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International Review of Psychiatry Volume 25, 2013 - Issue 6: Dementia. GUEST EDITORS: David Ames and Craig W. Ritchie
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Research Article

Dementia in people with intellectual disability: Insights and challenges in epidemiological research with an at-risk population

Elizabeth EvansDepartment of Developmental Disability Neuropsychiatry, School of Psychiatry, University of New South Wales, Sydney, NSW
,
Anjali BhardwajDepartment of Developmental Disability Neuropsychiatry, School of Psychiatry, University of New South Wales, Sydney, NSW
,
Henry BrodatyCentre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, NSW;Dementia Collaborative Research Centre, School of Psychiatry, University of New South Wales, Sydney, NSW;Academic Department for Old Age Psychiatry, Prince of Wales Hospital, Avoca Street, Randwick, New South Wales, Australia
,
Perminder SachdevCentre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, NSW;Neuropsychiatric Institute, Prince of Wales Hospital, Barker Street, Randwick, NSW
,
Brian DraperCentre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, NSW;Academic Department for Old Age Psychiatry, Prince of Wales Hospital, Avoca Street, Randwick, New South Wales, Australia
&
Julian N. TrollorDepartment of Developmental Disability Neuropsychiatry, School of Psychiatry, University of New South Wales, Sydney, NSW;Centre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, NSWCorrespondence[email protected]
Pages 755-763 | Received 11 Nov 2013, Accepted 14 Nov 2013, Published online: 15 Jan 2014

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Maureen B. G. Wissing, Roos Dijkstra, Ina A. van der Wal, Esther S. Grootendorst, Johannes S.M. Hobbelen, Annette A. J. van der Putten, Peter P. De Deyn, Aly Waninge & Alain D. Dekker. (2022) Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities. Journal of Mental Health Research in Intellectual Disabilities 15:4, pages 322-363.
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Maureen B.G. Wissing, Andrea S. Fokkens, Roos Dijkstra, Johannes S.M. Hobbelen, Annette A.J. van der Putten, Peter P. De Deyn, Aly Waninge & Alain D. Dekker. (2022) Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Practice-Based Observations of Symptoms. Journal of Mental Health Research in Intellectual Disabilities 15:4, pages 364-393.
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Articles from other publishers (18)

Andrew P. Allen, Eimear McGlinchey, Marianne Fallon, Philip McCallion & Mary McCarron. (2023) Cognitive reserve and dementia risk management in people with an intellectual disability. International Journal of Geriatric Psychiatry 38:4.
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Samantha M Loi, Monica Cations & Dennis Velakoulis. (2023) Young‐onset dementia diagnosis, management and care: a narrative review. Medical Journal of Australia 218:4, pages 182-189.
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Margaret R. Helton & Jenny T. van der Steen. 2023. Chronic Illness Care. Chronic Illness Care 285 299 .
Karsten Ebbing, Armin von Gunten, Vincent Guinchat, Dan Georgescu, Taree Bersier, Djamel Moad & Henk Verloo. (2022) Barriers Facing Direct Support Professionals When Supporting Older Adults Presenting with Intellectual Disabilities and Unusual Dementia-Related Behavior: A Multi-Site, Multi-Methods Study. Disabilities 2:4, pages 662-680.
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Maureen B. G. Wissing, Aurora M. Ulgiati, Johannes S. M. Hobbelen, Peter P. De Deyn, Aly Waninge & Alain D. Dekker. (2021) The neglected puzzle of dementia in people with severe/profound intellectual disabilities: A systematic literature review of observable symptoms. Journal of Applied Research in Intellectual Disabilities 35:1, pages 24-45.
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Shoumitro Shoumi Deb, André Strydom, Rosalyn Hithersay, Tiziano Gomiero, Luc Pieter De Vreese, Matthew P. Janicki, Nancy S. Jokinen & Kathryn P. Service. 2022. Textbook of Psychiatry for Intellectual Disability and Autism Spectrum Disorder. Textbook of Psychiatry for Intellectual Disability and Autism Spectrum Disorder 719 756 .
Matthew P. Janicki, James A. Hendrix & Philip McCallion. (2022) Examining older adults with neuroatypical conditions for MCI/dementia: Barriers and recommendations of the Neuroatypical Conditions Expert Consultative Panel. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring 14:1.
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Alain D. Dekker, Maureen B. G. Wissing, Aurora M. Ulgiati, Bas Bijl, Gaby Gool, Marieke R. Groen, Esther S. Grootendorst, Ina A. Wal, Johannes S. M. Hobbelen, Peter P. De Deyn & Aly Waninge. (2021) Dementia in people with severe or profound intellectual (and multiple) disabilities: Focus group research into relevance, symptoms and training needs. Journal of Applied Research in Intellectual Disabilities 34:6, pages 1602-1617.
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Elizabeth Jane Evans & Julian Norman Trollor. 2021. Mental Health, Intellectual and Developmental Disabilities and the Ageing Process. Mental Health, Intellectual and Developmental Disabilities and the Ageing Process 189 205 .
Steven MacDonald & S. J. Summers. (2020) Psychosocial interventions for people with intellectual disabilities and dementia: A systematic review. Journal of Applied Research in Intellectual Disabilities 33:5, pages 839-855.
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Fintan Sheerin, Philip McCallion, Eimear McGlinchey, Máire O’Dwyer, Evelyn Reilly & Mary McCarron. 2020. Handbook of Dual Diagnosis. Handbook of Dual Diagnosis 311 330 .
Vee P. Prasher & Hassan Mahmood. 2019. Seminars in the Psychiatry of Intellectual Disability. Seminars in the Psychiatry of Intellectual Disability 136 146 .
Joanna C. Lim, Laurel J. Bessey, Pallavi Joshi & Lisa L. Boyle. 2018. Psychiatric Disorders Late in Life. Psychiatric Disorders Late in Life 253 262 .
Margaret R. Helton & Jenny T. van der Steen. 2018. Chronic Illness Care. Chronic Illness Care 281 296 .
Kate M Chitty, Elizabeth Evans, Jennifer J Torr, Teresa Iacono, Henry Brodaty, Perminder Sachdev & Julian N Trollor. (2015) Central nervous system medication use in older adults with intellectual disability: Results from the successful ageing in intellectual disability study. Australian & New Zealand Journal of Psychiatry 50:4, pages 352-362.
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Simone Reppermund & Julian N. Trollor. (2016) Successful ageing for people with an intellectual disability. Current Opinion in Psychiatry 29:2, pages 149-154.
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Sandra Verena Müller, Bettina Kuske, Uwe Gövert & Christian Wolff. 2016. Lebensqualität im Alter. Lebensqualität im Alter 75 89 .
Martial Van der Linden & Anne-Claude Juillerat. 2014. Penser autrement le vieillissement. Penser autrement le vieillissement 233 256 .

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