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Original Article

“There are too many steps before you get to where you need to be”: Help-seeking by patients with first-episode psychosis

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Pages 384-395 | Published online: 07 Sep 2012

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Read on this site (5)

Sarah V. McIlwaine, M. Ferrari, S. Iyer, A. Malla & J. Shah. (2023) A qualitative study of help-seeking experiences leading up to a specialized service for youth at risk of psychosis. Psychosis 15:2, pages 181-191.
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Patcharapim Takizawa, Pimchanok Hakham, Chanon Sirikul, Wiwat Sarapat, Warith Mongkolnaowarat, Patraporn Kinorn, Piyanut Wanna & Masao Ichikawa. (2020) Characteristics of delayed and timely treatment seekers for first-episode schizophrenia in Thailand. Cogent Psychology 7:1.
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Aubrey M Moe, Ellen B Rubinstein, Colin J Gallagher, David M Weiss, Amanda Stewart & Nicholas JK Breitborde. (2018) Improving access to specialized care for first-episode psychosis: an ecological model. Risk Management and Healthcare Policy 11, pages 127-138.
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Sonya Lipczynska. (2013) RESPECT and Starwards: What are they, and do they impact on safety in acute ward settings?. Journal of Mental Health 22:6, pages 570-574.
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Christopher J. de Montgomery, Alexis E. Cullen, Heidi Taipale, Allan Krasnik, Marie Norredam & Ellenor Mittendorfer-Rutz. (2023) Incidence of non-affective psychotic disorders in refugees and peers growing up in Denmark and Sweden: a registry linkage study. Social Psychiatry and Psychiatric Epidemiology.
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Clare Howie, Mark Shevlin, Ciarán Shannon, Gavin Davidson, Lisa Bunting, Anne Grant, Orla McBride, Claire McCartan, Jamie Murphy, Emma Nolan, Dirk Schubotz & Ciaran Mulholland. (2023) The structure of the Prodromal Questionnaire-16 (PQ-16) in a non-help-seeking youth population: Exploratory and confirmatory factor analyses study. Schizophrenia Research 261, pages 281-286.
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Chiachen Cheng, Shevaun Nadin, Hafsa Bohonis, Mae Katt & Carolyn S. Dewa. (2023) NorthBEAT: exploring the service needs of youth experiencing early psychosis in Northern Ontario. Frontiers in Health Services 3.
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Sara Goldman, Anastasia Saoulidi, Sridevi Kalidindi, Eugenia Kravariti, Fiona Gaughran, Tim W. R. Briggs & William K. Gray. (2023) Comparison of outcomes for patients with and without a serious mental illness presenting to hospital for chronic obstruction pulmonary disease: retrospective observational study using administrative data. BJPsych Open 9:4.
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Oladunni Oluwoye & Bryony Stokes. (2023) The unique pathways to coordinate specialty care for Black families navigating early psychosis: A preliminary report. Schizophrenia Research 253, pages 54-59.
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Joshua C. Wiener, Rebecca Rodrigues, Jennifer N. S. Reid, Suzanne Archie, Richard G. Booth, Chiachen Cheng, Saadia Hameed Jan, Paul Kurdyak, Arlene G. MacDougall, Lena Palaniyappan, Bridget L. Ryan & Kelly K. Anderson. (2022) Patient and Physician Factors Associated with First Diagnosis of Non-affective Psychotic Disorder in Primary Care. Administration and Policy in Mental Health and Mental Health Services Research 50:2, pages 212-224.
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Jacqui Tiller, Tess Maguire & Katherine Newman-Taylor. (2023) Early intervention in psychosis services: A systematic review and narrative synthesis of barriers and facilitators to seeking access. European Psychiatry 66:1.
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Srividya N. Iyer, Megan Pope, Aarati Taksal, Greeshma Mohan, Thara Rangaswamy, Heleen Loohuis, Jai Shah, Ridha Joober, Norbert Schmitz, Howard C. Margolese, Ramachandran Padmavati & Ashok Malla. (2022) Whose responsibility? Part 1 of 2: A scale to assess how stakeholders apportion responsibilities for addressing the needs of persons with mental health problems. International Journal of Mental Health Systems 16:1.
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Gül Dikeç, Öznur Bilaç, Cansın Kardelen, Şermin Yalın Sapmaz & Hasan Kandemir. (2022) Which factors affect internalized stigmatization in adolescents with mental disorders?. Journal of Child and Adolescent Psychiatric Nursing 35:4, pages 362-371.
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Sartika Rajagukguk, Suryani Suryani, Titin Sutini & Fandro Armando Tasijawa. (2022) The Experience of Caregivers with First-Episode Psychosis Children at General Hospital of Dumai, Riau Province. Open Access Macedonian Journal of Medical Sciences 10:G, pages 541-547.
