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Research Papers

Loss of autonomy, control and independence when caring: A qualitative study of informal carers of stroke survivors in the first three months after discharge

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Pages 125-133 | Accepted 01 May 2009, Published online: 02 Dec 2009

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Yun Shi, Tsu-Hsin Howe, Peter F. Halpin, Lu Hu & Bei Wu. (2023) Dyadic analysis of illness perceptions among individuals with stroke and their caregivers: effects on activity engagement in community living. Disability and Rehabilitation 0:0, pages 1-13.
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Carla Mendes Pereira, Nan Greenwood & Fiona Jones. (2021) From recovery to regaining control of life – the perspectives of people with stroke, their carers and health professionals. Disability and Rehabilitation 43:20, pages 2897-2908.
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Theresia Krieger, Miriam Floren, Frans Feron & Elisabeth Dorant. (2021) Optimising a complex stroke caregiver support programme in practice: a participatory action research study. Educational Action Research 29:1, pages 37-59.
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Ann Wigginton Steber, Camille Skubik-Peplaski, Renee Causey-Upton & Melba Custer. (2017) The Impact of Caring for Persons with Stroke on the Leisure Occupations of Female Caregivers. Physical & Occupational Therapy In Geriatrics 35:3-4, pages 169-181.
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Stina Lou, Kathrine Carstensen, Carina Rumpelthiin Jørgensen & Camilla Palmhøj Nielsen. (2017) Stroke patients’ and informal carers’ experiences with life after stroke: an overview of qualitative systematic reviews. Disability and Rehabilitation 39:3, pages 301-313.
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Tamilyn Bakas, Nenette M. Jessup, Susan M. McLennon, Barbara Habermann, Michael T. Weaver & Gwendolyn Morrison. (2016) Tracking patterns of needs during a telephone follow-up programme for family caregivers of persons with stroke. Disability and Rehabilitation 38:18, pages 1780-1790.
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Ann-Sofie Bertilsson, Lena von Koch, Kerstin Tham & Ulla Johansson. (2015) Client-centred ADL intervention after stroke: Significant others’ experiences. Scandinavian Journal of Occupational Therapy 22:5, pages 377-386.
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Gillian Hewitt, Sarah Sims, Nan Greenwood, Fiona Jones, Fiona Ross & Ruth Harris. (2015) Interprofessional teamwork in stroke care: Is it visible or important to patients and carers?. Journal of Interprofessional Care 29:4, pages 331-339.
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Mary Ellen Young, Barbara J. Lutz, Kerry Rae Creasy, Kim J. Cox & Crystal Martz. (2014) A comprehensive assessment of family caregivers of stroke survivors during inpatient rehabilitation. Disability and Rehabilitation 36:22, pages 1892-1902.
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Rose Hilton, Shona Leenhouts, Janet Webster & Julie Morris. (2014) Information, support and training needs of relatives of people with aphasia: Evidence from the literature. Aphasiology 28:7, pages 797-822.
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Christine Graven, Danielle Sansonetti, Natasha Moloczij, Dominique Cadilhac & Lynette Joubert. (2013) Stroke survivor and carer perspectives of the concept of recovery: a qualitative study. Disability and Rehabilitation 35:7, pages 578-585.
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Articles from other publishers (22)

