Caregiver burden in Danish family members of patients with severe brain injury: The chronic phase

References

• Barclay D. Family functioning, psychosocial stress, and goal attainment in brain injury rehabilitation. Journal of Social Work in Disability & Rehabilitation 2013;12:159–175.
   PubMedGoogle Scholar
• Benedictus MR, Spikman JM, van der Naalt J. Cognitive and behavioral impairment in traumatic brain injury related to outcome and return to work. Archives of Physical Medicine and Rehabilitation 2010;91:1436–1441.
   PubMed Web of Science ®Google Scholar
• Draper K, Ponsford J, Schönberger M. Psychosocial and emotional outcomes 10 years following traumatic brain injury. The Journal of Head Trauma Rehabilitation 2007;22:278–287.
   PubMed Web of Science ®Google Scholar
• Chan J, Parmenter T, Stancliffe R. The impact of traumatic brain injury on the mental health outcomes of individuals and their family carers. Advancement of Mental Health 2009;8:155–164.
   Google Scholar
• Bayen E, Pradat-Diehl P, Jourdan C, Ghout I, Bosserelle V, Azerad S, Weiss J-J, Joël M-E, Aegerter P, Azouvi P. Predictors of informal care burden 1 year after a severe traumatic brain injury: results from the Paris-TBI study. The Journal of Head Trauma Rehabilitation 2013;28:408–418.
   PubMed Web of Science ®Google Scholar
• Rivera P, Elliott TR, Berry JW, Grant JS, Oswald K. Predictors of caregiver depression among community-residing families living with traumatic brain injury. NeuroRehabilitation 2007;22:3–8.
   PubMed Web of Science ®Google Scholar
• Sander AM, High WM, Hannay HJ, Sherer M. Predictors of psychological health in caregivers of patients with closed head injury. Brain Injury 1997;11:235–249.
   PubMed Web of Science ®Google Scholar
• Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: a review of the literature. Journal of Clinical Nursing 2005;14:1004–1012.
   PubMed Web of Science ®Google Scholar
• Lehan T, Arango-Lasprilla JC, Jos C. The ties that bind: the relationship between caregiver burden and the neuropsychological functioning of TBI survivors. NeuroRehabilitation 2012;30:87–95.
   PubMed Web of Science ®Google Scholar
• Machamer J, Temkin N, Dikmen S. significant other burden and factors related to it in traumatic brain injury. Journal of Clinical and Experimental Neuropsychology 2002;24:420–433.
   PubMed Web of Science ®Google Scholar
• Manskow US, Sigurdardottir S, Andelic N, Damsgård E, Elmståhl S, Anke A. Factors affecting caregiver burden one year after severe traumatic brain injury: a prospective nationwide multicenter study. Journal of Head Trauma Rehabilitation 2014;28:1–13.
   Google Scholar
• Stevens LF, Arango-Lasprilla JC, Deng X, Schaaf KW, De los Reyes Aragón CJ, Quijano MC, Kreutzer J. Factors associated with depression and burden in Spanish speaking caregivers of individuals with traumatic brain injury. NeuroRehabilitation 2012;31:443–452.
   Google Scholar
• Nabors N, Seacat J, Rosenthal M. Predictors of caregiver burden following traumatic brain injury. Brain Injury 2002;16:1039–1050.
   PubMed Web of Science ®Google Scholar
• Marsh NV, Kersel DA, Havill JH, Sleigh JW. Caregiver burden during the year following severe traumatic brain injury. Journal of Clinical and Experimental Neuropsychology 2002;24:434–447.
   PubMed Web of Science ®Google Scholar
• Boycott N, Yeoman P, Vesey P. Factors associated with strain in carers of people with traumatic brain injury. The Journal of Head Trauma Rehabilitation. 2013;28:106–115.
   PubMed Web of Science ®Google Scholar
• Knight RG, Devereux R, Godfrey HP. Caring for a family member with a traumatic brain injury. Brain Injury 1998;12:467–481.
   Web of Science ®Google Scholar
• Serio DC, Kreutzer JS, Gervasio A. Predicting family needs after brain injury: implications for intervention. Journal of Head Trauma Rehabilitation 1995;10:32–45.
   Web of Science ®Google Scholar
• Florian V, Katz S. The other victims of traumatic brain injury: consequences for family members. Neuropsychology 1991;5:267–279.
   Google Scholar
• Blais MC, Boisvert J-M. Psychological and marital adjustment in couples following a traumatic brain injury (TBI): a critical review. Brain Injury 2005;19:1223–1235.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Gervasio AH, Camplair PS. Primary caregivers’ psychological status and family functioning after traumatic brain injury. Brain Injury 1994;8:197–210.
   PubMed Web of Science ®Google Scholar
• Ennis N, Rosenbloom BN, Canzian S, Topolovec-Vranic J. Depression and anxiety in parent versus spouse caregivers of adult patients with traumatic brain injury: a systematic review. Neuropsychological Rehabilitation 2013;23:1–18.
   PubMed Web of Science ®Google Scholar
• Doser K, Norup A. Family needs in the chronic phase after severe brain injury in Denmark. Brain Injury 2014;28:1230–1237.
