Advanced search
Publication Cover
Journal of Multidisciplinary Healthcare Volume 9, 2016 - Issue
Submit an article Journal homepage
528
Views
35
CrossRef citations to date
0
Altmetric
Review

The role of the multidisciplinary health care team in the management of patients with Marfan syndrome

Yskert von Kodolitsch1 Clinic of Cardiology, University Heart CentreCorrespondence[email protected]
,
Meike Rybczynski1 Clinic of Cardiology, University Heart Centre
,
Marina Vogler2 Marfan Hilfe Deutschland e.V., Zentrumsehstärke
,
Thomas S Mir3 Clinic for Pediatric Cardiology, University Heart Centre
,
Helke Schüler1 Clinic of Cardiology, University Heart Centre
,
Kerstin Kutsche4 Institute of Human Genetics
,
Georg Rosenberger4 Institute of Human Genetics
,
Christian Detter5 Clinic of Cardiovascular Surgery, University Heart Centre
,
Alexander M Bernhardt5 Clinic of Cardiovascular Surgery, University Heart Centre
,
Axel Larena-Avellaneda6 Clinic of Vascular Medicine, University Heart Centre
,
Tilo Kölbel6 Clinic of Vascular Medicine, University Heart Centre
,
E Sebastian Debus6 Clinic of Vascular Medicine, University Heart Centre
,
Malte Schroeder7 Department of Trauma, Hand, and Reconstructive Surgery;8 Department of Orthopedics
,
Stephan J Linke9 Clinic of Ophthalmology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany;10 Smilow Center for Translational Research, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA
,
Bettina Fuisting9 Clinic of Ophthalmology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany
,
Barbara Napp1 Clinic of Cardiology, University Heart Centre
,
Anna Lena Kammal11 Department of Legal Medicine
,
Klaus Püschel11 Department of Legal Medicine
,
Peter Bannas12 Diagnostic and Interventional Radiology Department and Clinic
,
Boris A Hoffmann13 Clinic of Electrophysiology, University Heart Centre
,
Nele Gessler13 Clinic of Electrophysiology, University Heart Centre
,
Eva Vahle-Hinz14 Department of Orthodontics, Center for Dental and Oral Medicine
,
Bärbel Kahl-Nieke14 Department of Orthodontics, Center for Dental and Oral Medicine
,
Götz Thomalla15 Clinic of Neurology
,
Christina Weiler-Normann16 Martin Zeitz Center for Rare Diseases
,
Gunda Ohm17 Strategic Business Development
,
Stefan Neumann18 Business Unit Quality Management, University Medical Center Hamburg-Eppendorf
,
Dieter Benninghoven19 Mühlenberg-Clinic for Rehabilitation, Bad Malente-Gremsmühlen
,
Stefan Blankenberg1 Clinic of Cardiology, University Heart Centre
&
Reed E Pyeritz20 Zentrumsehstärke, Hamburg, Germany
 show all
Pages 587-614 | Published online: 03 Nov 2016

Citations (35)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (1)

Yskert von Kodolitsch, Anthony Demolder, Evaldas Girdauskas, Harald Kaemmerer, Katharina Kornhuber, Laura Muino Mosquera, Shaine Morris, Enid Neptune, Reed Pyeritz, Svend Rand-Hendriksen, Alexander Rahman, Nina Riise, Leema Robert, Ingmar Staufenbiel, Katalin Szöcs, Thy Thy Vanem, Stephan J. Linke, Marina Vogler, Anji Yetman & Julie De Backer. (2019) Features of Marfan syndrome not listed in the Ghent nosology – the dark side of the disease. Expert Review of Cardiovascular Therapy 17:12, pages 883-915.
Read now

Articles from other publishers (34)

Alexander Lenz, Malte Warncke, Felicia Wright, Julius Matthias Weinrich, Bjoern P. Schoennagel, Frank Oliver Henes, Gerhard Adam, Yskert von Kodolitsch, Gerhard Schoen & Peter Bannas. (2023) Longitudinal follow-up by MR angiography reveals progressive dilatation of the distal aorta after aortic root replacement in Marfan syndrome. European Radiology.
