Advanced search
Publication Cover
Clinical Epidemiology Volume 9, 2017 - Issue
Submit an article Journal homepage
97
Views
44
CrossRef citations to date
0
Altmetric
Original Research

Validity and completeness of rheumatoid arthritis diagnoses in the nationwide DANBIO clinical register and the Danish National Patient Registry

Else Helene Ibfelt1 Research Centre for Prevention and Health, Capital Region of Denmark, Rigshospitalet – Glostrup, DenmarkCorrespondence[email protected]
,
Jan Sørensen2 Centre of Health Economics Research, Institute of Public health, University of Southern Denmark, Odense, Denmark;3 Healthcare Outcome Research Centre, Royal College of Surgeons in Ireland, Dublin, Ireland
,
Dorte V Jensen4 DANBiO and Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet – Glostrup, Glostrup;5 Center for Rheumatology and Spine Diseases, Gentofte University Hospital, Hellerup
,
Lene Dreyer5 Center for Rheumatology and Spine Diseases, Gentofte University Hospital, Hellerup;6 The Parker Institute, Frederiksberg and Bispebjerg Hospital, Frederiksberg
,
Berit Schiøttz-Christensen7 Spine Centre of Southern Denmark, Hospital Lillebaelt, Middelfart
,
Pia H Thygesen8 Department of Rheumatology, Odense University Hospital, Odense
,
Ada Colic9 Department of Rheumatology, Sydvestjysk Sygehus, Esbjerg/Grintsted
,
Johnny L Raun10 Department of Internal Medicine and Rheumatology, SLB – Fredericia Hospital, Fredericia
,
Natalia Manilo11 Department of Rheumatology, Frederiksberg Hospital, Copenhagen
,
Anne Rødgaard4 DANBiO and Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet – Glostrup, Glostrup
,
Uta E Poulsen12 Department of Rheumatology, Gigthospital Gråsten, Gråsten
,
Claus Rasmussen13 Clinic of Internal Medicine, Rheumatology, Regionshospital Nordjylland, Hjørring
,
Torben Hansen14 Department of Rheumatology, Holbæk sygehus, Holbæk
,
Babara Unger15 Department of Internal Medicine/Rheumatology, Hospitalsenheden Horsens, Horsens
,
Randi Pelck16 Department of Rheumatology, Zealand University Hospital, Køge
,
Anita Kincses17 Department of Rheumatology, Nordsjællands Hospitaler, Hillerød
,
Henrik Nordin18 Center for Rheumatology and Spine Diseases, Centre of Head and Orthopedics, Rigshospitalet, Copenhagen
,
Tove Lorenzen19 Department of Rheumatology, Silkeborg Regional Hospital and University Clinic, Silkeborg
,
Ali Theibich20 Department of Rheumatology, Slagelse Hospital, Slagelse
,
Inger Marie Jensen Hansen21 Department of Rheumatology and University of Southern Denmark, Svendborg Hospital, Odense
,
Jakob Espesen22 Department of Internal Medicine, Vejle Hospital, Vejle
,
Jolanta Grydehøj23 Department of Rheumatology, Regional Hospital, West Jutland, Herning
,
Mette Holland-Fischer24 Department of Rheumatology, Aalborg University Hospital, Ålborg
,
Anne Gitte Loft25 Department of Rheumatology, Aarhus University Hospital, Aarhus
&
Merete Lund Hetland4 DANBiO and Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet – Glostrup, Glostrup;26 Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark
 show all
Pages 627-632 | Published online: 29 Nov 2017

Citations (44)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (10)

Kristina Laugesen, Jonas Mengel-From, Kaare Christensen, Jørn Olsen, David M Hougaard, Lasse Boding, Anja Olsen, Christian Erikstrup, Merete Lund Hetland, Estrid Høgdall, Alisa D Kjaergaard, Erik Sørensen, Anja Brügmann, Eva Rabing Brix Petersen, Ivan Brandslund, Børge G Nordestgaard, Gorm B Jensen, Nils Skajaa, Frederikke Schønfeldt Troelsen, Cecilia Hvitfeldt Fuglsang, Lise Skovgaard Svingel & Henrik T Sørensen. (2023) A Review of Major Danish Biobanks: Advantages and Possibilities of Health Research in Denmark. Clinical Epidemiology 15, pages 213-239.
