2,043
Views
65
CrossRef citations to date
0
Altmetric
ORIGINAL ARTICLE

The perceptions and experiences of adolescent siblings who have a brother with autism spectrum disorder

, , , &
Pages 303-314 | Published online: 21 Nov 2012

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (12)

O. Múries-Cantán, A. Schippers, C. Giné & H. Blom-Yoo. (2023) Siblings of people with intellectual and developmental disabilities: a systematic review on their quality of life perceptions in the context of a family. International Journal of Developmental Disabilities 69:6, pages 797-810.
Read now
M. Oti-Boadi, J. Salifu Yendork, E. B. Omari & S. Oppong. (2023) Experiences of siblings of individuals with autism spectrum disorders. International Journal of Developmental Disabilities 0:0, pages 1-14.
Read now
Brad Reimers, Robyn S. Hess, Jessie Johnston, Miranda K. Martino, Cassandra Mort & Julia Ybarra. (2023) Resiliency perspectives among older siblings of children with significant disabilities. Journal of Family Studies 29:3, pages 1101-1116.
Read now
Bridget M. Wright, Joann P. Benigno, John W. Mccarthy & Jennifer Chabot. (2022) ‘They Change Our Lives More than We Change Them’: Young Adults’ Perspectives on Relationships with Autistic Siblings. International Journal of Disability, Development and Education 0:0, pages 1-14.
Read now
Melissa H. Bellin, Rachel H.F. Margolis, Joan Austin, Paul Sacco, Anna Thompson, Jaclyn R. MacFarlane Bookman & Kathleen J. Sawin. (2020) Psychometric evaluation of the child attitude toward illness scale—sibling version. Journal of Family Social Work 23:4, pages 378-391.
Read now
Monica L. Molinaro, Lauren E. Rollo, Paula C. Fletcher & Margaret A. Schneider. (2020) Having a Sibling with ASD: Perspectives of Siblings and Their Parents. Comprehensive Child and Adolescent Nursing 43:1, pages 35-47.
Read now
Rachael A. Dansby, Brie Turns, Jason B. Whiting & Jeffrey Crane. (2018) A phenomenological content analysis of online support seeking by siblings of people with autism. Journal of Family Psychotherapy 29:3, pages 181-200.
Read now
Paola Corsano, Alessandro Musetti, Laura Guidotti & Francesca Capelli. (2017) Typically developing adolescents’ experience of growing up with a brother with an autism spectrum disorder. Journal of Intellectual & Developmental Disability 42:2, pages 151-161.
Read now
David Preece, Loizos Symeou, Jasmina Stošić, Jasmina Troshanska, Katerina Mavrou, Eleni Theodorou & Jasmina Frey Škrinjar. (2017) Accessing parental perspectives to inform the development of parent training in autism in south-eastern Europe. European Journal of Special Needs Education 32:2, pages 252-269.
Read now
Christine Wigston, Marita Falkmer, Sharmila Vaz, Richard Parsons & Torbjörn Falkmer. (2017) Participation in extracurricular activities for children with and without siblings with autism spectrum disorder. Developmental Neurorehabilitation 20:1, pages 25-39.
Read now
Lale Hanöz, Serkan Özgün, Senem Zeytinoğlu Saydam, Celia Naivar Şen & Emine Ayyıldız. Siblings Under the Shadow: A Qualitative Study of Young Adults’ Parentification Experiences with Siblings with Special Needs. International Journal of Systemic Therapy 0:0, pages 1-18.
Read now

Articles from other publishers (53)

Corinne Rochefort, Alison Paradis, Mélina Rivard & Michelle Dewar. (2023) Siblings of Individuals with Intellectual Disabilities or Autism: A Scoping Review using Trauma Theory. Journal of Child and Family Studies 32:11, pages 3482-3500.
Crossref
Priscilla Burnham Riosa, Rebecca Ensor, Brynn Jichici & Brittany Davy. (2022) How my life is unique: Sibling perspectives of autism. Autism 27:6, pages 1575-1587.
Crossref
Victoria Morris, Gillian Hendry, Claire Wilson, Karri Gillespie-Smith & Carrie Ballantyne. (2023) A Comparison of Attitudes and Knowledge Towards Autism Based on Adult Sibling Experiences. Journal of Adult Development.
