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Journal of Medical Economics Volume 16, 2013 - Issue 8
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NEUROLOGY: Original Articles

The direct medical costs of Huntington’s disease by stage. A retrospective commercial and Medicaid claims data analysis

Victoria DivinoIMS Health Alexandria, VAUSA
,
Mitch DeKovenIMS Health Alexandria, VAUSA
,
John H. WarnerCHDI Foundation, Inc. Princeton, NJUSA
,
Joseph GiulianoCHDI Foundation, Inc. Princeton, NJUSA
,
Karen E. AndersonGeorgetown University Washington DCUSA
,
Douglas LangbehnUniversity of Iowa Iowa City, IAUSA
&
Won Chan LeeIMS Health Alexandria, VAUSACorrespondence[email protected]
 show all
Pages 1043-1050 | Accepted 17 Jun 2013, Published online: 05 Jul 2013

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Tu My To, Jamie T. Ta, Anisha M. Patel, Stella Arndorfer, Ibrahim M. Abbass & Rita Gandhy. (2023) Healthcare resource utilization and cost among individuals with late-onset versus adult-onset Huntington’s disease: a claims‑based retrospective cohort study. Journal of Medical Economics 26:1, pages 862-870.
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Anisha M. Patel, Eunice Chang, Caleb Paydar & Sheila R. Reddy. (2023) Healthcare utilization and direct medical costs of Huntington’s disease among Medicaid beneficiaries in the United States. Journal of Medical Economics 26:1, pages 811-820.
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Alex Exuzides, Tu My To, Ibrahim M. Abbass, Jamie T. Ta, Anisha M. Patel, Andy Surinach, Rebecca L. M. Fuller & Jia Luo. (2022) Healthcare resource utilization and costs in individuals with Huntington’s disease by disease stage in a US population. Journal of Medical Economics 25:1, pages 722-729.
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Eileen Shaw, Michelle Mayer, Paul Ekwaru, Suzanne McMullen, Erin Graves, Jennifer W. Wu, Nathalie Budd, Bridget Maturi, Tara Cowling & Tiago A. Mestre. (2022) Epidemiology and economic burden of Huntington’s disease: a Canadian provincial public health system perspective. Journal of Medical Economics 25:1, pages 212-219.
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Alex Exuzides, Sheila R. Reddy, Eunice Chang, Jamie T. Ta, Anisha M. Patel, Caleb Paydar & George J. Yohrling. (2021) Healthcare utilization and cost burden of Huntington’s disease among Medicare beneficiaries in the United States. Journal of Medical Economics 24:1, pages 1327-1336.
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Sarah L Mason & Roger A Barker. (2016) Novel targets for Huntington’s disease: future prospects. Degenerative Neurological and Neuromuscular Disease 6, pages 25-36.
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Articles from other publishers (24)