Read now
SS Dieperink, B Glintborg, LB Oestergaard, M Nørgaard, T Benfield, F Mehnert, A Petersen, C Torp-Pedersen & ML Hetland. (2023) Risk of Staphylococcus aureus bacteraemia in patients with rheumatoid arthritis and the effect of orthopaedic implants on the risk: a nationwide observational cohort study. Scandinavian Journal of Rheumatology 52:3, pages 250-258.
Read now
J Paltta, H-K Heikkilä, L Pirilä, KK Eklund, J Huhtakangas, P Isomäki, O Kaipiainen-Seppänen, K Kristiansson, AS Havulinna, T Sokka-Isler & A Palomäki. (2023) The validity of rheumatoid arthritis diagnoses in Finnish biobanks. Scandinavian Journal of Rheumatology 52:1, pages 1-9.
Read now
Josephine Galsklint, Søren Kold, Søren Risom Kristensen, Marianne Tang Severinsen & Inger Lise Gade. (2022) Validation of Postsurgical Venous Thromboembolism Diagnoses of Patients Undergoing Lower Limb Orthopedic Surgery in the Danish National Patient Registry. Clinical Epidemiology 14, pages 191-199.
Read now
BG Soussi, RL Cordtz, S Kristensen, CS Bork, JH Christensen, EB Schmidt, C Torp-Pedersen, D Prieto-Alhambra & L Dreyer. (2022) Incidence and prevalence of rheumatoid arthritis in Denmark from 1998 to 2018: a nationwide register-based study. Scandinavian Journal of Rheumatology 51:6, pages 481-489.
Read now
PE Thomas, J Aarestrup, S Jacobsen, BW Jensen & JL Baker. (2022) Birthweight, body size, and growth during childhood and risks of rheumatoid arthritis: a large Danish cohort study. Scandinavian Journal of Rheumatology 51:6, pages 461-469.
Read now
Erhard Trillingsgaard Næss-Schmidt, David Høyrup Christiansen, Rene Drage Østgård, Nils-Bo de Vos Andersen, Jørgen Feldbæk Nielsen & Lene Odgaard. (2020) Incidence of Free of Charge Physiotherapy in a Danish National Cohort of Stroke, Parkinson’s Disease, Multiple Sclerosis and Rheumatoid Arthritis Patients. Clinical Epidemiology 12, pages 23-29.
Read now
HB Tenstad, AC Nilsson, CD Dellgren, HM Lindegaard, KH Rubin & ST Lillevang. (2020) Predictive values of anti-cyclic citrullinated peptide antibodies and rheumatoid factor in relation to serological aspects of the ACR/EULAR 2010 classification criteria for rheumatoid arthritis. Scandinavian Journal of Rheumatology 49:1, pages 18-20.
Read now
LE Bartels, AB Pedersen, NR Kristensen, P Jepsen, H Vilstrup, K Stengaard-Pedersen & JF Dahlerup. (2019) Helicobacter pylori infection is not associated with rheumatoid arthritis. Scandinavian Journal of Rheumatology 48:1, pages 24-31.
Read now
Asta Linauskas, Kim Overvad, Martin Berg Johansen, Kristian Stengaard-Pedersen & Annette de Thurah. (2018) Positive predictive value of first-time rheumatoid arthritis diagnoses and their serological subtypes in the Danish National Patient Registry. Clinical Epidemiology 10, pages 1709-1720.
Read now

Articles from other publishers (34)

Rasmus Westermann, René Lindholm Cordtz, Kirsten Duch, Lene Mellemkjaer, Merete Lund Hetland, Andrea Michelle Burden & Lene Dreyer. (2023) Cancer risk in patients with rheumatoid arthritis treated with janus kinase inhibitors: a nationwide Danish register-based cohort study. Rheumatology.