Crossref
Elif ELUMAR & Sunagül SANİ-BOZKURT. (2023) Özel Gereksinimli Çocuğa Sahip Ebeveynlerin Tipik Gelişim Gösteren Çocuklarından BeklentileriExpectations of Parents of Special Needs Children from their Typically Developing Children. Erzincan Üniversitesi Eğitim Fakültesi Dergisi 25:1, pages 57-71.
Crossref
Sarah N. Douglas, Atikah Bagawan & Patricia West. (2023) A Theory-Generating Qualitative Meta-synthesis to Understand Neurotypical Sibling Perceptions of their Relationship with Siblings with Autism Spectrum Disorders. Review Journal of Autism and Developmental Disorders.
Crossref
Soui Jeong & Ju Hee Park. (2023) The Mediating Effect of Internalized Shame on the Relationship between Affiliate Stigma and Interpersonal Anxiety among Adolescent Siblings of Individuals with Autism Spectrum Disorder. Human Ecology Research 61:1, pages 123-139.
Crossref
Shin Ying Chu, Siti Nur Zafirah binti Kassim, Chun Hong Gan, Veronica Fierro, Caryn Mei Hsien Chan & Deborah Hersh. (2021) “Sometimes I Feel Grateful…”: Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia. Journal of Autism and Developmental Disorders 53:2, pages 795-807.
Crossref
Giuseppe Quatrosi, Dario Genovese, Emanuele Amodio & Gabriele Tripi. (2023) The Quality of Life among Siblings of Autistic Individuals: A Scoping Review. Journal of Clinical Medicine 12:3, pages 735.
Crossref
Brittany Wolff, Iliana Magiati, Rachel Roberts, Elizabeth Pellicano & Emma J. Glasson. (2022) Risk and resilience factors impacting the mental health and wellbeing of siblings of individuals with neurodevelopmental conditions: A mixed methods systematic review. Clinical Psychology Review 98, pages 102217.
Crossref
Essi Ikonen. (2022) The Sonic Meanings of the Life and Death of My Disabled Brother: Listening as a Method for Qualitative Research. Qualitative Health Research 32:13, pages 2019-2029.
Crossref
Raaya Alon. (2022) Predicting typically-developing siblings’ acceptance of their sibling with ASD during emerging adulthood. Research in Autism Spectrum Disorders 99, pages 102065.
Crossref
Georgia Pavlopoulou, Clare Burns, Rosie Cleghorn, Theodora Skyrla & Julia Avnon. (2022) “I often have to explain to school staff what she needs”. School experiences of non-autistic siblings growing up with an autistic brother or sister. Research in Developmental Disabilities 129, pages 104323.
Crossref
Ruimin Huang, Shanthi Potla, Sushen Bhalla, Yousif Al Qabandi, Savitri A Nandula, Chinmayi S Boddepalli, Sai D Gutlapalli, Vamsi K Lavu, Rana Abdelwahab & Pousette Hamid. (2022) The Clinical Implications of the Academic Performance of the Siblings of Individuals With Autism Spectrum Disorder. Cureus.
Crossref
Maria G Quintana Mariñez, Mohana Chakkera, Niriksha Ravi, Rajita Ramaraju, Aastha Vats, Athira R Nair, Atithi K Bandhu, Divya Koirala, Manoj R Pallapothu & Safeera Khan. (2022) The Other Sibling: Mental Health Effects on a Healthy Sibling of a Child With a Chronic Disease: A Systematic Review. Cureus.
Crossref
Kristin A. Long, Lydia Chevalier, Andrea Chu, Kate M. Guthrie, Barbara Kao, Wendy Plante & Debra Lobato. (2021) Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings. Journal of Autism and Developmental Disorders 52:9, pages 4100-4113.
Crossref
Naledi Mokoena & Anwynne Kern. (2022) Experiences of siblings to children with autism spectrum disorder. Frontiers in Psychiatry 13.
Crossref
Dorothea Iannuzzi, Lucy Fell, Christina Luberto, Brett M. Goshe, Giselle Perez, Elyse Park, Sydney Crute, Karen Kuhlthau & Lara Traeger. (2021) Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD. Journal of Autism and Developmental Disorders 52:6, pages 2430-2437.
Crossref
Poornima Viswanathan, M. Thomas Kishore & Shekhar P. Seshadri. (2021) Lived Experiences of Siblings of Individuals with Autism Spectrum Disorder in India: An Interpretative Phenomenological Analysis. Indian Journal of Psychological Medicine 44:1, pages 45-52.
Crossref
Mia Randle & David Christopher Dalby. (2021) Exploring the effects of having an autistic sibling on typically developing young people. Learning Disability Practice 24:6, pages 22-30.
