrosis.
Stephanie Thee, Mirjam Stahl, Rainald Fischer, Sivagurunathan Sutharsan, Manfred Ballmann, Axel Müller, Daniel Lorenz, Dominika Urbanski-Rini, Franziska Püschner, Volker Eric Amelung, Carola Fuchs & Marcus Alexander Mall. (2021) A multi-centre, randomized, controlled trial on coaching and telemonitoring in patients with cystic fibrosis: conneCT CF. BMC Pulmonary Medicine 21:1.
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Book Sadprasid, Ethan Eddy, Aaron Tabor, Erik Scheme & Scott Bateman. (2021) Percussion Hero: A Chest Physical Therapy Game for People with Cystic Fibrosis and their Caregivers. Percussion Hero: A Chest Physical Therapy Game for People with Cystic Fibrosis and their Caregivers.
Ryan C Perkins, Rachel Gross, Kayla Regan, Lara Bishay & Gregory S Sawicki. (2021) Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study. JMIR Pediatrics and Parenting 4:3, pages e25014.
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Jayne Rogers, Mary P. Reed, Kevin Blaine & Haylee Manning. (2021) Children with medical complexity: A concept analysis. Nursing Forum 56:3, pages 676-683.
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Ryan C. Perkins, Mahek Shah & Gregory S. Sawicki. (2021) An evaluation of healthcare utilization and clinical charges in children and adults with cystic fibrosis. Pediatric Pulmonology 56:5, pages 928-938.
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Afsoon Sepahzad, Deborah J. Morris-Rosendahl & Jane C. Davies. (2021) Cystic Fibrosis Lung Disease Modifiers and Their Relevance in the New Era of Precision Medicine. Genes 12:4, pages 562.
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Ryan Jaques, Arslan Shakeel & Cameron Hoyle. (2020) Novel therapeutic approaches for the management of cystic fibrosis. Multidisciplinary Respiratory Medicine 15.
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Cyd K. Eaton, Sara Beachy, Katherine A. McLean, Christina J. Nicolais, Ruth Bernstein, Estefany Sáez-Clarke, Alexandra L. Quittner & Kristin A. Riekert. (2020) Misunderstandings, misperceptions, and missed opportunities: Perspectives on adherence barriers from people with CF, caregivers, and CF team members. Patient Education and Counseling 103:8, pages 1587-1594.
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Annalisa Fogazzi, Fabianna Timelli, Annalisa Vezzoli, Valentina Tradati & Rita Padoan. 2020. Cystic Fibrosis - Heterogeneity and Personalized Treatment. Cystic Fibrosis - Heterogeneity and Personalized Treatment.
Mandy Jones, Fiona Moffatt, Alex Harvey & Jennifer M Ryan. (2020) Interventions for improving adherence to airway clearance treatment and exercise in people with cystic fibrosis. Cochrane Database of Systematic Reviews.
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L. Cave & L. J. Milnes. (2019) The lived experience of adults with cystic fibrosis: what they would tell their younger selves about the gut. Journal of Human Nutrition and Dietetics 33:2, pages 151-158.
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Emma Dixon, Michele Puckey, Nicola Collins, Gemma Marsh & Rishi Pabary. (2020) Striving for perfection, accepting the reality: A reflection on adherence to airway clearance and inhalation therapy for paediatric patients with chronic suppurative lung disease. Paediatric Respiratory Reviews 34, pages 46-52.
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Laura Cooley, Janella Hudson, Eileen Potter, Katherine F. Raymond, Cynthia George & Anna M. Georgiopoulos. (2020) Clinical communication preferences in cystic fibrosis and strategies to optimize care. Pediatric Pulmonology 55:4, pages 948-958.
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Rosie Martin, Madelynne Arden, Jenny Porritt, Martin Wildman & Felix Naughton. (2020) Investigating the Temporal Relationships between Symptoms and Nebuliser Adherence in People with Cystic Fibrosis: A Series of N-of-1 Observations. Healthcare 8:1, pages 22.
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Kristin H. Kroll. 2020. Pediatric Psychology in Clinical Practice. Pediatric Psychology in Clinical Practice 53 82 .
Emily F. Muther, Jennifer L. Butcher & Kristin A. Riekert. 2020. Cystic Fibrosis. Cystic Fibrosis 449 463 .
Wasim Haidari, Katelyn R. Glines, Abigail Cline & Steven R. Feldman. 2020. Treatment Adherence in Dermatology. Treatment Adherence in Dermatology 85 97 .
Isa Rudolf, Katharina Pieper, Helga Nolte, Sibylle Junge, Christian Dopfer, Annette Sauer-Heilborn, Felix C Ringshausen, Burkhard Tümmler, Ute von Jan, Urs-Vito Albrecht, Jan Fuge, Gesine Hansen & Anna-Maria Dittrich. (2019) Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation. JMIR mHealth and uHealth 7:11, pages e12442.