Crossref
Guoli Sun, Mikkel Faurschou, Naja E Vinding, Adelina Yafasova, Søren L Kristensen, Ole Ahlehoff, Morten Schou, Emil L Fosbøl, Lars Køber & Jawad H Butt. (2023) Mortality in heart failure with and without autoimmune disease. European Journal of Preventive Cardiology.
Crossref
Benedicte Delcoigne, Tine Iskov Kopp, Elizabeth V Arkema, Karin Hellgren, Sella Aarrestad Provan, Heikki Relas, Kalle Aaltonen, Nina Trokovic, Bjorn Gudbjornsson, Gerdur Grondal, Eirik Klami Kristianslund, Jesper Lindhardsen, Lene Dreyer & Johan Askling. (2023) Exposure to specific tumour necrosis factor inhibitors and risk of demyelinating and inflammatory neuropathy in cohorts of patients with inflammatory arthritis: a collaborative observational study across five Nordic rheumatology registers. RMD Open 9:1, pages e002924.
Crossref
Annette de Thurah, Henry Jensen, Thomas Maribo, Martin B Jensen, Annelli Sandbæk, Ellen-Margrethe Hauge & Linda Aa Rasmussen. (2023) Use of primary health care and radiological imaging preceding a diagnosis of rheumatoid arthritis: a nationwide cohort study in Denmark. Rheumatology 62:2, pages 555-564.
Crossref
René Cordtz, Salome Kristensen, Rasmus Westermann, Kirsten Duch, Fiona Pearce, Jesper Lindhardsen, Christian Torp-Pedersen, Mikkel P Andersen & Lene Dreyer. (2023) COVID-19 infection and hospitalization risk according to vaccination status and DMARD treatment in patients with rheumatoid arthritis. Rheumatology 62:1, pages 77-88.
Crossref
Sabine Sparre Dieperink, Frank Mehnert, Mette Nørgaard, Louise Bruun Oestergaard, Thomas Benfield, Andreas Petersen, Christian Torp-Pedersen, Bente Glintborg & Merete Lund Hetland. (2022) Antirheumatic treatment, disease activity and risk of Staphylococcus aureus bacteraemia in rheumatoid arthritis: a nationwide nested case–control study . RMD Open 8:2, pages e002636.
Crossref
Bénédicte Delcoigne, Sella Aarrestad Provan, Hilde Berner Hammer, Daniela Di Giuseppe, Thomas Frisell, Bente Glintborg, Gerdur Grondal, Bjorn Gudbjornsson, Merete Lund Hetland, Brigitte Michelsen, Dan Nordström, Heikki Relas & Johan Askling. (2022) Do patient-reported measures of disease activity in rheumatoid arthritis vary between countries? Results from a Nordic collaboration. Rheumatology 61:11, pages 4286-4296.
Crossref
Hafsah Nabi, Oliver Hendricks, Dorte Vendelbo Jensen, Anne Gitte Loft, Jens Kristian Pedersen, Søren Andreas Just, Kamilla Danebod, Heidi Lausten Munk, Salome Kristensen, Natalia Manilo, Ada Colic, Asta Linauskas, Pia Høger Thygesen, Louise Brot Christensen, Maren Høgberget Kalisz, Niels Lomborg, Stavros Chrysidis, Johnny Lillelund Raun, Marlene Andersen, Frank Mehnert, Niels Steen Krogh, Merete Lund Hetland & Bente Glintborg. (2022) Infliximab biosimilar-to-biosimilar switching in patients with inflammatory rheumatic disease: clinical outcomes in real-world patients from the DANBIO registry. RMD Open 8:2, pages e002560.
Crossref
Karin Hellgren, Anne Emilie Secher, Bente Glintborg, Ane Lilleøre Rom, Bjorn Gudbjornsson, Brigitte Michelsen, Fredrik Granath & Merete Lund Hetland. (2022) Pregnancy outcomes in relation to disease activity and anti-rheumatic treatment strategies in women with rheumatoid arthritis: a matched cohort study from Sweden and Denmark. Rheumatology 61:9, pages 3711-3722.
