The perceptions and experiences of adolescent siblings who have a brother with autism spectrum disorder

References

• Bank, S. (1992). Remembering and reinterpreting sibling bonds. In Boer F. & Dunn J. (Eds.), Children's sibling relationships: Developmental and clinical issues (pp. 139–151). Hillsdale, NJ: Erlbaum.
   Google Scholar
• Bägenholm, A., & Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study. Journal of Mental Deficiency Research, 35, 291–307.
   PubMedGoogle Scholar
• Bongers, I. L., Koot, H. M., van der Ende, J., & Verhulst, F. C. (2003). The normative development of child and adolescent problem behavior. Journal of Abnormal Psychology, 112, 179–192. doi: 10.1037/0021-843X.112.2.179
   PubMed Web of Science ®Google Scholar
• Brocki, J. M., & Wearden, A. J. (2006). A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology and Health, 21, 87–108. doi: 10.1080/14768320500230185
   Web of Science ®Google Scholar
• Buhrmester, D. (1992). The developmental course of sibling and peer relationships. In Boer F. & Dunn J. (Eds.), Children's sibling relationships: Developmental and clinical issues (pp. 19–40). Hillsdale, NJ: Erlbaum.
   Google Scholar
• Burke, P. (2004). Brothers and sisters of disabled children. London, UK: Kingsley.
   Google Scholar
• Carradice, A., Shankland, M. C., & Beail, N. (2002). A qualitative study of the theoretical models used by UK mental health nurses to guide their assessments with family caregivers of people with dementia. International Journal of Nursing Studies, 39, 17–26. doi: 10.1016/S0020-7489(01)00008-6
   PubMed Web of Science ®Google Scholar
• Damiani, V. B. (1999). Responsibilities and adjustment in siblings of children with disabilities: Update and review. Families in Society: Journal of Contemporary Human Services, 80, 34–40.
   Web of Science ®Google Scholar
• Dellve, L., Cernerud, L., & Hallberg, L. R.-M. (2000). Harmonizing dilemmas: Siblings of children with DAMP and Asperger syndrome's experiences of coping with their life situations. Scandinavian Journal of Caring Sciences, 14, 172–178.
   PubMed Web of Science ®Google Scholar
• Dunn, J., Slomkowski, C., & Beardsall, L. (1994). Sibling relationships from the preschool period through middle childhood and early adolescence. Developmental Psychology, 30, 315–324. doi: 10.1037/0012-1649.30.3.315
   Web of Science ®Google Scholar
• Elliott, R., Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38, 215–229. doi: 10.1348/014466599162782
   PubMed Web of Science ®Google Scholar
• Emerson, E., Kiernan, C., Alborz, A., Reeves, D., Mason, H., Swarbrick, R., … Hatton, C. (2001). The prevalence of challenging behaviors: A total population study. Research in Developmental Disabilities, 22, 77–93. doi: 10.1016/S0891-4222(00)00061-5
   PubMed Web of Science ®Google Scholar
• Ferrari, M. (1984). Chronic illness: Psychosocial effects on siblings – I. Chronically ill boys. Journal of Child Psychology and Psychiatry, 25, 459–476.
   PubMed Web of Science ®Google Scholar
• Fisman, S., Wolf, L., Ellison, D., & Freeman, T. (2000). A longitudinal study of siblings of children with chronic disabilities. Canadian Journal of Psychiatry, 45, 369–375.
   PubMed Web of Science ®Google Scholar
• Furman, W., & Buhrmester, D. (1992). Age and sex differences in perceptions of networks of personal relationships. Child Development, 63, 103–115. doi: 10.2307/1130905
   PubMed Web of Science ®Google Scholar
• Gold, N. (1993). Depression and social adjustment in siblings of boys with autism. Journal of Autism and Developmental Disorders, 23, 147–163. doi: 10.1007/BF01066424
   PubMed Web of Science ®Google Scholar
• Greenberg, J. S., Seltzer, M. M., Orsmond, G. I., & Krauss, M. W. (1999). Siblings of adults with mental illness or mental retardation: Current involvement and expectation of future caregiving. Psychiatric Services, 50, 1214–1219.
   PubMed Web of Science ®Google Scholar
• Griffith, G. M., Totsika, V., Nash, S., & Hastings, R. P. (2012). “I just don't fit anywhere”: Support experiences and future support needs of individuals with Asperger syndrome in middle adulthood. Autism, 16, 532–546. doi: 10.1177/1362361311405223
   PubMedGoogle Scholar
• Hastings, R. P. (2003a). Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33, 99–104. doi: 10.1023/A:1022290723442
   PubMed Web of Science ®Google Scholar
• Hastings, R. P. (2003b). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33, 141–150. doi: 10.1023/A:1022983209004
   PubMed Web of Science ®Google Scholar
• Hastings, R. P. (2007). Longitudinal relationships between sibling behavioral adjustment and behavior problems of children with developmental disabilities. Journal of Autism and Developmental Disorders, 37, 1485–1492. doi: 10.1007/s10803-006-0230-y
   PubMed Web of Science ®Google Scholar
• Howlin, P., & Yates, P. (1990). A group for the siblings of children with autism. Communication, 24, 11–16.