Crossref
Yskert von Kodolitsch, Katalin Szöcs, Fachera Ebrahimzada, Guiseppe Panuccio, Fiona Rohlffs, Jens Brickwedel, Christian Detter, E. Sebastian Debus & Tilo Kölbel. (2022) Management hereditärer thorakaler Aortenerkrankungen (HTAD)Management of hereditary thoracic aortic diseases (HTAD). Zeitschrift für Herz-,Thorax- und Gefäßchirurgie 37:1, pages 15-27.
Crossref
Zaimary Meneses, Jenna Durant & Hanadys Ale. (2022) The Unique Experience of a New Multidisciplinary Program for 22q Deletion and Duplication Syndromes in a Community Hospital in Florida: A Reaffirmation That Multidisciplinary Care Is Essential for Best Outcomes in These Patients. Genes 13:11, pages 1949.
Crossref
Yskert von Kodolitsch, Katalin Szöcs, Fachera Ebrahimzada, Guiseppe Panuccio, Fiona Rohlffs, Jens Brickwedel, Christian Detter, E. Sebastian Debus & Tilo Kölbel. (2022) Management hereditärer thorakaler Aortenerkrankungen (HTAD)Management of hereditary thoracic aortic diseases (HTAD). Gefässchirurgie 27:4, pages 302-314.
Crossref
Mohammad Khursheed Alam, Ahmed Ali Alfawzan, Deepti Shrivastava, Kumar Chandan Srivastava, Haytham Jamil Alswairki, Samir Mussallam, Huda Abutayyem & Naseer Ahmed. (2022) Oral Health Status in Marfan Syndrome: A Systematic Review and Meta-Analysis of 353 Cases. International Journal of Environmental Research and Public Health 19:9, pages 5048.
Crossref
Julius Matthias Weinrich, Alexander Lenz, Gerhard Schön, Cyrus Behzadi, Isabel Molwitz, Frank Oliver Henes, Bjoern Philip Schoennagel, Gerhard Adam, Yskert von Kodolitsch & Peter Bannas. (2022) Magnetic resonance angiography derived predictors of progressive dilatation and surgery of the aortic root in Marfan syndrome. PLOS ONE 17:2, pages e0262826.
Crossref
Oscar J. Wambuguh. 2022. Research Anthology on Pediatric and Adolescent Medicine. Research Anthology on Pediatric and Adolescent Medicine 135 177 .
Lindsey R. Swigart, L. Nelson Sanchez-Pinto, Brian E. Nolan, Patrick C. Seed & Bria M. Coates. (2022) A specialized multi-disciplinary care program for children with sepsis and multiple organ dysfunction-associated immune dysregulation. Pediatric Research 91:2, pages 464-469.
Crossref
Yskert von Kodolitsch, Katalin Szöcs, Christian Detter, Petra Gehle, Tilo Kölbel & Eike Sebastian Debus. 2020. Klinische Angiologie. Klinische Angiologie 1 10 .
Harald Kaemmerer, Caroline Andonian, Peter Ewert, Sebastian Freilinger, Nicole Nagdyman, Rhoia Neidenbach, Jörg Schelling & Michael Huntgeburth. (2021) Transition – Nachsorge für Erwachsene mit angeborenen Herzfehlern. DMW - Deutsche Medizinische Wochenschrift 146:18, pages 1192-1199.
Crossref
Maxim Avanesov, Julius Matthias Weinrich, Martin Sinn, Alexander Lenz, Felicia von Düring, Johannes Salamon, Frank-Oliver Henes, Björn Peter Schönnagel, Gerhard Adam, Yskert von Kodolitsch & Peter Bannas. (2021) Intraindividual comparison of 1.5 T and 3 T non-contrast MR angiography for monitoring of aortic root diameters in Marfan patients. International Journal of Cardiology 337, pages 119-126.