Crossref
Mia Randle & David Christopher Dalby. (2021) Exploring the effects of having an autistic sibling on typically developing young people. Learning Disability Practice 24:6, pages 22-30.
Crossref
Caitlin Calio & Ann Higgins-D’Alessandro. (2021) “It’s really unexplainable, but everyone here got it:” Analysis of an ASD sibling support group for emerging adults. Research in Autism Spectrum Disorders 88, pages 101857.
Crossref
Lucy Watson, Paul Hanna & Christina J Jones. (2021) A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clinical Child Psychology and Psychiatry 26:3, pages 734-749.
Crossref
Emma Critchley, Michelle Cuadros, Ina Harper, Harry Smith-Howell & Miles Rogish. (2021) A parent-sibling dyadic interview to explore how an individual with Autism Spectrum Disorder can impact family dynamics. Research in Developmental Disabilities 111, pages 103884.
Crossref
Laura Guidotti, Alessandro Musetti, Gian Luca Barbieri, Ilenia Ballocchi & Paola Corsano. (2020) Conflicting and harmonious sibling relationships of children and adolescent siblings of children with autism spectrum disorder. Child: Care, Health and Development 47:2, pages 163-173.
Crossref
G. Le Corfec, G. Le Maner-Idrissi & S. Le Sourn-Bissaoui. (2020) Qualité de vie des fratries d’enfants avec un trouble du spectre de l’autisme. Revue de littérature. Neuropsychiatrie de l'Enfance et de l'Adolescence 68:7, pages 362-369.
Crossref
Pınar ZENGİN AKKUŞ, Bahar BAHTİYAR SAYGAN, Evin İLTER BAHADUR, Tuna CAK & Elif ÖZMERT. (2020) OTİZM SPEKTRUM BOZUKLUĞU TANISI İLE YAŞAMAK: AİLELERİN DENEYİMLERİ. Turkish Journal of Pediatric Disease, pages 1-8.
Crossref
Ziwen Peng, Jierong Chen, Lili Jin, Hongying Han, Chenjie Dong, Ya Guo, Xuejun Kong, Guobin Wan & Zhen Wei. (2020) Social brain dysfunctionality in individuals with autism spectrum disorder and their first-degree relatives: An activation likelihood estimation meta-analysis. Psychiatry Research: Neuroimaging 298, pages 111063.
Crossref
Georgia Pavlopoulou & Dagmara Dimitriou. (2020) In their own words, in their own photos: Adolescent females’ siblinghood experiences, needs and perspectives growing up with a preverbal autistic brother or sister. Research in Developmental Disabilities 97, pages 103556.
Crossref
Alexandra T. Leedham, Andrew R. Thompson & Megan Freeth. (2020) A thematic synthesis of siblings' lived experiences of autism: Distress, responsibilities, compassion and connection. Research in Developmental Disabilities 97, pages 103547.
Crossref
Anat Zaidman-Zait, Miri Yechezkiely & Dafna Regev. (2020) The quality of the relationship between typically developing children and their siblings with and without intellectual disability: Insights from children's drawings. Research in Developmental Disabilities 96, pages 103537.
Crossref
Alexandra Gregory, Richard P. Hastings & Hanna Kovshoff. (2020) Academic self-concept and sense of school belonging of adolescent siblings of autistic children. Research in Developmental Disabilities 96, pages 103519.
Crossref
Mariella Venturella, Xavier Carbonell, Víctor Cabré & Eulàlia Arias-Pujol. (2019) A Psychoanalytical Perspective on the Co-therapeutic Relationship With a Group of Siblings of Children With Autism: An Observational Study of Communicative Behavior Patterns. Frontiers in Psychology 10.
Crossref
Bridget M. Wright & Joann P. Benigno. (2019) Autism Spectrum Disorder and Sibling Relationships: Exploring Implications for Intervention Using a Family Systems Framework. American Journal of Speech-Language Pathology 28:2, pages 759-767.
Crossref
Teresa Macedo Costa & Ana Paula da Silva Pereira. (2019) The Child with Autism Spectrum Disorder: The Perceptions of Siblings. Support for Learning 34:2, pages 193-210.
Crossref
Carolyn M. Shivers & Casey M. McGregor. (2018) Brief Report: Sibling Feelings Toward their Brother or Sister With or Without Autism or Intellectual Disability. Journal of Autism and Developmental Disorders 49:1, pages 404-409.