   Google Scholar
• Jarrett, N., Payne, S., Turner, P., & Hillier, R. (1999). ‘Someone to talk to’ and ‘pain control’: What people expect from a specialist palliative care team. Palliative Medicine, 13, 139–144. doi: 10.1191/026921699669165706
   PubMed Web of Science ®Google Scholar
• Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43, 225–232. doi: 10.1111/1469-7610.00015
   PubMed Web of Science ®Google Scholar
• Knott, F., Lewis, C., & Williams, T. (2007). Sibling interaction of children with autism: Development over 12 months. Journal of Autism and Developmental Disorders, 37, 1987–1995. doi: 10.1007/s10803-006-0347-z
   PubMed Web of Science ®Google Scholar
• Larson, R. W., Richards, M. H., Moneta, G., Holmbeck, G., & Duckett, E. (1996). Changes in adolescents’ daily interactions with their families from ages 10 to 18: Disengagement and transformation. Developmental Psychology, 32, 744–754. doi: 10.1037/0012-1649.32.4.744
   Web of Science ®Google Scholar
• Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer.
   Google Scholar
• Lobato, D. J., & Kao, B. T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27, 711–716. doi: 10.1093/jpepsy/27.8.711
   PubMed Web of Science ®Google Scholar
• Macks, R. J., & Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders, 37, 1060–1067. doi: 10.1007/s10803-006-0249-0
   PubMed Web of Science ®Google Scholar
• Mascha, K., & Boucher, J. (2006). Preliminary investigation of a qualitative method of examining siblings’ experiences of living with a child with ASD. British Journal of Developmental Disabilities, 52, 19–28. doi: 10.1179/096979506799103659
   Web of Science ®Google Scholar
• McHale, S. M., Kim, J., & Whiteman, S. D. (2006). Sibling relationships in childhood and adolescence. In Noller P. & Feeney J. A. (Eds.) Close relationships: Functions, forms and processes (pp. 127–149). New York, NY: Psychology Press.
   Google Scholar
• Morgan, S. B. (1988). The autistic child and family functioning: A developmental-family systems perspective. Journal of Autism and Developmental Disorders, 18, 263–280. doi: 10.1007/BF02211952
   PubMed Web of Science ®Google Scholar
• Moser, M. R., Paternite, C. E., & Dixon, W. E., Jr. (1996). Late adolescents’ feelings toward parents and siblings. Merrill-Palmer Quarterly, 42, 537–553.
   Web of Science ®Google Scholar
• Opperman, S., & Alant, E. (2003). The coping responses of the adolescent siblings of children with severe disabilities. Disability and Rehabilitation, 25, 441–454. doi: 10.1080/0963828031000069735
   PubMed Web of Science ®Google Scholar
• Petalas, M. A., Hastings, R. P., Nash, S., Dowey, A., & Reilly, D. (2009). “I like that he always shows who he is”: The perceptions and experiences of siblings with a brother with autism spectrum disorder. International Journal of Disability, Development and Education, 56, 381–399. doi: 10.1080/10349120903306715
   Web of Science ®Google Scholar
• Petalas, M. A., Hastings, R. P., Nash, S., Hall, L. M., Joannidi, H., & Dowey, A. (2012). Psychological adjustment and sibling relationships in siblings of children with autism spectrum disorders: Environmental stressors and the broad autism phenotype. Research in Autism Spectrum Disorders, 6, 546–555. doi: 10.1016/j.rasd.2011.07.015
   Web of Science ®Google Scholar
• Rodrigue, J. R., Geffken, G. R., & Morgan, S. B. (1993). Perceived competence and behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 23, 665–674. doi: 10.1007/BF01046108
   PubMed Web of Science ®Google Scholar
• Roeyers, H., & Mycke, K. (1995). Siblings of a child with autism, with mental retardation, and with a normal development. Child: Care, Health and Development, 21, 305–319. doi: 10.1111/j.1365-2214.1995.tb00760.x
   PubMed Web of Science ®Google Scholar
• Ross, P., & Cuskelly, M. (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual & Developmental Disability, 31, 77–86. doi: 10.1080/13668250600710864
   PubMed Web of Science ®Google Scholar
• Smith, J. A., Jarman, M., & Osborn, M. (1999). Doing interpretative phenomenological analysis. In Murray M. & Chamberlain K. (Eds.), Qualitative health psychology: Theories and methods (pp. 219–240). London, UK: Sage.
   Google Scholar
• Smith, T., & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism. Journal on Developmental Disabilities, 11(1), 77–88.
   Google Scholar
• Veisson, M. (1999). Depression symptoms and emotional states in parents of disabled and non-disabled children. Social Behavior and Personality, 27, 87–97. doi: 10.2224/sbp.1999.27.1.87
   Web of Science ®Google Scholar
• Waldinger, R. J., Vaillant, G. E., & Orav, E. J. (2007). Childhood sibling relationships as a predictor of major depression in adulthood: A 30-year prospective study. American Journal of Psychiatry, 164, 949–954. doi: 10.1176/appi.ajp.164.6.949
   PubMed Web of Science ®Google Scholar