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Original Articles

Caregiver burden in Danish family members of patients with severe brain injury: The chronic phase

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Pages 334-342 | Received 20 Mar 2015, Accepted 26 Oct 2015, Published online: 01 Feb 2016

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Mette Ryssel Bystrup, Lena Aadal, Hanne Pallesen, Kristian Larsen & Anette L. Hindhede. (2023) Who are relatives? Young adults, relatives and professionals’ perceptions of relatives during the rehabilitation of young adults with a severe acquired brain injury. Disability and Rehabilitation 45:10, pages 1655-1666.
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Guillaume Souesme, Manon Voyer, Éric Gagnon, Paule Terreau, Geneviève Fournier-St-Amand, Nadine Lacroix, Kristina Gravel, Marie-Claude Vaillant, Marie-Ève Gagné & Marie-Christine Ouellet. (2022) Barriers and facilitators linked to discharge destination following inpatient rehabilitation after traumatic brain injury in older adults: a qualitative study. Disability and Rehabilitation 44:17, pages 4738-4749.
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Maud Stenberg, Britt-Marie Stålnacke & Britt-Inger Saveman. (2022) Family experiences up to seven years after a severe traumatic brain injury–family interviews. Disability and Rehabilitation 44:4, pages 608-616.
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Laura E. Gonzalez-Lara, Sarah Munce, Jennifer Christian, Adrian M. Owen, Charles Weijer & Fiona Webster. (2021) The multiplicity of caregiving burden: a qualitative analysis of families with prolonged disorders of consciousness. Brain Injury 35:2, pages 200-208.
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Sarah Elizabeth Patricia Munce, Fiona Webster, Jennifer Christian, Laura E. Gonzalez-Lara, Adrian M. Owen & Charles Weijer. (2021) Experiences of family of individuals in a locked in, minimally conscious state, or vegetative state with the health care system. Brain Injury 35:1, pages 8-14.
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Leah Paice, Annalle Aleligay & Martin Checklin. (2020) A systematic review of interventions for adults with social communication impairments due to an acquired brain injury: Significant other reports. International Journal of Speech-Language Pathology 22:5, pages 537-548.
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Laura Bermejo-Toro, Macarena Sánchez-Izquierdo, Esther Calvete & María Angustias Roldán. (2020) Quality of life, psychological well-being, and resilience in caregivers of people with acquired brain injury (ABI). Brain Injury 34:4, pages 480-488.
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Mari S. Rasmussen, Nada Andelic, Tonje H. Nordenmark, Juan C. Arango-Lasprilla & Helene L. Soberg. (2019) The family as a resource for improving patient and family functioning after traumatic brain injury: A descriptive nonrandomized feasibility study of a family-centered intervention. Cogent Medicine 6:1.
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Megan Moore, Taniga Kiatchai, Rajiv C. Ayyagari & Monica S. Vavilala. (2017) Targeted areas for improving health literacy after traumatic brain injury. Brain Injury 31:13-14, pages 1876-1881.
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Articles from other publishers (31)

Cynthia R. O’Donoghue & Cara Meixner. (2023) Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences. Qualitative Health Research.
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Malcolm Ikin Anderson, Bamini Gopinath, Kate Fiona Jones, Peter Morey & Grahame Kenneth Simpson. (2023) Testing the stability of a family resilience model at 2 and 5 years after traumatic brain injury or spinal cord injury: A longitudinal study. Annals of Physical and Rehabilitation Medicine 66:6, pages 101734.
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Robert Gordon, Grahame K. Simpson & Josephine M. Paasila. (2023) Hours and costs of formal and informal care following Traumatic Brain Injury and Spinal Cord Injury sustained through Motor Vehicle Accidents: A Cross-sectional Study. Journal of Rehabilitation Medicine 55, pages jrm5368.
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Julia Lindlöf, Hannele Turunen, Tarja Välimäki, Justiina Huhtakangas, Sofie Verhaeghe & Kirsi Coco. (2023) Empowering Support for Family Members of Brain Injury Patients in the Acute Phase of Hospital Care: A Mixed-Methods Systematic Review. Journal of Family Nursing, pages 107484072311719.
