Estimates of lung and pancreatic cancer survival in Sweden with and without inclusion of death certificate initiated (DCI) cases

Figures & data

Figure 1. Project overview: lung and pancreatic cancer cases reported to the Swedish Cancer Register (middle column). Flow-chart: identification of Death Certificate Notified cases (DCNs) and assessment of eligibility for registration in the Swedish Cancer Register (left and right columns).

Table 1. Number and proportion of death certificate notified (DCN) lung cancer cases eligible for registration in the Cancer Register, by healthcare region and by supporting discharge information of a lung cancer diagnosis in the Patient Register.

	Healthcare region				Lung cancer diagnosis found in the Patient Register				Total
	Uppsala-Örebro		West		Yes		No
Number of DCNs	217		159		263		113		376
Eligible for registration in the Cancer Register (%)
Yes	179	(82.5)	119	(74.8)	241	(91.6)	57	(50.4)	298	(79.3)
Date of diagnosis found	177	(81.6)	119	(74.8)	240	(91.3)	56	(49.6)	296	(78.7)
Discovered at autopsy	2	(0.9)	0	(0.0)	1	(0.4)	1	(0.9)	2	(0.5)
No	38	(17.5)	40	(25.2)	22	(8.4)	56	(49.6)	78	(20.7)
Metastasis	17	(7.8)	6	(3.8)	9	(3.4)	14	(12.4)	23	(6.1)
No medical record found	1	(0.5)	0	(0.0)	0	(0.0)	1	(0.9)	1	(0.3)
No support in medical record	11	(5.1)	29	(18.2)	10	(3.8)	30	(26.5)	40	(10.6)
Other	9	(4.1)	5	(3.1)	3	(1.1)	11	(9.7)	14	(3.7)

Figure 2. (a) Lung cancer: overall survival by mode of registration and assessment of registrability. (b) Pancreatic cancer: overall survival by mode of registration and assessment of registrability.

Table 2. Characteristics and one-year survival of lung cancer cases: (1) reported to the Cancer Register, (2) death certificate notified (DCN) cases eligible for registration in the Cancer Register (death certificate initiated, DCI), (3) death certificate notified (DCN) cases with suppporting discharge information in the Patient Register.

	(1) Lung cancer in the regional cancer registers, dx 2013		(2) DCNs eligible for cancer registration with date of diagnosis (DCI)		(3) DCNs with a lung cancer diagnosis in the Patient Register (DCI)
	N = 1 511		N = 296		N = 263
Sex (%)
Male	752	(49.8)	152	(51.4)	140	(53.2)
Female	759	(50.2)	144	(48.6)	123	(46.8)
Age at diagnosis
Median (IQR)	70	(65-77)	78	(71-84)	78	(70-84)
1-year overall survival (OS)
OS (95% CI)	0.454	(0.430-0.480)	0.196	(0.156-0.247)	0.144	(0.108-0.194)

Table 3. Number and proportion of death certificate notified (DCN) pancreatic cancer cases eligible for registration in the Cancer Register, by assessement by (A) trace-back and review of medical records, and (B) by supporting discharge information of a pancreatic cancer diagnosis in the Patient Register.

	(A) Trace-back and review of medical records				(B) Pancreatic cancer diagnosis found in the Patient Register				Total
	Uppsala-Örebro		West		Yes		No
Number of DCNs	196		119		266		49		315
Eligible for registration in the Cancer Register
Yes	177	(90.3)	90	(75.6)	238	(89.5)	29	(59.2)	267	(84.8)
Date of diagnosis found	173	(88.3)	90	(75.6)	235	(88.3)	28	(57.1)	263	(83.5)
Discovered at autopsy	2	(1.0)	0	(0.0)	1	(0.4)	1	(2.0)	2	(0.6)
Date of diagnosis unavailable	2	(1.0)	0	(0.0)	2	(0.8)	0	(0.0)	2	(0.6)
No	19	(9.7)	29	(24.4)	28	(10.5)	20	(40.8)	48	(15.2)
No medical record found	2	(1.0)	0	(0.0)	1	(0.4)	1	(2.0)	2	(0.6)
No support in medical record	17	(8.7)	29	(24.4)	27	(10.2)	19	(38.8)	46	(14.6)

Table 4. Characteristics and one-year survival of pancreatic cancer cases: (1) reported to the Cancer Register, (2) death certificate notified (DCN) cases eligible for registration in the Cancer Register (death certificate initiated, DCI), (3) death certificate notified (DCN) cases with suppporting discharge information in the Patient Register.

	(1) Pancreatic cancer in the regional cancer registers, dx 2013		(2) DCNs eligible for cancer registration with date of diagnosis (DCI)		(3) DCNs with a pancreatic cancer diagnosis in the Patient Register (DCI)
	N = 511		N = 263		N = 266
Sex (%)
Male	263	(51.5)	117	(44.5)	125	(47.0)
Female	248	(48.5)	146	(55.5)	141	(53.0)
Age at diagnosis
Median (IQR)	70	(64-77.5)	79	(70.5-85.5)	78	(69-85)
1-year overall survival (OS)
OS (95% CI)	0.290	(0.253-0.332)	0.129	(0.094-0.177)	0.132	(0.097-0.179)