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REVIEW ARTICLE

Psychotherapy and pharmacotherapy interventions to reduce distress or improve well-being in people with amyotrophic lateral sclerosis: A systematic review

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Pages 293-302 | Received 11 Jan 2015, Accepted 10 May 2015, Published online: 15 Jul 2015

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Cathryn Pinto, Adam W. A. Geraghty, Charlotte McLoughlin, Francesco Pagnini, Lucy Yardley & Laura Dennison. (2023) Experiences of psychological interventions in neurodegenerative diseases: a systematic review and thematic synthesis. Health Psychology Review 17:3, pages 416-438.
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Arianna Palmieri, Johann R. Kleinbub, Francesco Pagnini, Gianni Sorarù & Sabrina Cipolletta. (2021) Empathy-based supportive treatment in amyotrophic lateral sclerosis: A pragmatic study. American Journal of Clinical Hypnosis 63:3, pages 202-216.
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Nicolò Zarotti, Emily Mayberry, Noora Ovaska-Stafford, Fiona Eccles & Jane Simpson. (2021) Psychological interventions for people with motor neuron disease: a scoping review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 1-11.
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Kirsty R. Weeks, Rebecca L. Gould, Christopher Mcdermott, Jessica Lynch, Laura H. Goldstein, Christopher D. Graham, Lance McCracken, Marc Serfaty, Robert Howard, Ammar Al-Chalabi, David White, Mike Bradburn, Tracey Young, Cindy Cooper, Dame Pamela J. Shaw & Vanessa Lawrence. (2019) Needs and preferences for psychological interventions of people with motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:7-8, pages 521-531.
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Peter Fisher, Rachel Dodd, Emma Barrow, Selina Makin & Mary Gemma Cherry. (2019) Predictors of distress in amyotrophic lateral sclerosis: A systematic review. Cogent Psychology 6:1.
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Sam Gnanapragasam, Christopher W. P. Hopkins & Calum D. Moulton. (2016) Can pharmacotherapy improve depressive symptoms in patients with amyotrophic lateral sclerosis? A systematic review of the literature. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 289-291.
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Victoria Edwards, Chiara Vari, Michael Rose, Christopher D. Graham, Nicola O'Connell, Emma Taylor, Lance M. McCracken, Aleksandar Radunovic, Wojtek Rakowicz, Sam Norton & Trudie Chalder. (2023) Participant experiences of guided self-help Acceptance and Commitment Therapy for improving quality of life in muscle disease: a nested qualitative study within the ACTMus randomized controlled trial. Frontiers in Psychology 14.
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Kurt A. Jellinger. (2023) Understanding depression with amyotrophic lateral sclerosis: a short assessment of facts and perceptions. Journal of Neural Transmission.
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Rebecca L. Gould, Charlotte Rawlinson, Ben Thompson, Kirsty Weeks, Rebecca Gossage-Worrall, Hannah Cantrill, Marc A. Serfaty, Christopher D. Graham, Lance M. McCracken, David White, Robert J. Howard, Matt Bursnall, Mike Bradburn, Ammar Al-Chalabi, Richard Orrell, Suresh K. Chhetri, Rupert Noad, Aleksandar Radunovic, Tim Williams, Carolyn A. Young, David Dick, Vanessa Lawrence, Laura H. Goldstein, Tracey Young, John Ealing, Hamish McLeod, Nicola Williams, Helen Weatherly, Richard Cave, Theresa Chiwera, Francesco Pagnini, Cindy Cooper, Pamela J. Shaw, Christopher J. McDermott, Annmarie Burns, Caroline Dancyger, Annily Dee, Susie Henley, Mark Howell, Naoko Kishita, Selina Makin, Emily Mayberry, Mark Oliver, Alexandra Richards, Emma Robinson & Liz Tallentire. (2023) Acceptance and Commitment Therapy for people living with motor neuron disease: an uncontrolled feasibility study. Pilot and Feasibility Studies 9:1.
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Priya Treesa Thomas, Manjusha G Warrier, S Arun, B Bhuvaneshwari, Seena Vengalil, Saraswati Nashi, Veeramani Preethish-Kumar, Kiran Polavarapu, Prakashi Rajaram & Atchayaram Nalini. (2022) An individualised psychosocial intervention program for persons with MND/ALS and their families in low resource settings. Chronic Illness 19:2, pages 458-471.