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Jennifer Cronly & Eileen Savage. (2019) Developing agency in the transition to self‐management of cystic fibrosis in young people. Journal of Adolescence 75:1, pages 130-137.
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Peter Dunbar, Matt Hall, James C. Gay, Clarissa Hoover, Jessica L. Markham, Jessica L. Bettenhausen, James M. Perrin, Karen A. Kuhlthau, Morgan Crossman, Brigid Garrity & Jay G. Berry. (2019) Hospital Readmission of Adolescents and Young Adults With Complex Chronic Disease. JAMA Network Open 2:7, pages e197613.
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Andrew S. Kern-Goldberger, Alexandra C. Hill-Ricciuti, Juyan J. Zhou, Adrienne P. Savant, Larissa Rugg, Allen J. Dozor, John Welter, Lisa Saiman & Lynne M. Quittell. (2019) Perceptions of safety monitoring in CF clinical studies and potential impact on future study participation. Journal of Cystic Fibrosis 18:4, pages 530-535.
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Matthias Welsner, Sivagurunathan Sutharsan, Christian Taube, Margarete Olivier, Uwe Mellies & Florian Stehling. (2019) Changes in Clinical Markers During A Short-Term Transfer Program of Adult Cystic Fibrosis Patients from Pediatric to Adult Care. The Open Respiratory Medicine Journal 13:1, pages 11-18.
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Robin S. Everhart, Stephen J. Molitor, Dena Wentz, H. Joel Schmidt & Michael S. Schechter. (2018) Identifying and Integrating Parent Priorities for Psychosocial Support Services in a Pediatric Cystic Fibrosis Clinic. Journal of Clinical Psychology in Medical Settings 26:2, pages 235-241.
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Nick Piper, Marko Bajic, Hiran Selvadurai, Paul Robinson, Yvonne Zurynski & Dominic A. Fitzgerald. (2019) Question 13: Can we predict the need for lung transplantation in children with cystic fibrosis?. Paediatric Respiratory Reviews 30, pages 30-33.
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Matthew F. Lerch & Susan E. Thrane. (2019) Adolescents with chronic illness and the transition to self‐management: A systematic review. Journal of Adolescence 72:1, pages 152-161.
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Meghan Longacre, Stuart Grande, Andreas Hager, Meera Montan, Rikard Palmer Bergquist, Maria Martensson & Greg Kotzbauer. (2018) Clinical Adoption of mHealth Technology to Support Pediatric Cystic Fibrosis Care in Sweden: Qualitative Case Study. JMIR Pediatrics and Parenting 1:2, pages e11080.
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Philippe KleeCatherine BussienMontserrat CastellsagueChristophe CombescureMirjam DirlewangerCeline GirardinJean-Luc MandoLuz PerrenoudCarole SalomonFranck SchneiderValerie M. Schwitzgebel. (2018) An Intervention by a Patient-Designed Do-It-Yourself Mobile Device App Reduces HbA1c in Children and Adolescents with Type 1 Diabetes: A Randomized Double-Crossover Study. Diabetes Technology & Therapeutics 20:12, pages 797-805.
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Mathieu Gruet. (2018) Fatigue in Chronic Respiratory Diseases: Theoretical Framework and Implications For Real-Life Performance and Rehabilitation. Frontiers in Physiology 9.
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Beatriz Herrero-Cortina, Annemarie L. Lee, Brenda O'Neill & Judy Bradley. 2018. Bronchiectasis. Bronchiectasis 331 352 .
Cyd K Eaton, Ana M Gutierrez-Colina, Lauren F Quast, Rochelle Liverman, Jennifer L Lee, Laura L Mee, Bonney Reed-Knight, Grace Cushman, Gloria Chiang, Rene Romero, Chad Mao, Rouba Garro & Ronald L Blount. (2018) Multimethod Assessment of Medication Nonadherence and Barriers in Adolescents and Young Adults With Solid Organ Transplants. Journal of Pediatric Psychology 43:7, pages 789-799.
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Susan S. Li, Don HayesJrJr, Joseph D. Tobias, Wayne J. Morgan & Dmitry Tumin. (2018) Health insurance and use of recommended routine care in adults with cystic fibrosis. The Clinical Respiratory Journal 12:5, pages 1981-1988.
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Aarti Shakkottai, Niko Kaciroti, Lauren Kasmikha & Samya Z. Nasr. (2018) Impact of home spirometry on medication adherence among adolescents with cystic fibrosis. Pediatric Pulmonology 53:4, pages 431-436.
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Vera Fixter, Catherine Butler, Jo Daniels & Samantha Phillips. (2017) A Qualitative Analysis of the Information Needs of Parents of Children with Cystic Fibrosis prior to First Admission. Journal of Pediatric Nursing 34, pages e29-e33.
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