Crossref
Helmut Baumgartner, Julie De Backer, Sonya V. Babu-Narayan, Werner Budts, Massimo Chessa, Gerhard-Paul Diller, Bernard Iung, Jolanda Kluin, Irene M. Lang, Folkert Meijboom, Philip Moons, Barbara J.M. Mulder, Erwin Oechslin, Jolien W. Roos-Hesselink, Markus Schwerzmann, Lars Sondergaard, Katja Zeppenfeld, Sabine Ernst, Magalie Ladouceur, Victor Aboyans, David Alexander, Ruxandra Christodorescu, Domenico Corrado, Michele D’Alto, Natasja de Groot, Victoria Delgado, Giovanni Di Salvo, Laura Dos Subira, Andreas Eicken, Donna Fitzsimons, Alexandra A. Frogoudaki, Michael Gatzoulis, Stephane Heymans, Jürgen Hörer, Lucile Houyel, Guillaume Jondeau, Hugo A. Katus, Ulf Landmesser, Basil S. Lewis, Alexander Lyon, Christian E. Mueller, Darren Mylotte, Steffen E. Petersen, Anna Sonia Petronio, Marco Roffi, Raphael Rosenhek, Evgeny Shlyakhto, Iain A. Simpson, Miguel Sousa-Uva, Christian Tobias Torp-Pedersen, Rhian M. Touyz & Alexander Van De Bruaene. (2021) Guía ESC 2020 para el tratamiento de las cardiopatías congénitas del adulto. Revista Española de Cardiología 74:5, pages 436.e1-436.e79.
Crossref
Tomoko Shimizu & Yasuko Shimizu. (2021) Association between subjective well‐being and perception of medical care system among patients with Marfan syndrome: A cross‐sectional study. Molecular Genetics & Genomic Medicine 9:5.
Crossref
Christoph Riedel, Alexander Lenz, Lutz Fischer, Jun Li, Feilix Piecha, Johannes Kluwe, Gerhard Adam & Peter Bannas. (2020) Abdominal Applications of 4D Flow MRI. RöFo - Fortschritte auf dem Gebiet der Röntgenstrahlen und der bildgebenden Verfahren 193:04, pages 388-398.
Crossref
Helmut Baumgartner, Julie De Backer, Sonya V Babu-Narayan, Werner Budts, Massimo Chessa, Gerhard-Paul Diller, Bernard lung, Jolanda Kluin, Irene M Lang, Folkert Meijboom, Philip Moons, Barbara J M Mulder, Erwin Oechslin, Jolien W Roos-Hesselink, Markus Schwerzmann, Lars Sondergaard, Katja Zeppenfeld, Sabine Ernst, Magalie Ladouceur, Victor Aboyans, David Alexander, Ruxandra Christodorescu, Domenico Corrado, Michele D'Alto, Natasja de Groot, Victoria Delgado, Giovanni Di Salvo, Laura Dos Subira, Andreas Eicken, Donna Fitzsimons, Alexandra A Frogoudaki, Michael Gatzoulis, Stephane Heymans, Jürgen Hörer, Lucile Houyel, Guillaume Jondeau, Hugo A Katus, Ulf Landmesser, Basil S Lewis, Alexander Lyon, Christian E Mueller, Darren Mylotte, Steffen E Petersen, Anna Sonia Petronio, Marco Roffi, Raphael Rosenhek, Evgeny Shlyakhto, Iain A Simpson, Miguel Sousa-Uva, Christian Tobias Torp-Pedersen, Rhian M Touyz, Alexander Van De Bruaene, Sonya V Babu-Narayan, Werner Budts, Massimo Chessa, Gerhard-Paul Diller, Bernard Iung, Jolanda Kluin, Irene M Lang, Folkert Meijboom, Philip Moons, Barbara J M Mulder, Erwin Oechslin, Jolien W Roos-Hesselink, Markus Schwerzmann, Lars Sondergaard, Katja Zeppenfeld, Naima Hammoudi, Svetlana V Grigoryan, Johannes Mair, Galib Imanov, Jouri Chesnov, Antoine Bondue, Naser Nabil, Anna Kaneva, Margarita Brida, Ourania Hadjisavva, Jana Rubackova-Popelova, Dorte Guldbrand Nielsen, Maiy Hamdy El Sayed, Raili Ermel, Juha Sinisalo, Jean-Benoit