Crossref
Noorit Felsenthal-Berger. 2019. Autism in Adulthood. Autism in Adulthood 225 245 .
Jake Johnson. 2019. Handbook of Interdisciplinary Treatments for Autism Spectrum Disorder. Handbook of Interdisciplinary Treatments for Autism Spectrum Disorder 423 444 .
Hsiao-Wei Joy Tsai, Katie Cebula, S.H. Liang & Sue Fletcher-Watson. (2018) Siblings’ experiences of growing up with children with autism in Taiwan and the United Kingdom. Research in Developmental Disabilities 83, pages 206-216.
Crossref
Hester Noonan, Isabelle O’ Donoghue & Charlotte Wilson. (2018) Engaging with and navigating limbo: Lived experiences of siblings of adults with autism spectrum disorders. Journal of Applied Research in Intellectual Disabilities 31:6, pages 1144-1153.
Crossref
최복천 & 김유리. (2018) Sibling Relationship and Its Meanings Perceived by Adult Siblings of Individuals with Disabilities. Korean Journal of Physical, Multiple, & Health Disabilities 61:2, pages 159-183.
Crossref
Rebecca Soraya Gorjy, Angela Fielding & Marita Falkmer. (2017) “It's better than it used to be”: Perspectives of adolescent siblings of children with an autism spectrum condition. Child & Family Social Work 22:4, pages 1488-1496.
Crossref
Hanna Kovshoff, Katie Cebula, Hsiao-Wei Joy Tsai & Richard P. Hastings. (2017) Siblings of Children with Autism: the Siblings Embedded Systems Framework. Current Developmental Disorders Reports 4:2, pages 37-45.
Crossref
Debbie Spain, Jacqueline Sin, Eleni Paliokosta, Marie Furuta, Jonathan E Prunty, Trudie Chalder, Declan G Murphy & Francesca G Happé. (2017) Family therapy for autism spectrum disorders. Cochrane Database of Systematic Reviews 2017:5.
Crossref
Carolyn M. ShiversElisabeth M. Dykens. (2017) Adolescent Siblings of Individuals With and Without Intellectual and Developmental Disabilities: Self-Reported Empathy and Feelings About Their Brothers and Sisters. American Journal on Intellectual and Developmental Disabilities 122:1, pages 62-77.
Crossref
Brie Turns, Brandon Paul Eddy & Sara Smock Jordan. (2016) Working with Siblings of Children with Autism: A Solution‐focused Approach. Australian and New Zealand Journal of Family Therapy 37:4, pages 558-571.
Crossref
Elizabeth K. Cridland, Sandra C. Jones, Gerard Stoyles, Peter Caputi & Christopher A. Magee. (2016) Families Living With Autism Spectrum Disorder. Focus on Autism and Other Developmental Disabilities 31:3, pages 196-207.
Crossref
Nancy Bagatell. (2015) The Routines and Occupations of Families With Adolescents With Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities 31:1, pages 49-59.
Crossref
Zara O. Connell, Maeve O. Halloran & Owen Doody. (2016) Living with a brother who has an Autism Spectrum Disorder: a sister's perspective. British Journal of Learning Disabilities 44:1, pages 49-55.
Crossref
Debbie Spain, Jacqueline Sin, Eleni Paliokosta, Marie Furuta, Trudie Chalder, Declan G Murphy & Francesca G Happé. 1996. Cochrane Database of Systematic Reviews. Cochrane Database of Systematic Reviews.
Barbara Mandleco & Ann Elisabeth Mason Webb. (2015) Sibling perceptions of living with a young person with Down syndrome or autism spectrum disorder: An integrated review. Journal for Specialists in Pediatric Nursing 20:3, pages 138-156.
Crossref
R. P. Hastings & M. A. Petalas. (2014) Self-reported behaviour problems and sibling relationship quality by siblings of children with autism spectrum disorder. Child: Care, Health and Development 40:6, pages 833-839.
Crossref
Elizabeth K. Cridland, Sandra C. Jones, Peter Caputi & Christopher A. Magee. (2013) Being a Girl in a Boys’ World: Investigating the Experiences of Girls with Autism Spectrum Disorders During Adolescence. Journal of Autism and Developmental Disorders 44:6, pages 1261-1274.
Crossref
Alex A. Ahmed & Brent C. Vander Wyk. (2013) Neural processing of intentional biological motion in unaffected siblings of children with autism spectrum disorder: An fMRI study. Brain and Cognition 83:3, pages 297-306.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.