   PubMed Web of Science ®Google Scholar
• Norup A, Siert L, Mortensen EL. Coping strategies, emotional distress and quality of life in relatives of patients with severe brain injury in Denmark: one year after injury. Australian Journal of Rehabilitation Counselling 2013;19:142–154.
   Google Scholar
• Norup A, Snipes DJ, Siert L, Mortensen EL, Perrin PB, Arango-Lasprilla JC. Longitudinal trajectories of health related quality of life in danish family members of individuals with severe brain injury. Australian Journal of Rehabilitation Counselling 2013;19:71–83.
   Google Scholar
• Levin HS, O’Donnell VM, Grossman RG. The Galveston Orientation and Amnesia Test: a practical scale to assess cognition after head injury. The Journal of Nervous and Mental Disease 1979;167:675–684.
   PubMed Web of Science ®Google Scholar
• Elmståhl S, Malmberg B, Annerstedt L. Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Archives of Physical Medicine and Rehabilitation. 1996;77(2):177–82.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Marwitz J, West D. Family needs questionnaire, administration and scoring manual. Physical Medicine & Rehabilitation Neuropsychology 1998.
   Google Scholar
• Serio CD, Kreutzer JS, Witol AD. Family needs after traumatic brain injury: a factor analytic study of the Family Needs Questionaire. Brain Injury 1997;11:1–9.
   PubMed Web of Science ®Google Scholar
• Beaton D, Bombardier C, Guillemin F, Ferraz MB. Recommendations for the Cross-Cultural Adaptation of Health Status Measures. 1998. Available online at: http://med.umn.edu/ortho/prod/groups/med/@pub/@med/@ortho/documents/asset/med_asset_360072.pdf, accessed 27 October 2014.
   Google Scholar
• Andrén S, Elmståhl S. The relationship between caregiver burden, caregivers’ perceived health and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing 2008;17:790–99.
   PubMed Web of Science ®Google Scholar
• Livingston MG, Brooks NDN, Bond MR. Patient outcome in the year following severe head injury and relatives’ psychiatric and social functioning. Journal of Neurology, Neurosurgery, and Psychiatry 1985;48:876–881.
   PubMed Web of Science ®Google Scholar
• Reinhard SC, Horwitz A V. Caregiver burden: differentiating the content and consequences of family caregiving. Journal of Marriage and the Family 1995;57:741–750.
   Web of Science ®Google Scholar
• Norup A, Siert L, Mortensen EL. Neuropsychological intervention in the acute phase: a pilot study of emotional wellbeing of relatives of patients with severe brain injury. Journal of Rehabilitation Medicine 2013;19:142–154.
   Google Scholar
• Norup A, Siert L, Mortensen EL. Emotional distress and quality of life in relatives of patients with severe brain injury: the first month after injury. Brain Injury 2010;24:81–88.
   PubMed Web of Science ®Google Scholar
• Turner B, Fleming J, Parry J, Vromans M, Cornwell P, Gordon C, Ownsworth T. Caregivers of adults with traumatic brain injury: the emotional impact of transition from hospital to home. Brain Impairment 2010;11:281–292.
   Web of Science ®Google Scholar
• Kreutzer J, Rapport LJ, Marwitz JH, Harrison-Felix C, Hart T, Glenn M, Hammond F. Caregivers’ well-being after traumatic brain injury: a multicenter prospective investigation. Archives of Physical Medicine and Rehabilitation 2009;90:939–946.
   PubMed Web of Science ®Google Scholar
• Oddy M, Humphrey M, Uttley D. Stresses upon the relatives of head-injured patients. The British Journal of Psychiatry 1978;133:507–513.
   PubMed Web of Science ®Google Scholar
• Pielmaier L, Walder B, Rebetez MML, Maercker A. Post-traumatic stress symptoms in relatives in the first weeks after severe traumatic brain injury. Brain Injury 2011;25:259–265.
   PubMed Web of Science ®Google Scholar
• Gervasio AH, Kreutzer J. Kinship and family members’ psychological distress after traumatic brain injury: a large sample study. Journal of Head Trauma Rehabilitation 1997;12:14–26.
   Web of Science ®Google Scholar
• Perlesz A, Kinsella G, Crowe S. Psychological distress and family satisfaction following traumatic brain injury: injured individuals and their primary, secondary, and tertiary carers. Journal of Head Trauma Rehabilitation 2000;15:909–929.
   PubMed Web of Science ®Google Scholar
• Mauss-Clum N, Ryan M. Brain Injury and the Family. Journal of Neurosurgical Nursing 1981;13:165–169.
   PubMedGoogle Scholar
• Corrigan JD, Harrison-Felix C, Bogner J, Dijkers M, Terrill MS, Whiteneck G. Systematic bias in traumatic brain injury outcome studies because of loss to follow-up. Archives of Physical Medicine and Rehabilitation 2003;84:153–160.
   PubMed Web of Science ®Google Scholar
• Norup A, Welling KL, Qvist J, Siert L, Mortensen EL. Depression, anxiety and quality-of-life among relatives of patients with severe brain injury: the acute phase. Brain Injury 2012;26:1192–1200.
   PubMed Web of Science ®Google Scholar
• National Board of health Denmark. Disease management program for acquired brain injury. Copenhagen: National Board of health Denmark; 2011.
   Google Scholar