Thambo, Zviad Bakhutashvili, Claudia Walther, George Giannakoulas, Olga Hajnalka Bálint, Christopher J Lockhart, Amiram NirItaly:Adriano Murrone, Artan Ahmeti, Olga Lunegova, Ainars Rudzitis, Zakhia Saliba, Lina Gumbiene, Kerstin Wagner, Maryanne Caruana, Nebojsa Bulatovic, Rachida Amri, Berto J Bouma, Elizabeta Srbinovska-Kostovska, Mette-Elise Estensen, Lidia Tomkiewicz-Pajak, Ioan Mircea Coman, Olga Moiseeva, Marco Zavatta, Anastazija Stojsic-Milosavljevic, Iveta Simkova, Katja Prokselj, Pastora Gallego, Bengt Johansson, Matthias Greutmann, Essia Boughzela, Yuriy Sirenko & Louise Coats. (2021) 2020 ESC Guidelines for the management of adult congenital heart disease. European Heart Journal 42:6, pages 563-645.
Crossref
Mei Yao, Ying Ma, Ruiying Qian, Yu Xia, Changzheng Yuan, Guannan Bai & Shanshan Mao. (2021) Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers: a Chinese cross-sectional study. Orphanet Journal of Rare Diseases 16:1.
Crossref
Trine Bathen, Kirsten Krohg‐Sørensen & Ingeborg B. Lidal. (2020) Multidisciplinary aortopathy clinics: A systematic scoping review of the literature and evaluation of patient experiences from a newly started clinic in Norway. American Journal of Medical Genetics Part A 182:11, pages 2552-2569.
Crossref
Stefan J. Lang, Lutz Joachimsen, Julia Stifter, Michael Reich, Sebastian Küchlin, Daniel Böhringer, Marc Metzger & Wolf Alexander Lagrèze. (2020) Inanspruchnahme der multidisziplinären spezialisierten Fallkonferenz im Freiburger Orbitazentrum. Klinische Monatsblätter für Augenheilkunde 237:08, pages 985-989.
Crossref
Julius Matthias Weinrich, Maxim Avanesov, Alexander Lenz, Enver Tahir, Frank-Oliver Henes, Bjoern Philip Schoennagel, Meike Rybczinsky, Gerhard Adam, Yskert von Kodolitsch & Peter Bannas. (2020) Reliability of non-contrast magnetic resonance angiography-derived aortic diameters in Marfan patients: comparison of inner vs. outer vessel wall measurements. The International Journal of Cardiovascular Imaging 36:8, pages 1533-1542.
Crossref
Ahmad KutkutRasha Abu-EidLina SharabMohanad Al-Sabbagh. (2020) Full-Mouth Rehabilitation With Implant-Prosthesis in Marfan Syndrome Patient: Clinical Report and Literature Review. Journal of Oral Implantology 46:2, pages 115-121.
Crossref
María Olalla, Gladys Naranjo, Silvana López, Maura Muñoz & Favian Bayas-Morejón. (2020) Body Mechanics and Complications in the Nursing Personnel of the Emergency Service of Luis Vernaza General Hospital (Guayaquil-Ecuador). Electronic Journal of General Medicine 17:2, pages em192.
Crossref
Heidi Johansen, Gry Velvin & Ingeborg Lidal. (2019) Adults with Loeys–Dietz syndrome and vascular Ehlers–Danlos syndrome: A cross‐sectional study of health burden perspectives. American Journal of Medical Genetics Part A 182:1, pages 137-145.
Crossref
Alessandro Micarelli, Andrea Viziano, Alessia Lanzillotta, Federica Maria Giorgino, Calogera Pisano, Giovanni Ruvolo & Marco Alessandrini. (2019) Postural control abnormalities related to sleep deprivation in patients with Marfan Syndrome. Journal of Vestibular Research 29:5, pages 261-269.