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Fairlie A. Cottrill, Kathy S. Bond, Fiona L. Blee, Claire M. Kelly, Betty A. Kitchener, Anthony F. Jorm & Nicola J. Reavley. (2021) Offering mental health first aid to a person experiencing psychosis: a Delphi study to redevelop the guidelines published in 2008. BMC Psychology 9:1.
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Sherifat Oduola, Tom K. J. Craig & Craig Morgan. (2020) Ethnic variations in duration of untreated psychosis: report from the CRIS-FEP study. Social Psychiatry and Psychiatric Epidemiology 56:6, pages 931-941.
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Nicole Schoer, Rebecca Rodrigues, Jennifer Reid, Bridget L. Ryan, Daniel J. Lizotte, Richard Booth, Arlene G. MacDougall, Paul Kurdyak & Kelly K. Anderson. (2020) Patterns of Primary Care Use Prior to a First Diagnosis of Nonaffective Psychotic Disorder in Ontario, Canada: Modèles d’utilisation des soins de première ligne avant un premier diagnostic de trouble psychotique non affectif en Ontario, Canada. The Canadian Journal of Psychiatry 66:4, pages 406-417.
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Kathleen MacDonald, Manuela Ferrari, Nina Fainman-Adelman & Srividya N. Iyer. (2020) Experiences of pathways to mental health services for young people and their carers: a qualitative meta-synthesis review. Social Psychiatry and Psychiatric Epidemiology 56:3, pages 339-361.
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Gerald Jordan, Ashok Malla & Srividya N. Iyer. (2020) Perceived facilitators and predictors of positive change and posttraumatic growth following a first episode of psychosis: a mixed methods study using a convergent design. BMC Psychiatry 20:1.
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Raquel S. Williams, Gursharan K. Virdee, Christopher R. Bowie, Dawn I. Velligan, Natalie J. Maples, Yarissa Herman & Sean A. Kidd. (2020) Development and Feasibility Exploration of a Combined Compensatory and Restorative Approach to Addressing Cognitive Challenges in Early Intervention Psychosis. Cognitive and Behavioral Practice 27:4, pages 454-469.
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Rebecca Rodrigues, Adam Beswick & Kelly K. Anderson. (2019) Psychiatric hospitalization following psychosis onset: A retrospective cohort study using health administrative data. Early Intervention in Psychiatry 14:2, pages 235-240.
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Shalini Lal, Danielle Joanna Starcevic & Rebecca Fuhrer. (2020) Youth Experiences With Referrals to Mental Health Services in Canada: Protocol for a Web-Based Cross-Sectional Survey Study. JMIR Research Protocols 9:3, pages e16945.
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Matthew Loughlin, Sandra Bucci, Joanna Brooks & Katherine Berry. (2019) Service users’ and carers’ experiences of engaging with early intervention services: A meta‐synthesis review. Early Intervention in Psychiatry 14:1, pages 26-36.
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K. T. Mueser, N. R. DeTore, M. A. Kredlow, M. L. Bourgeois, D. L. Penn & K. Hintz. (2019) Clinical and demographic correlates of stigma in first‐episode psychosis: the impact of duration of untreated psychosis. Acta Psychiatrica Scandinavica 141:2, pages 157-166.
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Amelie Noiriel, Laurence Verneuil, Ingrid Osmond, Emilie Manolios, Anne Revah-Levy & Jordan Sibeoni. (2020) The Lived Experience of First-Episode Psychosis: A Systematic Review and Metasynthesis of Qualitative Studies. Psychopathology 53:5-6, pages 223-238.
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Bobbi J. Yarborough, Micah T. Yarborough & Julie C. Cavese. (2018) Factors that hindered care seeking among people with a first diagnosis of psychosis. Early Intervention in Psychiatry 13:5, pages 1220-1226.
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Ariana Kular, Benjamin I. Perry, Luke Brown, Ruchika Gajwani, Rubina Jasini, Zoebia Islam, Max Birchwood & Swaran P. Singh. (2018) Stigma and access to care in first‐episode psychosis. Early Intervention in Psychiatry 13:5, pages 1208-1213.
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Shelly Ben‐David, Andrea Cole, Gary Brucato, Ragy R. Girgis & Michelle R. Munson. (2018) Mental health service use decision‐making among young adults at clinical high risk for developing psychosis. Early Intervention in Psychiatry 13:5, pages 1050-1055.
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Aneta Alexová, Anna Kågström, Petr Winkler, Lucie Kondrátová & Miroslava Janoušková. (2019) Correlates of internalized stigma levels in people with psychosis in the Czech Republic. International Journal of Social Psychiatry 65:5, pages 347-353.
