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Review

Involvement of informal caregivers in supporting patients with COPD: a review of intervention studies

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Pages 1587-1596 | Published online: 14 Jul 2016

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (7)

Sara Fernández-García, Cristina Represas-Represas, Alberto Ruano-Raviña, Alberto Fernández-García, Almudena González-Montaos, Ana Priegue-Carrera, Mónica Pérez-Ríos & Alberto Fernández-Villar. (2021) Sociodemographic and Clinical Variables Related to the Overburden of the Informal Caregivers of Patients Hospitalized for Chronic Obstructive Pulmonary Disease Exacerbations. International Journal of Chronic Obstructive Pulmonary Disease 16, pages 1119-1126.
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Elin Blanck, Andreas Fors, Lilas Ali, Margareta Brännström & Inger Ekman. (2021) Informal carers in Sweden – striving for partnership. International Journal of Qualitative Studies on Health and Well-being 16:1.
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Jonina Sigurgeirsdottir, Sigridur Halldorsdottir, Ragnheidur Harpa Arnardottir, Gunnar Gudmundsson & Eythor Hreinn Bjornsson. (2020) Frustrated Caring: Family Members’ Experience of Motivating COPD Patients Towards Self-Management. International Journal of Chronic Obstructive Pulmonary Disease 15, pages 2953-2965.
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Anna Giardini, Marina Maffoni, Przemyslaw Kardas & Elisio Costa. (2018) A cornerstone of healthy aging: do we need to rethink the concept of adherence in the elderly?. Patient Preference and Adherence 12, pages 1003-1005.
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Valeria Gatti, Paolo Banfi, Stefano Centanni, Salvatore D’Antonio, Saffi Giustini, Alessio Piraino, Marco Zibellini & Maria Giulia Marini. (2018) Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives. International Journal of Chronic Obstructive Pulmonary Disease 13, pages 3095-3105.
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Sarah Houben-Wilke, Ingrid ML. Augustin, Birgit BREF. Wouters, Rosita AH. Stevens, Daisy JA. Janssen, Martijn A. Spruit, Lowie EGW. Vanfleteren, Frits ME. Franssen & Emiel FM. Wouters. (2017) The patient with a complex chronic respiratory disease: a specialist of his own life?. Expert Review of Respiratory Medicine 11:12, pages 919-924.
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Marie T Williams, Tanja W Effing, Catherine Paquet, Carole A Gibbs, Hayley Lewthwaite, Lok Sze Katrina Li, Anna C Phillips & Kylie N Johnston. (2017) Counseling for health behavior change in people with COPD: systematic review. International Journal of Chronic Obstructive Pulmonary Disease 12, pages 2165-2178.
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Articles from other publishers (25)