Crossref
Shahab Abtahi, René Cordtz, Lene Dreyer, Johanna H M Driessen, Annelies Boonen & Andrea M Burden. (2022) Biological Disease-Modifying Antirheumatic Drugs and Osteoporotic Fracture Risk in Patients with Rheumatoid Arthritis: A Danish Cohort Study. The American Journal of Medicine 135:7, pages 879-888.e3.
Crossref
Lene Terslev, Cecilie Heegaard Brahe, Mikkel Østergaard, Viktoria Fana, Mads Ammitzbøll-Danielsen, Torsten Møller, Simon Krabbe, Merete Lund Hetland & Uffe Møller Døhn. (2021) Using a DAS28-CRP-steered treat-to-target strategy does not eliminate subclinical inflammation as assessed by ultrasonography in rheumatoid arthritis patients in longstanding clinical remission. Arthritis Research & Therapy 23:1.
Crossref
Brian Bridal Løgstrup, Torkell Ellingsen, Alma B Pedersen, Bianca Darvalics, Kevin K W Olesen, Hans Erik Bøtker & Michael Maeng. (2021) Comment on: Cardiovascular risk and mortality in rheumatoid arthritis compared with diabetes mellitus and the general population: reply. Rheumatology 60:11, pages e419-e420.
Crossref
Jose Manuel Sánchez-Maldonado, Rafael Cáliz, Miguel Ángel López-Nevot, Antonio José Cabrera-Serrano, Ana Moñiz-Díez, Helena Canhão, Rob Ter Horst, Luca Quartuccio, Signe B. Sorensen, Bente Glintborg, Merete L. Hetland, Ileana Filipescu, Eva Pérez-Pampin, Pablo Conesa-Zamora, Jerzy Swierkot, Alfons A. den Broeder, Salvatore De Vita, Eva Rabing Brix Petersen, Yang Li, Miguel A. Ferrer, Alejandro Escudero, Mihai G. Netea, Marieke J. H. Coenen, Vibeke Andersen, João E. Fonseca, Manuel Jurado, Katarzyna Bogunia-Kubik, Eduardo Collantes & Juan Sainz. (2021) Validation of GWAS-Identified Variants for Anti-TNF Drug Response in Rheumatoid Arthritis: A Meta-Analysis of Two Large Cohorts. Frontiers in Immunology 12.
Crossref
Charlotte Hyldgaard, Elisabeth Bendstrup, Alma Becic Pedersen, Lars Pedersen & Torkell Ellingsen. (2021) Interstitial Lung Disease in Connective Tissue Diseases: Survival Patterns in a Population-Based Cohort. Journal of Clinical Medicine 10:21, pages 4830.
Crossref
René Cordtz, Jesper Lindhardsen, Bolette G Soussi, Jonathan Vela, Line Uhrenholt, Rasmus Westermann, Salome Kristensen, Henrik Nielsen, Christian Torp-Pedersen & Lene Dreyer. (2021) Incidence and severeness of COVID-19 hospitalization in patients with inflammatory rheumatic disease: a nationwide cohort study from Denmark. Rheumatology 60:SI, pages SI59-SI67.
Crossref
Hanan Amadid, Pernille F. Rønn, Maria Bekker‐Nielsen Dunbar, Jakob S. Knudsen, Bendix Carstensen, Frederik Persson & Marit E. Jørgensen. (2021) A large remaining potential in lipid‐lowering drug treatment in the type 2 diabetes population: A Danish nationwide cohort study. Diabetes, Obesity and Metabolism 23:10, pages 2354-2363.
Crossref
Signe Hjuler Boudigaard, Vivi Schlünssen, Jesper Medom Vestergaard, Klaus Søndergaard, Kjell Torén, Susan Peters, Hans Kromhout & Henrik A Kolstad. (2021) Occupational exposure to respirable crystalline silica and risk of autoimmune rheumatic diseases: a nationwide cohort study. International Journal of Epidemiology 50:4, pages 1213-1226.