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Cathryn Pinto, Adam W. A. Geraghty, Francesco Pagnini, Lucy Yardley & Laura Dennison. (2023) How do people with MND and caregivers experience a digital mental health intervention? A qualitative study. Frontiers in Psychiatry 14.
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Vittoria Anita Bilenchi, Paolo Banfi, Francesco Pagnini & Eleonora Volpato. (2022) Psychoeducational groups for people with Amyotrophic Lateral Sclerosis and their caregiver: a qualitative study. Neurological Sciences 43:7, pages 4239-4255.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Rachel Dodd, Peter L. Fisher, Selina Makin, Perry Moore & Mary Gemma Cherry. (2021) The Association Between Maladaptive Metacognitive Beliefs and Emotional Distress in People Living With Amyotrophic Lateral Sclerosis. Frontiers in Psychology 12.
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E.T.h. Kruitwagen-van Reenen, M.W.M. Post, A. van Groenestijn, L.H. van den Berg & J.M.A. Visser-Meily. (2020) Associations between illness cognitions and health-related quality of life in the first year after diagnosis of amyotrophic lateral sclerosis. Journal of Psychosomatic Research 132, pages 109974.
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Clarissa Giebel, Gillian Medley, Sandra Smith, Maria Thornton, Moira Furlong, Michelle Ennis & Carolyn Young. (2019) Communicating psychosocial well-being in motor neurone disease to staff: results from a World Café approach. Quality of Life Research 28:9, pages 2579-2584.
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Linda Clare, Julia C. Teale, Gill Toms, Aleksandra Kudlicka, Isobel Evans, Sharon Abrahams, Laura H. Goldstein, John V. Hindle, Aileen K. Ho, Marjan Jahanshahi, Dawn Langdon, Robin Morris, Julie S. Snowden, Rhys Davies, Ivana Markova, Monica Busse & Jo Thompson-Coon. (2019) Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: A scoping review. NeuroRehabilitation 43:4, pages 443-471.
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Alona Amurao. (2020) MEDICAL ASSISTANCE IN DYING (MAID). Canadian Social Work Review 36:2, pages 143-164.
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Laura Carelli, Federica Solca, Andrea Faini, Fabiana Madotto, Annalisa Lafronza, Alessia Monti, Stefano Zago, Alberto Doretti, Andrea Ciammola, Nicola Ticozzi, Vincenzo Silani & Barbara Poletti. (2018) The Complex Interplay Between Depression/Anxiety and Executive Functioning: Insights From the ECAS in a Large ALS Population. Frontiers in Psychology 9.
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Melanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig & R. Doug McEvoy. (2017) Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis. Palliative and Supportive Care 16:2, pages 228-237.
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Meredith BockY.-Nhy DuongAnthony KimIsabel AllenJennifer MurphyCatherine Lomen-Hoerth. (2017) Progression and effect of cognitive-behavioral changes in patients with amyotrophic lateral sclerosis. Neurology Clinical Practice 7:6, pages 488-498.
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F. Pagnini, A. Marconi, A. Tagliaferri, G. M. Manzoni, R. Gatto, V. Fabiani, G. Gragnano, G. Rossi, E. Volpato, P. Banfi, A. Palmieri, F. Graziano, G. Castelnuovo, M. Corbo, E. Molinari, N. Riva, V. Sansone & C. Lunetta. (2017) Meditation training for people with amyotrophic lateral sclerosis: a randomized clinical trial. European Journal of Neurology 24:4, pages 578-586.
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Ton Fang, Felix Jozsa & Ammar Al-Chalabi. 2017. Nonmotor Parkinson’s: The Hidden Face - Management and the Hidden Face of Related Disorders. Nonmotor Parkinson’s: The Hidden Face - Management and the Hidden Face of Related Disorders 1409 1441 .
Elaine Walklet, Kate Muse, Jane Meyrick & Tim Moss. (2016) Do Psychosocial Interventions Improve Quality of Life and Wellbeing in Adults with Neuromuscular Disorders? A Systematic Review and Narrative Synthesis. Journal of Neuromuscular Diseases 3:3, pages 347-362.
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