Maria Matarese, Karen S. Lyons, Michela Piredda & Maria Grazia De Marinis. (2022) Disease‐related knowledge in people with chronic obstructive pulmonary disease and their informal caregivers: A multilevel modelling analysis. Journal of Clinical Nursing 32:13-14, pages 3543-3556.
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Karin B. Dieperink, Jens-Jakob K. Møller, Tina B. Mikkelsen, Nina Konstantin Nissen, Karen La Cour & Nina Rottmann. (2023) The Danish landscape of providing support for caregivers of people with potentially life-threatening disease: A cross-sectional study among representatives of health services in Danish municipalities and hospitals. Scandinavian Journal of Public Health, pages 140349482311594.
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Maria Matarese, Roberta Pendoni, Davide Ausili, Ercole Vellone & Maddalena De Maria. (2022) Validity and Reliability of Caregiver Contribution to Self-Care of Chronic Obstructive Pulmonary Disease Inventory and Caregiver Self-Efficacy in Contributing to Self-Care Scale. Evaluation & the Health Professions, pages 016327872211347.
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Jean-Marie Grosbois, Sarah Gephine, Maeva Kyheng, Olivier Le Rouzic & Cécile Chenivesse. (2022) Improving the wellbeing of caregivers of patients with COPD using a home-based pulmonary rehabilitation programme. ERJ Open Research 8:4, pages 00255-2022.
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Roya Ghasemzadeh, Seyed Jalal Younesi, Bahman Bahmani, Farahnaz Mohammadi-Shahboulaghi, Mahmood Dehghani, Mohammad Saeed Khanjani & Asghar Dadkhah. (2022) Self-perception from the Viewpoints of the Informal Caregivers of Individuals with Traumatic Spinal Cord Injury: A Qualitative Study. Iranian Journal of Psychiatry and Behavioral Sciences 16:3.
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Maddalena De Maria, Davide Ausili, Silvia Lorini, Ercole Vellone, Barbara Riegel & Maria Matarese. (2022) Patient Self-Care and Caregiver Contribution to Patient Self-Care of Chronic Conditions: What Is Dyadic and What It Is Not. Value in Health 25:7, pages 1165-1173.
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Mohit Bhutani, David B. Price, Tonya A. Winders, Heinrich Worth, Kevin Gruffydd-Jones, Ruth Tal-Singer, Jaime Correia-de-Sousa, Mark T. Dransfield, Rudi Peché, Daiana Stolz & John R. Hurst. (2022) Quality Standard Position Statements for Health System Policy Changes in Diagnosis and Management of COPD: A Global Perspective. Advances in Therapy 39:6, pages 2302-2322.
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Inga Gruß, Gretchen M. McCreary, Ilya Ivlev, Mary Ellen Houlihan, Barbara P. Yawn, Cara Pasquale, William Clark & Richard A. Mularski. (2021) Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.. Journal of Patient-Reported Outcomes 5:1.
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Maddalena De Maria, Federico Ferro, Davide Ausili, Harleah G. Buck, Ercole Vellone & Maria Matarese. (2021) Characteristics of dyadic care types among patients living with multiple chronic conditions and their informal caregivers. Journal of Advanced Nursing 77:12, pages 4768-4781.
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Maria Matarese, Roberta Pendoni, Michela Piredda & Maria Grazia De Marinis. (2021) Caregivers’ experiences of contributing to patients’ self‐care in Chronic Obstructive Pulmonary Disease: A thematic synthesis of qualitative studies. Journal of Advanced Nursing 77:10, pages 4017-4034.
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Mohan R. Tanniru, Nimit Agarwal, Amanda Sokan & Salim Hariri. (2021) An Agile Digital Platform to Support Population Health—A Case Study of a Digital Platform to Support Patients with Delirium Using IoT, NLP, and AI. International Journal of Environmental Research and Public Health 18:11, pages 5686.
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G. Beltramo, A. Cransac, N. Favrolt, M. Spanjaard, M. Zeller, Y. Cottin, M. Boulin & P. Bonniaud. (2021) Impact of the COVID-19 lockdown on patients suffering from idiopathic interstitial pneumonia. Respiratory Medicine and Research 79, pages 100808.
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Alda Marques, Joana Cruz & Dina Brooks. (2021) Interventions to Support Informal Caregivers of People with Chronic Obstructive Pulmonary Disease: A Systematic Literature Review. Respiration 100:12, pages 1230-1242.
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Aviad Tur-Sinai, Andrea Teti, Alexander Rommel, Valentina Hlebec & Giovanni Lamura. (2020) How Many Older Informal Caregivers Are There in Europe? Comparison of Estimates of Their Prevalence from Three European Surveys. International Journal of Environmental Research and Public Health 17:24, pages 9531.
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Semiha Kar & Neriman Zengin. (2019) The relation between self‐efficacy in patients with chronic obstructive pulmonary disease and caregiver burden. Scandinavian Journal of Caring Sciences 34:3, pages 754-761.
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Ercole Vellone, Silvia Lorini, Davide Ausili, Rosaria Alvaro, Stefania Di Mauro, Maria Grazia De Marinis, Maria Matarese & Maddalena De Maria. (2020) Psychometric characteristics of the caregiver contribution to self‐care of chronic illness inventory. Journal of Advanced Nursing 76:9, pages 2434-2445.
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Suhani Patel, William D.-C. Man & Nicola J. Roberts. (2020) Informal carers and peer support in pulmonary rehabilitation: an underutilized resource?. Current Opinion in Supportive & Palliative Care 14:3, pages 213-218.
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Miriam C. Noonan, Jennifer Wingham, Hasnain M. Dalal & Rod S. Taylor. (2019) Involving caregivers in self‐management interventions for patients with heart failure and chronic obstructive pulmonary disease. A systematic review and meta‐analysis. Journal of Advanced Nursing 75:12, pages 3331-3345.
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Susann Strang, Josefin Fährn, Peter Strang, Agneta Ronstad & Louise Danielsson. (2019) Support to informal caregivers of patients with severe chronic obstructive pulmonary disease: a qualitative study of caregivers’ and professionals’ experiences in Swedish hospitals. BMJ Open 9:8, pages e028720.
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Sara Souto-Miranda & Alda Marques. (2018) Triangulated perspectives on outcomes of pulmonary rehabilitation in patients with COPD: a qualitative study to inform a core outcome set. Clinical Rehabilitation 33:4, pages 805-814.
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Morag Farquhar. (2017) Assessing carer needs in chronic obstructive pulmonary disease. Chronic Respiratory Disease 15:1, pages 26-35.
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Morag Farquhar. (2017) Carers and breathlessness. Current Opinion in Supportive & Palliative Care 11:3, pages 165-173.
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Joana Cruz, Alda Marques, Ana Machado, Sachi O'Hoski, Roger Goldstein & Dina Brooks. (2017) Informal caregiving in COPD: A systematic review of instruments and their measurement properties. Respiratory Medicine 128, pages 13-27.
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Morag Farquhar, Clarissa Penfold, John Benson, Roberta Lovick, Ravi Mahadeva, Sophie Howson, Julie Burkin, Sara Booth, David Gilligan, Christopher Todd & Gail Ewing. (2017) Six key topics informal carers of patients with breathlessness in advanced disease want to learn about and why: MRC phase I study to inform an educational intervention. PLOS ONE 12:5, pages e0177081.
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Bonnie J. WakefieldMary Vaughan-Sarrazin. (2017) Home Telehealth and Caregiving Appraisal in Chronic Illness. Telemedicine and e-Health 23:4, pages 282-289.
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