Crossref
Karin Hellgren, Christine Ballegaard, Bénédicte Delcoigne, René Cordtz, Dan Nordström, Kalle Aaltonen, Bjorn Gudbjornsson, Thorvardur Jon Love, Sella Aarrestad Provan, Joe Sexton, Kristian Zobbe, Lars Erik Kristensen, Johan Askling & Lene Dreyer. (2021) Risk of solid cancers overall and by subtypes in patients with psoriatic arthritis treated with TNF inhibitors – a Nordic cohort study. Rheumatology 60:8, pages 3656-3668.
Crossref
Signe S. Knudsen, Julia F. Simard, Jakob Christensen, Thomas M. Laursen, Bent W. Deleuran & Bodil H. Bech. (2021) Association of Rheumatoid Arthritis in Pregnancy With School Performance of Offspring: A Danish Nationwide Register‐Based Study. Arthritis Care & Research 73:7, pages 975-982.
Crossref
Hafsah Nabi, Stylianos Georgiadis, Anne Gitte Loft, Oliver Hendricks, Marlene Andersen, Stavros Chrysidis, Ada Colic, Kamilla Danebod, Mohamad Redha Hussein, Maren Høgberget Kalisz, Salome Kristensen, Niels Lomborg, Natalia Manilo, Heidi Lausten Munk, Jens Kristian Pedersen, Johnny Lillelund Raun, Frank Mehnert, Niels Steen Krogh, Merete Lund Hetland & Bente Glintborg. (2021) Comparative effectiveness of two adalimumab biosimilars in 1318 real-world patients with inflammatory rheumatic disease mandated to switch from originator adalimumab: nationwide observational study emulating a randomised clinical trial. Annals of the Rheumatic Diseases, pages annrheumdis-2021-219951.
Crossref
Else Helene Ibfelt, Rikke Kart Jacobsen, Tine Iskov Kopp, René Lindholm Cordtz, Anna Svarre Jakobsen, Niels Seersholm, Saher Burhan Shaker & Lene Dreyer. (2021) Methotrexate and risk of interstitial lung disease and respiratory failure in rheumatoid arthritis: a nationwide population-based study. Rheumatology 60:1, pages 346-352.
Crossref
Brian Bridal Løgstrup, Kevin Kris Warnakula Olesen, Dzenan Masic, Christine Gyldenkerne, Pernille Gro Thrane, Torkell Ellingsen, Hans Erik Bøtker & Michael Maeng. (2020) Impact of rheumatoid arthritis on major cardiovascular events in patients with and without coronary artery disease. Annals of the Rheumatic Diseases 79:9, pages 1182-1188.
Crossref
Adam F. Langhoff, Malene Landbo Børresen, Malgorzata P. Wason, Mikael Andersson, Dorthe L. Jeppesen, Ida M. Schmidt & Dina Cortes. (2020) National data with high validity and completeness showed that only 0.04% of Danish children had been registered with diagnosed hypertension. Acta Paediatrica 109:7, pages 1458-1464.
Crossref
Tine Iskov Kopp, Bénédicte Delcoigne, Elizabeth V Arkema, Rikke Kart Jacobsen, Melinda Magyari, Else Helene Ibfelt, Henning Locht, Finn Sellebjerg, Rene Lindholm Cordtz, Dorte V Jensen, Johan Askling & Lene Dreyer. (2020) Risk of neuroinflammatory events in arthritis patients treated with tumour necrosis factor alpha inhibitors: a collaborative population-based cohort study from Denmark and Sweden. Annals of the Rheumatic Diseases 79:5, pages 566-572.
Crossref
Akbar K Waljee, Peter D R Higgins, Camilla B Jensen, Marie Villumsen, Shirley A Cohen-Mekelburg, Beth I Wallace, Jeffrey A Berinstein, Kristine H Allin & Tine Jess. (2020) Anti-tumour necrosis factor-α therapy and recurrent or new primary cancers in patients with inflammatory bowel disease, rheumatoid arthritis, or psoriasis and previous cancer in Denmark: a nationwide, population-based cohort study. The Lancet Gastroenterology & Hepatology 5:3, pages 276-284.
