Citations (22)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (6)
Erik Olsman, Appolonia M. Nieuwenhuijse & Dick L. Willems. (2023) ‘My son has lost his dignity’: dignity of persons with profound intellectual and multiple disabilities. Disability & Society 38:10, pages 1895-1912.
Read now
Read now
Liesbeth Geuze, Anne Goossensen & Samuel Schrevel. (2023) “Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities. Journal of Intellectual & Developmental Disability 48:2, pages 161-171.
Read now
Read now
Iva Strnadová, Scott Eacott, Joanne Danker, Leanne Dowse, Brydan Lenne, Dennis Alonzo, Michelle Tso & Julie Loblinzk. (2023) Leading schools for specific purposes: a relational analysis of provision. Journal of Educational Administration and History 55:2, pages 146-164.
Read now
Read now
Liesbeth Geuze & Anne Goossensen. (2023) Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents. Disability & Society 0:0, pages 1-19.
Read now
Read now
Guo Ling, Petra Potměšilová & Milon Potměšil. (2022) Families who have a child with a disability: a literature review of quality of life issues from a Chinese perspective. Journal of Family Social Work 25:2-3, pages 67-87.
Read now
Read now
Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel & Bea Maes. (2022) The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study. Journal of Intellectual & Developmental Disability 47:2, pages 118-130.
Read now
Read now
Articles from other publishers (16)
Stanisława Byra & Katarzyna Ćwirynkało. (2022) Resilience, coping, and posttraumatic growth in fathers of children with intellectual disabilities: Stress as moderator. Family Relations 72:4, pages 2178-2193.
Crossref
Crossref
Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel & Bea Maes. (2022) Piloting attachment psychoeducation provided to parents of children with severe disabilities: Testing the feasibility of a digital micro-intervention. Journal of Intellectual Disabilities 27:2, pages 433-450.
Crossref
Crossref
Siméon T. A. Lahaije, Jorien Luijkx, Aly Waninge & Annette A. J. van der Putten. (2023) Well-Being of Families with a Child with Profound Intellectual and Multiple Disabilities. Research and Practice for Persons with Severe Disabilities 48:2, pages 63-78.
Crossref
Crossref
Michelle P. Zappas, Amanda Devereaux & Megan H. Pesch. (2023) The Psychosocial Impact of Congenital Cytomegalovirus on Caregivers and Families: Lived Experiences and Review of the Literature. International Journal of Neonatal Screening 9:2, pages 30.
Crossref
Crossref
Dagmar Sedláčková, Jiří Kantor, Ivona Dömischová & Lucia Kantorová. (2022) Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic. British Journal of Learning Disabilities 51:1, pages 3-12.
Crossref
Crossref
Sien Vandesande, Dorien Steegmans & Bea Maes. (2022) Parents’ views on facilitating and inhibiting factors in the development of attachment relationships with their children with severe disabilities. Journal of Social and Personal Relationships 40:2, pages 600-623.
Crossref
Crossref
Adile Emel SARDOHAN YILDIRIM & Rabia VEZNE. (2022) A Family Education Intervention for Parents Having Children with Multiple Disabilities during COVID-19. International Journal of Contemporary Educational Research 9:1, pages 179-190.
Crossref
Crossref
Ines Van Keer, Karla Van Leeuwen & Bea Maes. (2021) ‘We can't do it alone’: Perceived social support in parents of children with a significant cognitive and motor developmental delay. Journal of Applied Research in Intellectual Disabilities 35:2, pages 531-536.
Crossref
Crossref
Rosie Rushton & Lila Kossyvaki. (2021) The role of music within the home‐lives of young people with profound and multiple learning disabilities: Parental perspectives. British Journal of Learning Disabilities 50:1, pages 29-40.
Crossref
Crossref
Naho Sato & Akiko Araki. (2021) Fathers’ Involvement in Rearing Children With Profound Intellectual and Multiple Disabilities. Journal of Family Nursing 28:1, pages 57-68.
Crossref
Crossref
Frances R. Vereijken, Sanne A. H. Giesbers, Andrew Jahoda & Petri J. C. M. Embregts. (2021)
Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the
COVID
‐19 pandemic
. Journal of Applied Research in Intellectual Disabilities 35:1, pages 150-159.
Crossref
Crossref
Araceli Ortiz-Rubio, Irene Torres-Sánchez, Irene Cabrera-Martos, Janet Rodríguez-Torres, Laura López-López, Esther Prados-Román & Marie Carmen Valenza. (2021) The Caregiver Burden Inventory as a Sleep Disturbance Screening Tool for Parents of Children with Autism Spectrum Disorder. Journal of Pediatric Nursing 61, pages 166-172.
Crossref
Crossref
Tabitha Haw & Sasha Henriques. (2021) Exploring how mothers of a child with a genetic disorder experience their couple relationship in a low socio‐economic setting. Journal of Genetic Counseling 30:3, pages 885-899.
Crossref
Crossref
Petri Embregts. 2021. The New Common. The New Common
59
65
.
Eirik Roos & Erik Søndenaa. (2020) Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees. BMC Health Services Research 20:1.
Crossref
Crossref
Ines Van keer, Noor Seghers, Karla Van Leeuwen & Bea Maes. (2019) Family Activities in Families Including a Young Child with a Significant Cognitive and Motor Developmental Delay: an Ecocultural Perspective. Journal of Developmental and Physical Disabilities 32:1, pages 155-185.
Crossref
Crossref