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Pernille Langer Soendergaard, Juan Carlos Arango-Lasprilla, Mia Moth Wolffbrandt, Frederik Lehman Dornonville de la Cour, Fin Biering-Sørensen & Anne Norup. (2023) Investigating the Effectiveness of a Family Intervention after Acquired Brain or Spinal Cord Injury: A Randomized Controlled Trial. Journal of Clinical Medicine 12:9, pages 3214.
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Uwe M. Pommerich, Peter W. Stubbs, Peter Preben Eggertsen, Jesper Fabricius & Jørgen Feldbæk Nielsen. (2023) Regression-based prognostic models for functional independence after postacute brain injury rehabilitation are not transportable: a systematic review. Journal of Clinical Epidemiology 156, pages 53-65.
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Olivia Gosseries, Caroline Schnakers, Audrey Vanhaudenhuyse, Charlotte Martial, Charlène Aubinet, Vanessa Charland-Verville, Aurore Thibaut, Jitka Annen, Didier Ledoux, Steven Laureys & Charlotte Grégoire. (2023) Needs and Quality of Life of Caregivers of Patients with Prolonged Disorders of Consciousness. Brain Sciences 13:2, pages 308.
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Amanda Kjeldgaard, Pernille Langer Soendergaard, Mia Moth Wolffbrandt & Anne Norup. (2023) Predictors of caregiver burden in caregivers of individuals with traumatic or non-traumatic brain injury: A scoping review. NeuroRehabilitation 52:1, pages 9-28.
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Jennifer Lynn Martindale-Adams, Jeffrey Zuber, Robert Burns & Linda O. Nichols. (2023) Caring again: Support for parent caregivers of wounded, ill, and/or injured adult children veterans. NeuroRehabilitation 52:1, pages 93-108.
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Ayesha, Saboor Ahmad, Shazadi Saba, Muhammad Kashif, Danish Ali Khan, Absarul Haque, Muhammad Imran Naseer, Adel M Abuzenadah, Anwar M. Hashem & Shafiq Ur Rehman. (2022) The Relationship between Psychological Disability and Religious Practice and Coping Strategies in Caregivers of Children with Traumatic Brain Injury in Pakistani Population. Healthcare 10:11, pages 2158.
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Ida M. H. Borgen, Solveig L. Hauger, Marit V. Forslund, Ingerid Kleffelgård, Cathrine Brunborg, Nada Andelic, Unni Sveen, Helene L. Søberg, Solrun Sigurdardottir, Cecilie Røe & Marianne Løvstad. (2022) Goal Attainment in an Individually Tailored and Home-Based Intervention in the Chronic Phase after Traumatic Brain Injury. Journal of Clinical Medicine 11:4, pages 958.
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Karin Piil, Stine Laegaard Skovhus, Anders Tolver & Mary Jarden. (2021) Neuro-Oncological Symptoms: A Longitudinal Quantitative Study of Family Function, Perceived Support, and Caregiver Burden. Journal of Family Nursing 28:1, pages 43-56.
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Alejandro Garcia‐Rudolph, Joan Sauri, Alberto Garcia‐Molina, Blanca Cegarra, Eloy Opisso, Josep Maria Tormos, Dietmar Frey, Vince Istvan Madai & Montserrat Bernabeu. (2021) The impact of coronavirus disease 2019 on emotional and behavioral stress of informal family caregivers of individuals with stroke or traumatic brain injury at chronic phase living in a Mediterranean setting. Brain and Behavior 12:1.
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Wenhao Fu, Jiajia Li, Feng Fang, Dan Zhao, Wenting Hao & Shixue Li. (2021) Subjective burdens among informal caregivers of critically ill patients: a cross-sectional study in rural Shandong, China. BMC Palliative Care 20:1.
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Elton H. Lobo, Mohamed Abdelrazek, John Grundy, Finn Kensing, Patricia M. Livingston, Lene J. Rasmussen, Sheikh Mohammed Shariful Islam & Anne Frølich. (2021) Caregiver Engagement in Stroke Care: Opportunities and Challenges in Australia and Denmark. Frontiers in Public Health 9.
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Einat Yehene, Alexander Manevich & Simon Shimshon Rubin. (2021) Caregivers’ Grief in Acquired Non-death Interpersonal Loss (NoDIL): A Process Based Model With Implications for Theory, Research, and Intervention. Frontiers in Psychology 12.