Idaira Rodríguez‐Santana, Tiago Mestre, Ferdinando Squitieri, Rosa Willock, Astri Arnesen, Alison Clarke, Barbara D'Alessio, Alex Fisher, Rebecca Fuller, Jamie L. Hamilton, Hayley Hubberstey, Cath Stanley, Louise Vetter, Michaela Winkelmann, Maria Doherty, Yunchou Wu, Alan Finnegan & Samuel Frank. (2022) Economic burden of Huntington disease in Europe and the USA: Results from the Huntington's Disease Burden of Illness study. European Journal of Neurology 30:4, pages 1109-1117.
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Adys MendizabalJennifer M. DiazArturo V. BustamanteYvette Bordelon. (2023) Health Services in Huntington Disease. Neurology Clinical Practice 13:1.
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Hannah Furby, Suzanne Moore, Anna-Lena Nordstroem, Richard Houghton, Dimitra Lambrelli, Sophie Graham, Per Svenningsson & Åsa Petersén. (2022) Comorbidities and clinical outcomes in adult- and juvenile-onset Huntington’s disease: a study of linked Swedish National Registries (2002–2019). Journal of Neurology 270:2, pages 864-876.
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Victor Sung, Sanjay Gandhi, Victor Abler, Brian Davis, Debra Irwin, Karen Anderson & Ravi Iver. (2023) Retrospective Analysis of Healthcare Resource Use, Treatment Patterns, and Treatment-related Events in Patients with Huntington’s Disease–associated Chorea Initiated on Tetrabenazine. Journal of Health Economics and Outcomes Research, pages 15-24.
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Yael Barer, Rinat Ribalov, Ayelet Yaari, Ron Maor, Qais Arow, John Logan, Gabriel Chodick & Tanya Gurevich. (2023) Healthcare utilization, costs, and epidemiology of Huntington’s disease in Israel. Clinical Parkinsonism & Related Disorders 9, pages 100208.
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Marleen R. van Walsem, Jan C. Frich, Monica Gómez Castañeda, Emilie Isager Howe, Lasse Pihlstrøm, Nada Andelic & Eline Aas. (2022) Health related quality of life, service utilization and costs for patients with Huntington’s disease in Norway. BMC Health Services Research 22:1.
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Idaira Rodriguez SantanaSamuel FrankMaria DohertyRosa WillockJamie HamiltonHayley HubbersteyCath StanleyLouise VetterMichaela WinkelmannRicardo E. DolmetschNanxin LiSarah RatschTalaha M. Ali. (2022) Humanistic Burden of Huntington Disease. Neurology Clinical Practice 12:6.
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Tu My ToAlex ExuzidesIbrahim M AbbassAnisha M PatelJamie T TaAndy SurinachRebecca L M FullerJia Luo. (2022) Health care resource utilization and costs among individuals with vs without Huntington disease in a US population. Journal of Managed Care & Specialty Pharmacy 28:11, pages 1228-1239.
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Alicia A. Christensen, Pamela B. Parker, Alyssa R. Hersh, Aaron B. Caughey & Sacha A. Krieg. (2022) In vitro fertilization with preimplantation genetic testing for monogenetic diseases versus unassisted conception with prenatal diagnosis for Huntington disease: a cost-effectiveness analysis. Fertility and Sterility 118:1, pages 56-64.
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Medo Gutic, Ardea Milidrag, Azra Gutic Cikotic, Milos Danilovic, Teodora Safiye, Ivana Bulatovic, Milos N. Milosavljevic & Slobodan Jankovic. (2021) Rare Neurological Diseases: an Overreview of Pathophysiology, Epidemiology, Clinical Features and Pharmacoeconomic Considerations in the Treating. Serbian Journal of Experimental and Clinical Research 0:0.
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Huiyi Ke, Xi Cao, Yanyan Song & Li Cao. (2021) Health services utilization of Chinese patients with Huntington’s disease: a cross-sectional study. BMC Health Services Research 21:1.
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Natalie Gavrielov-Yusim, Yael Barer, Michael Martinec, Athanasios Siadimas, Spyros Roumpanis, Hannah Furby, Inbal Goldshtein, Asif Jan & Preciosa M. Coloma. (2021) Huntington’s Disease in Israel: A Population-Based Study Using 20 Years of Routinely-Collected Healthcare Data. Journal of Huntington's Disease 10:4, pages 469-477.
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Marisola Xhelili Ciaccio & Drew Dumaine. 2021. Applying Nonideal Theory to Bioethics. Applying Nonideal Theory to Bioethics 397 415 .
Lianna Ishihara, David Oliveri & Edward J. Wild. (2020) Neuropsychiatric comorbidities in Huntington’s and Parkinson’s Disease: A United States claims database analysis. Annals of Clinical and Translational Neurology 8:1, pages 126-137.
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Mark I. Evans & Shara M. Evans. (2020) Prenatal Testing or Screening?. Maternal-Fetal Medicine Publish Ahead of Print.
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Celeste C. Eno, Stacey K. Barton, Naghmeh Dorrani, Stephen D. Cederbaum, Joshua L. Deignan & Wayne W. Grody. (2019) Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers. Molecular Genetics & Genomic Medicine 8:1.
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Gustavo Silva-Paredes, Rosa M. Urbanos-Garrido, Miguel Inca-Martinez, Danielle Rabinowitz & Mario R. Cornejo-Olivas. (2019) Economic burden of Huntington’s disease in Peru. BMC Health Services Research 19:1.
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Christoph Ohlmeier, Kai-Uwe Saum, Wolfgang Galetzka, Dominik Beier & Holger Gothe. (2019) Epidemiology and health care utilization of patients suffering from Huntington’s disease in Germany: real world evidence based on German claims data. BMC Neurology 19:1.
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Tobore Onojighofia Tobore. (2019) Towards a comprehensive understanding of the contributions of mitochondrial dysfunction and oxidative stress in the pathogenesis and pathophysiology of Huntington's disease. Journal of Neuroscience Research 97:11, pages 1455-1468.
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Andrew P. LiebermanVikram G. Shakkottai & Roger L. Albin. (2019) Polyglutamine Repeats in Neurodegenerative Diseases. Annual Review of Pathology: Mechanisms of Disease 14:1, pages 1-27.
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Victor W. Sung, Sanjay K. Gandhi, Victor Abler, Brian Davis, Debra E. Irwin, Karen E. Anderson & Ravi G. Iyer. (2018) Retrospective Analysis of Healthcare Resource Use, Treatment Patterns, and Treatment-related Events in Patients with Huntington’s Disease–associated Chorea Initiated on Tetrabenazine. Journal of Health Economics and Outcomes Research 6:1, pages 15-24.
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Mary C. Edmondson & Lavonne Goodman. 2017. Huntington Disease. Huntington Disease 167 178 .
C. Jones, M. Busse, L. Quinn, H. Dawes, C. Drew, M. Kelson, K. Hood, A. Rosser & R. T. Edwards. (2016) The societal cost of Huntington's disease: are we underestimating the burden?. European Journal of Neurology 23:10, pages 1588-1590.
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J.D. Schulman & H.J. Stern. (2015) Low utilization of prenatal and pre-implantation genetic diagnosis in Huntington disease?-?risk discounting in preventive genetics. Clinical Genetics 88:3, pages 220-223.
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