Crossref
Signe Hjuler Boudigaard, Zara Ann Stokholm, Jesper Medom Vestergaard, Mette Skovgaard Mohr, Klaus Søndergaard, Kjell Torén, Vivi Schlünssen & Henrik A Kolstad. (2020) A follow-up study of occupational styrene exposure and risk of autoimmune rheumatic diseases. Occupational and Environmental Medicine 77:2, pages 64-69.
Crossref
René Cordtz, Anders Odgaard, Lars E. Kristensen, Søren Overgaard & Lene Dreyer. (2020) Risk of medical complications following total hip or knee arthroplasty in patients with rheumatoid arthritis: A register-based cohort study from Denmark. Seminars in Arthritis and Rheumatism 50:1, pages 30-35.
Crossref
René Cordtz, Samuel Hawley, Daniel Prieto‐Alhambra, Pil Højgaard, Kristian Zobbe, Lars Erik Kristensen, Søren Overgaard, Anders Odgaard, Bolette Gylden Soussi & Lene Dreyer. (2020) Reduction in Upper Limb Joint Surgery Among Rheumatoid Arthritis Patients: An Interrupted Time‐Series Analysis Using Danish Health Care Registers. Arthritis Care & Research 72:2, pages 274-282.
Crossref
Sabine Sparre Dieperink, Bente Glintborg, Louise Bruun Oestergaard, Mette Nørgaard, Thomas Benfield, Frank Mehnert, Andreas Petersen & Merete Lund Hetland. (2019) Risk factors for Staphylococcus aureus bacteremia in patients with rheumatoid arthritis and incidence compared with the general population: protocol for a Danish nationwide observational cohort study . BMJ Open 9:9, pages e030999.
Crossref
Christian M Madsen, Anette Varbo & Børge G Nordestgaard. (2019) Low HDL Cholesterol and High Risk of Autoimmune Disease: Two Population-Based Cohort Studies Including 117341 Individuals. Clinical Chemistry 65:5, pages 644-652.
Crossref
Nathalie Fogh Rasmussen, Katrine Hass Rubin, Maria Stougaard, Anne Tjønneland, Egon Stenager, Merete Lund Hetland, Bente Glintborg, Anette Bygum & Vibeke Andersen. (2019) Impact of red meat, processed meat and fibre intake on risk of late-onset chronic inflammatory diseases: prospective cohort study on lifestyle factors using the Danish ‘Diet, Cancer and Health’ cohort (PROCID-DCH): protocol . BMJ Open 9:3, pages e024555.
Crossref
Jacob Sode, Steffen Bank, Ulla Vogel, Paal Skytt Andersen, Signe Bek Sørensen, Anders Bo Bojesen, Malene Rohr Andersen, Ivan Brandslund, Ram Benny Dessau, Hans Jürgen Hoffmann, Bente Glintborg, Merete Lund Hetland, Henning Locht, Niels Henrik Heegaard & Vibeke Andersen. (2018) Genetically determined high activities of the TNF-alpha, IL23/IL17, and NFkB pathways were associated with increased risk of ankylosing spondylitis. BMC Medical Genetics 19:1.
Crossref
Bente Glintborg, Jan Sørensen & Merete Lund Hetland. (2018) Does a mandatory non-medical switch from originator to biosimilar infliximab lead to increased use of outpatient healthcare resources? A register-based study in patients with inflammatory arthritis. RMD Open 4:2, pages e000710.
Crossref
Charlotte Hyldgaard, Elisabeth Bendstrup, Alma Becic Pedersen, Sinna Pilgaard Ulrichsen, Anders Løkke, Ole Hilberg & Torkell Ellingsen. (2018) Increased mortality among patients with rheumatoid arthritis and COPD: A population-based study. Respiratory Medicine 140, pages 101-107.
Crossref

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.