Miroslav Paulíček, Lenka Krhutová, Iva Kuzníková, Kamila Vondroušová, Iva Tichá, Hana Lukšová, Petra Anna-Marie Blahová, Veronika Valoušková, Marcela Dabrowská, Jarmila Kristiníková & Petr Šaloun. (2021) Typology of informal carers providing care to family members after cerebrovascular accident. Kontakt 23:3, pages 200-206.
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Alexandra MJ Denham, Amanda L Baker, Neil J Spratt, Olivia Wynne, Sally A Hunt, Billie Bonevski & Ratika Kumar. (2019) YouTube as a resource for evaluating the unmet needs of caregivers of stroke survivors. Health Informatics Journal 26:3, pages 1599-1616.
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Kristina M. Kokorelias, Fiana K.T. Lu, Jennifer R. Santos, Yi Xu, Robin Leung & Jill I. Cameron. (2019) “Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis. Health & Social Care in the Community 28:2, pages 325-340.
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José Granero-Molina, Francisco Sánchez-Hernández, Cayetano Fernández-Sola, María del Mar Jiménez-Lasserrotte, Laura Helena Antequera-Raynal & José Manuel Hernández-Padilla. (2018) The Diagnosis of Hereditary Angioedema: Family Caregivers’ Experiences. Clinical Nursing Research 29:2, pages 117-126.
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Yusrini, Herni Susanti, Ice Yulia Wardani & Nurlaila Fitriani. (2019) Family experience in providing support and the achieving of post-stroke late adulthood development. Enfermería Clínica 29, pages 900-904.
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Thomas F Crocker, Seline Ozer, Lesley Brown, Jessica Hall & Anne Forster. (2019) Non-pharmacological interventions for longer-term stroke survivors or their carers: an overview of Cochrane Reviews. Cochrane Database of Systematic Reviews.
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Maryke Scorrano, Veronica Ntsiea & Douglas Maleka. (2018) Enablers and barriers of adherence to home exercise programmes after stroke: caregiver perceptions. International Journal of Therapy and Rehabilitation 25:7, pages 353-364.
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Alexandra, M.J. Denham, Amanda, L Baker, Neil, J Spratt, Olivia Wynne, Sally Hunt, Ratika Sharma-Kumar & Billie Bonevski. (2018) The unmet needs of caregivers of stroke survivors: A review of the content of YouTube videos (Preprint). JMIR Rehabilitation and Assistive Technologies.
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Cheryl L Olivier, Jill Phillips & Dianne E Roy. (2017) To be or not to be? A caregiver's question: the lived experience of a stroke family during the first 18 months poststroke. Scandinavian Journal of Caring Sciences 32:1, pages 270-279.
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Shilpa Krishnan, Monique R. Pappadis, Susan C. Weller, Marsja Stearnes, Amit Kumar, Kenneth J. Ottenbacher & Timothy A. Reistetter. (2017) Needs of Stroke Survivors as Perceived by Their Caregivers. American Journal of Physical Medicine & Rehabilitation 96:7, pages 487-505.
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Theresia Krieger, Frans Feron & Elisabeth Dorant. (2017) Developing a complex intervention programme for informal caregivers of stroke survivors: The Caregivers’ Guide. Scandinavian Journal of Caring Sciences 31:1, pages 146-156.
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Phyllis Liang, Jennifer Fleming, Louise Gustafsson & Jacki Liddle. (2016) Occupational experience of caregiving during driving disruption following an acquired brain injury. British Journal of Occupational Therapy 80:1, pages 30-38.
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Samy Taha & Rima Sassine Kazan. (2016) L’expérience du « prendre soin » vécue par les aidants familiaux de survivants d’accident vasculaire cérébral à domicile : une métasynthèse. Revue Francophone Internationale de Recherche Infirmière 2:3, pages 159-169.
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Samy Taha & Rima Sassine Kazan. (2015) La signification de l’expérience du « prendre soin » pour des aidants familiaux libanais de survivants d’accident vasculaire cérébral à domicile. Recherche en soins infirmiers N° 120:1, pages 88-101.
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Inez Lynne Brandon. (2014) Reducir la carga de los cuidadores. Nursing (Ed. española) 31:6, pages 50-56.
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Inez Lynne Brandon. (2014) Caring for caregivers. Nursing Critical Care 9:5, pages 8-13.
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Inez Lynne Brandon. (2013) Easing the burden on family caregivers. Nursing Management 44:12, pages 20-27.
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Inez Lynne Brandon. (2013) Easing the burden on family caregivers. Nursing 43:8, pages 36-42.
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Nan Greenwood, Ruth Habibi & Ann Mackenzie. (2012) Respite: carers’ experiences and perceptions of respite at home. BMC Geriatrics 12:1.
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Celia B. Fisher, Nancy A. Busch‐Rossnagel, Daniela S. Jopp & Joshua L. Brown. 2012. Handbook of Psychology, Second Edition. Handbook of Psychology, Second Edition.
Gunilla Gosman‐Hedström & Synneve Dahlin‐Ivanoff. (2012) ‘Mastering an unpredictable everyday life after stroke’– older women’s experiences of caring and living with their partners. Scandinavian Journal of Caring Sciences 26:3, pages 587-597.
Crossref
Nan Greenwood & Ann Mackenzie. (2010) Informal caring for stroke survivors: Meta-ethnographic review of qualitative literature. Maturitas 66:3, pages 268-276.
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