Crossref
R. Neidenbach, S. Achenbach, C. Andonian, J. Beckmann, S. Biber, S. Dittrich, P. Ewert, S. Freilinger, M. Huntgeburth, N. Nagdyman, R. Oberhoffer, L. Pieper, Y. von Kodolitsch, M. Weyand, U. M. M. Bauer & H. Kaemmerer. (2019) Medizinische Versorgung von Erwachsenen mit angeborenen HerzfehlernMedical care of adults with congenital heart diseases. Herz 44:6, pages 553-572.
Crossref
Anne-Marie Vigneron & Frédéric Lioté. (2019) Le syndrome de Marfan. Revue du Rhumatisme Monographies 86:2, pages 113-119.
Crossref
Oscar J. Wambuguh. 2019. Examining the Causal Relationship Between Genes, Epigenetics, and Human Health. Examining the Causal Relationship Between Genes, Epigenetics, and Human Health 425 467 .
Willian Caetano RODRIGUES, Mário Francisco Real GABRIELLI, Marina Reis OLIVEIRA, Ana Cláudia Gabrielli PIVETA & Marisa Aparecida Cabrini GABRIELLI. (2019) Orthodontic-surgical treatment of a patient with Marfan Syndrome and Obstructive Sleep Apnea Syndrome: a case report with a 9-year follow-up. RGO - Revista Gaúcha de Odontologia 67.
Crossref
Alejandra Vilanova-Sánchez, Carlos Albert Reck, Richard J. Wood, Cristina Garcia Mauriño, Alessandra C. Gasior, Robert E. Dyckes, Katherine McCracken, Laura Weaver, Devin R. Halleran, Karen Diefenbach, Dennis Minzler, Rebecca M. Rentea, Christina B. Ching, Venkata Rama Jayanthi, Molly Fuchs, Daniel Dajusta, Geri D. Hewitt & Marc A. Levitt. (2018) Impact on Patient Care of a Multidisciplinary Center Specializing in Colorectal and Pelvic Reconstruction. Frontiers in Surgery 5.
Crossref
Dido Scheibenberger, Andreas Frings, Johannes Steinberg, Helke Schüler, Vasyl Druchkiv, Toam Katz, Yskert von Kodolitsch & Stephan Linke. (2018) Ocular manifestation in Marfan syndrome: corneal biomechanical properties relate to increased systemic score points. Graefe's Archive for Clinical and Experimental Ophthalmology 256:6, pages 1159-1163.
Crossref
Dieter Benninghoven, Denise Hamann, Yskert von Kodolitsch, Meike Rybczynski, Julia Lechinger, Friedrich Schroeder, Marina Vogler & Eike Hoberg. (2017) Inpatient rehabilitation for adult patients with Marfan syndrome: an observational pilot study. Orphanet Journal of Rare Diseases 12:1.
Crossref
Y. von Kodolitsch, A. Sachweh, L. Conradi, A. M. Bernhardt, E. S. Debus & S. Blankenberg. (2017) Medizinische Strategie zwischen Ökonomie und EthikMedical strategy between economy and ethics. Der Kardiologe 11:5, pages 346-354.
Crossref
Y. von Kodolitsch & K. Kutsche. (2017) Genetic diagnostics of inherited aortic diseasesGenetische Diagnostik von erblichen Aortenerkrankungen. Herz 42:5, pages 459-467.
Crossref
Rita DelloStritto, Steve Branham, Christina Chemmachel, Jayna Patel, Dayna Skolkin, Salima Gilani & Klever Uleanya. (2017) Importance of Early Detection and Cardiovascular Surgical Intervention in Marfan Syndrome. Advanced Emergency Nursing Journal 39:3, pages 217-223.
Crossref
Reed E. Pyeritz. 2017. Reference Module in Biomedical Sciences. Reference Module in Biomedical Sciences.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.