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Research Papers

Carer experiences of life after stroke – a qualitative analysis

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Pages 1406-1413 | Accepted 01 Dec 2009, Published online: 13 Jul 2010

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Read on this site (12)

Maria Stella Stein & Frances Ann Reynolds. (2022) How is carer strain related to the recovery of stroke survivors with right hemisphere dysfunction? Implications for practice. Disability and Rehabilitation 44:5, pages 693-701.
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Theresia Krieger, Miriam Floren, Frans Feron & Elisabeth Dorant. (2021) Optimising a complex stroke caregiver support programme in practice: a participatory action research study. Educational Action Research 29:1, pages 37-59.
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Niamh A. Merriman, Carlos Bruen, Ashleigh Gorman, Frances Horgan, David J. Williams, Niall Pender, Elaine Byrne & Anne Hickey. (2020) “I’m just not a Sudoku person”: analysis of stroke survivor, carer, and healthcare professional perspectives for the design of a cognitive rehabilitation intervention. Disability and Rehabilitation 42:23, pages 3359-3369.
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Laura Condon, Penny Benford, Eirini Kontou, Shirley Thomas & Marion Walker. (2019) The use of carer perspectives and expert consensus to define key components of a biopsychosocial support intervention for stroke carers. Topics in Stroke Rehabilitation 26:6, pages 440-447.
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Muditha Wagachchige Muthucumarana, Kerstin Samarasinghe & Carina Elgán. (2018) Caring for stroke survivors: experiences of family caregivers in Sri Lanka – a qualitative study. Topics in Stroke Rehabilitation 25:6, pages 397-402.
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Peii Chen, Denise C. Fyffe & Kimberly Hreha. (2017) Informal caregivers’ burden and stress in caring for stroke survivors with spatial neglect: an exploratory mixed-method study. Topics in Stroke Rehabilitation 24:1, pages 24-33.
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Tamilyn Bakas, Nenette M. Jessup, Susan M. McLennon, Barbara Habermann, Michael T. Weaver & Gwendolyn Morrison. (2016) Tracking patterns of needs during a telephone follow-up programme for family caregivers of persons with stroke. Disability and Rehabilitation 38:18, pages 1780-1790.
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Sandra M. Wielaert, Karen Sage, Majanka H. Heijenbrok-Kal & Mieke W.M.E. Van De Sandt-Koenderman. (2016) Candidacy for conversation partner training in aphasia: findings from a Dutch implementation study. Aphasiology 30:6, pages 699-718.
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Karen Quinn, Craig Murray & Caroline Malone. (2014) Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disability and Rehabilitation 36:3, pages 185-198.
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Peii Chen & Amanda L. Botticello. (2013) Spouses of Stroke Survivors May Be at Risk for Poor Cognitive Functioning: A Cross-sectional Population-Based Study. Topics in Stroke Rehabilitation 20:4, pages 369-378.
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Jill I. Cameron, Gary Naglie, Frank L. Silver & Monique A. M. Gignac. (2013) Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework. Disability and Rehabilitation 35:4, pages 315-324.
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Articles from other publishers (24)