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Long Khanh-Dao Le, Lena Sanci, Mary Lou Chatterton, Sylvia Kauer, Kerrie Buhagiar & Cathrine Mihalopoulos. (2019) The Cost-Effectiveness of an Internet Intervention to Facilitate Mental Health Help-Seeking by Young Adults: Randomized Controlled Trial. Journal of Medical Internet Research 21:7, pages e13065.
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Megan A. Pope, Gerald Jordan, Shruthi Venkataraman, Ashok K. Malla & Srividya N. Iyer. (2018) “Everyone Has a Role”: Perspectives of Service Users With First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals With Mental Health Problems. Qualitative Health Research 29:9, pages 1299-1312.
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Robert Griffiths, Warren Mansell, Dawn Edge & Sara Tai. (2018) Sources of Distress in First-Episode Psychosis: A Systematic Review and Qualitative Metasynthesis. Qualitative Health Research 29:1, pages 107-123.
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Kathleen MacDonald, Ashok Malla, Ridha Joober, Jai L. Shah, Karen Goldberg, Sherezad Abadi, Madeline Doyle & Srividya N. Iyer. (2018) Description, evaluation and scale-up potential of a model for rapid access to early intervention for psychosis. Early Intervention in Psychiatry 12:6, pages 1222-1228.
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Gerald Jordan, Miriam Kinkaid, Srividya N. Iyer, Ridha Joober, Karen Goldberg, Ashok Malla & Jai L. Shah. (2018) Baby or bathwater? Referrals of “non-cases” in a targeted early identification intervention for psychosis. Social Psychiatry and Psychiatric Epidemiology 53:7, pages 757-761.
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Jens Einar Jansen, Marlene Buch Pedersen, Lene Halling Hastrup, Ulrik Helt Haahr & Erik Simonsen. (2015) Important first encounter: Service user experience of pathways to care and early detection in first‐episode psychosis. Early Intervention in Psychiatry 12:2, pages 169-176.
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Gerald Jordan, Megan Pope, Angella Lambrou, Ashok Malla & Srividya Iyer. (2016) Post‐traumatic growth following a first episode of psychosis: a scoping review. Early Intervention in Psychiatry 11:3, pages 187-199.
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Kelly K. Anderson & Paul Kurdyak. (2016) Factors Associated with Timely Physician Follow-up after a First Diagnosis of Psychotic Disorder. The Canadian Journal of Psychiatry 62:4, pages 268-277.
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Gerald Jordan, Ashok Malla & Srividya N. Iyer. (2016) Posttraumatic growth following a first episode of psychosis: a mixed methods research protocol using a convergent design. BMC Psychiatry 16:1.
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Edward Chesney, Edimansyah Abdin, Lye Yin Poon, Mythily Subramaniam & Swapna Verma. (2016) Pathways to Care for Patients With First-Episode Psychosis in Singapore. Journal of Nervous & Mental Disease 204:4, pages 291-297.
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Frauke Schultze-Lutter, Jonas Rahman, Stephan Ruhrmann, Chantal Michel, Benno G. Schimmelmann, Wolfgang Maier & Joachim Klosterkötter. (2015) Duration of unspecific prodromal and clinical high risk states, and early help-seeking in first-admission psychosis patients. Social Psychiatry and Psychiatric Epidemiology 50:12, pages 1831-1841.
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Jeremy Dixon. (2015) Treatment, deterrence or labelling: mentally disordered offenders’ perspectives on social control. Sociology of Health & Illness 37:8, pages 1299-1313.
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H.J. Salize, E. Voß, A. Werner, P. Falkai & I. Hauth. (2015) Behandlungspfade in der Versorgung von Patienten mit Schizophrenie und DepressionTreatment pathways in the care of patients with schizophrenia and depression. Der Nervenarzt 86:11, pages 1358-1370.
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Alison Gee, Craig McGarty & Michelle Banfield. (2015) What Drives Systemic Mental Health Advocates? Goals, Strategies, and Values of Australian Consumer and Carer Advocacy Organizations. SAGE Open 5:4, pages 215824401561538.
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S. N. Iyer, P. Boksa, S. Lal, J. Shah, G. Marandola, G. Jordan, M. Doyle, R. Joober & A. K. Malla. (2015) Transforming youth mental health: a Canadian perspective. Irish Journal of Psychological Medicine 32:1, pages 51-60.
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Jens Einar Jansen, Peter Michael Wøldike, Ulrik Helt Haahr & Erik Simonsen. (2014) Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis: A Qualitative Study Within the TOP Project. Psychiatric Quarterly 86:1, pages 83-94.
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