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Julia Choustikova, Hannele Turunen, Hanna Tuominen‐Salo & Kirsi Coco. (2020) Traumatic brain injury patients’ family members’ evaluations of the social support provided by healthcare professionals in acute care hospitals. Journal of Clinical Nursing 29:17-18, pages 3325-3335.
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Kelly Jones, Alice Theadom, Philip Prah, Nicola Starkey, Suzanne Barker-Collo, Shanthi Ameratunga & Valery L. Feigin. (2019) Changes over time in family members of adults with mild traumatic brain injury. Brain Impairment 21:2, pages 154-172.
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Stefania Laratta, Lucia Francesca Lucca, Paolo Tonin & Antonio Cerasa. (2020) Factors Influencing Burden in Spouse-Caregivers of Patients with Chronic-Acquired Brain Injury. BioMed Research International 2020, pages 1-6.
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Lærke Toft Hesselvig, Malene Beck & Charlotte Simony. (2020) Sheltering under a shield of love—A phenomenological–hermeneutic study of relatives' experiences in an acute neurological ward. Nursing Open 7:4, pages 1093-1100.
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Aniko Bartfai & Eirik Vikane. 2020. Management of Severe Traumatic Brain Injury. Management of Severe Traumatic Brain Injury 581 590 .
Pernille Langer Soendergaard, Mia Moth Wolffbrandt, Fin Biering-Sørensen, Malin Nordin, Trine Schow, Juan Carlos Arango-Lasprilla & Anne Norup. (2019) A manual-based family intervention for families living with the consequences of traumatic injury to the brain or spinal cord: a study protocol of a randomized controlled trial. Trials 20:1.
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Rikke Guldager, Karen Willis, Kristian Larsen & Ingrid Poulsen. (2019) Nurses’ contribution to relatives’ involvement in neurorehabilitation: Facilitators and barriers. Nursing Open 6:4, pages 1314-1322.
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Angelle M. Sander, Robin A. Hanks, Phillip A. Ianni, Nicholas R. Boileau, Anna L. Kratz, Elizabeth A. Hahn, David S. Tulsky & Noelle E. Carlozzi. (2019) Sociocultural Factors Influencing Caregiver Appraisals Following Traumatic Brain Injury. Archives of Physical Medicine and Rehabilitation 100:4, pages S58-S64.
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Noelle E. Carlozzi, Michael A. Kallen, Phillip A. Ianni, Angelle M. Sander, Elizabeth A. Hahn, Rael T. Lange, Tracey A. Brickell, Louis M. French, Jennifer A. Miner & Robin Hanks. (2019) The Development of Two New Computer Adaptive Tests To Evaluate Feelings of Loss in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury. Archives of Physical Medicine and Rehabilitation 100:4, pages S31-S42.
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Rikke Guldager, Karen Willis, Kristian Larsen & Ingrid Poulsen. (2018) Relatives’ strategies in subacute brain injury rehabilitation: The warrior, the observer and the hesitant. Journal of Clinical Nursing 28:1-2, pages 289-299.
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Hanna Klingshirn, Rene Mittrach, Kathrin Braitmayer, Ralf Strobl, Andreas Bender, Eva Grill & Martin Müller. (2018) RECAPDOC - a questionnaire for the documentation of rehabilitation care utilization in individuals with disorders of consciousness in long-term care in Germany: development and pretesting. BMC Health Services Research 18:1.
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Véronique de Goumoëns, Laura Marques Rio, Cécile Jaques & Anne-Sylvie Ramelet. (2018) Family-oriented interventions for adults with acquired brain injury and their families. JBI Database of Systematic Reviews and Implementation Reports 16:12, pages 2330-2367.
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Véronique de Goumoëns, Laura Marques Rio & Anne-Sylvie Ramelet. (2018) Family-oriented interventions for adults with acquired brain injury and their families: a scoping review protocol. JBI Database of Systematic Reviews and Implementation Reports 16:3, pages 635-641.
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Unn Sollid Manskow, Oddgeir Friborg, Cecilie Røe, Mary Braine, Elin Damsgard & Audny Anke. (2017) Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study. NeuroRehabilitation 40:2, pages 211-222.
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Gerard A Riley. (2016) The partner’s experience of traumatic brain injury and its recovery. Concussion 1:3, pages CNC18.
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