Lingyu Wang, Jingyu Liu, Lingsha Wu, Jing Zhang & Haiyan Fang. (2023) Caregiving experiences of stroke caregivers: A systematic review and meta-synthesis of qualitative studies. Medicine 102:13, pages e33392.
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Jinyao Wang, Jun Cui, Shuangyan Tu, Rong Yang & Lihong Zhao. (2022) Resilience and caregiving ability among caregivers of people with stroke: The mediating role of uncertainty in illness. Frontiers in Psychiatry 13.
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H S Maliga S K Wijesiri, K Samarasinghe, S Wasalathanthri & CN Wijeyaratne. (2022) Experiences of family caregivers of the older people with limitations in activities: A qualitative study. Health & Social Care in the Community 30:6.
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Elton H. Lobo, Anne Frølich, Finn Kensing, Lene J. Rasmussen, Patricia M. Livingston, John Grundy & Mohamed Abdelrazek. (2020) mHealth applications to support caregiver needs and engagement during stroke recovery: A content review. Research in Nursing & Health 44:1, pages 213-225.
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Natalia Esquivel Garzón, Sonia Carreño Moreno & Lorena Chaparro Díaz. (2021) Rol del cuidador familiar novel de adultos en situación de dependencia: Scoping Review. Revista Cuidarte.
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Hilde Nordahl-Pedersen & Inger S. Martinussen. (2020) Å være ektefelle og omsorgsgiver når hjerneslag rammer. Tidsskrift for velferdsforskning 23:1, pages 49-62.
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Kristina M. Kokorelias, Fiana K.T. Lu, Jennifer R. Santos, Yi Xu, Robin Leung & Jill I. Cameron. (2019) “Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis. Health & Social Care in the Community 28:2, pages 325-340.
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Anne Geard, Marit Kirkevold, Marianne Løvstad & Anne-Kristine Schanke. (2020) How do family members of individuals with spinal cord and acquired brain injuries make sense of their experiences: A qualitative study of meaning making processes. Health Psychology Open 7:1, pages 205510292091347.
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Namale Gertrude, Rachel Kawuma, Winifred Nalukenge, Onesmus Kamacooko, Laetitia Yperzeele, Patrick Cras, Edward Ddumba, Robert Newton & Janet Seeley. (2019) Caring for a stroke patient: The burden and experiences of primary caregivers in Uganda – A qualitative study. Nursing Open 6:4, pages 1551-1558.
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Qi Lu, Jan Mårtensson, Yue Zhao & Linda Johansson. (2019) Living on the edge: Family caregivers' experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies 94, pages 1-8.
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Alexandra M. J. Denham, Olivia Wynne, Amanda L. Baker, Neil J. Spratt, Alyna Turner, Parker Magin, Heidi Janssen, Coralie English, Madeleine Loh & Billie Bonevski. (2019) “This is our life now. Our new normal”: A qualitative study of the unmet needs of carers of stroke survivors. PLOS ONE 14:5, pages e0216682.
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Christopher Stephen Clare. (2018) Role of the nurse in stroke rehabilitation. Nursing Standard 33:7, pages 59-66.
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Rebecca Smith, Caroline Burgess & Isaac Sorinola. (2018) The effect of a dysfunctional upper limb on community-dwelling stroke survivors and their carers: An interpretative phenomenological analysis. Physiotherapy Research International 23:4, pages e1726.
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Fidel López-Espuela, Teresa González-Gil, Javier Amarilla-Donoso, Sergio Cordovilla-Guardia, Juan Carlos Portilla-Cuenca & Ignacio Casado-Naranjo. (2018) Critical points in the experience of spouse caregivers of patients who have suffered a stroke. A phenomenological interpretive study. PLOS ONE 13:4, pages e0195190.
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Nienke S Tielemans, Vera PM Schepers, Johanna MA Visser-Meily, Jolanda CM van Haastregt, Wendy JM van Veen, Haike E van Stralen & Caroline M van Heugten. (2016) Process evaluation of the Restore4stroke Self-Management intervention ‘Plan Ahead!’: a stroke-specific self-management intervention. Clinical Rehabilitation 30:12, pages 1175-1185.
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Samy Taha & Rima Sassine Kazan. (2016) L’expérience du « prendre soin » vécue par les aidants familiaux de survivants d’accident vasculaire cérébral à domicile : une métasynthèse. Revue Francophone Internationale de Recherche Infirmière 2:3, pages 159-169.
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Kate E Thomas, Timothy R Broady & Carole L James. (2016) Exploring manual handling practices by informal carers. International Journal of Therapy and Rehabilitation 23:7, pages 305-313.
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Tenelle Hodson, Tammy Aplin & Louise Gustafsson. (2016) Understanding the dimensions of home for people returning home post stroke rehabilitation. British Journal of Occupational Therapy 79:7, pages 427-433.
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Megan M. Danzl, Anne Harrison, Elizabeth G. Hunter, Janice Kuperstein, Violet Sylvia, Katherine Maddy & Sarah Campbell. (2016) “A Lot of Things Passed Me by”: Rural Stroke Survivors’ and Caregivers’ Experience of Receiving Education From Health Care Providers. The Journal of Rural Health 32:1, pages 13-24.
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Caroline Ellis-Hill, Fergus Gracey, Sarah Thomas, Catherine Lamont-Robinson, Peter W Thomas, Elsa M R Marques, Mary Grant, Samantha Nunn, Robin P I Cant, Kathleen T Galvin, Frances Reynolds & Damian F Jenkinson. (2015) ‘HeART of Stroke (HoS)’, a community-based Arts for Health group intervention to support self-confidence and psychological well-being following a stroke: protocol for a randomised controlled feasibility study. BMJ Open 5:8, pages e008888.
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Susanne W. Gibbons, Alyson Ross & Margaret Bevans. (2014) Liminality as a Conceptual Frame for Understanding the Family Caregiving Rite of Passage: An Integrative Review. Research in Nursing & Health 37:5, pages 423-436.
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Megan M. Danzl, Elizabeth G. Hunter, Sarah Campbell, Violet Sylvia, Janice Kuperstein, Katherine Maddy & Anne Harrison. (2013) “Living With a Ball and Chain”: The Experience of Stroke for Individuals and Their Caregivers in Rural Appalachian Kentucky. The Journal of Rural Health 29:4, pages 368-382.
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Lisa Jones & Reg Morris. (2012) Experiences of adult stroke survivors and their parent carers: a qualitative study. Clinical Rehabilitation 27:3, pages 272-280.
Crossref
Julie Bliss. (2011) Supporting life after stroke. British Journal of Community Nursing 16:2, pages 57-57.
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