https://orcid.org/0000-0001-5107-4550
References
- Robinson D, Sankila R, Hakulinen T, et al. Interpreting international comparisons of cancer survival: the effects of incomplete registration and the presence of death certificate only cases on survival estimates. Eur J Cancer. 2007;43(5):909–913.
- Pukkala E, Engholm G, Hojsgaard Schmidt LK, et al. Nordic Cancer Registries - an overview of their procedures and data comparability. Acta Oncol. 2018;57(4):440–455.
- Eden M, Harrison S, Griffin M, et al. Impact of variation in cancer registration practice on observed international cancer survival differences between International Cancer Benchmarking Partnership (ICBP) jurisdictions. Cancer Epidemiol. 2019;58:184–192.
- Engholm G, Ferlay J, Christensen N, et al. NORDCAN-a Nordic tool for cancer information, planning, quality control and research. Acta Oncol. 2010;49(5):725–736.
- Ludvigsson JF, Otterblad-Olausson P, Pettersson BU, et al. The Swedish personal identity number: possibilities and pitfalls in healthcare and medical research. Eur J Epidemiol. 2009;24(11):659–667.
- Brooke HL, Talback M, Hornblad J, et al. The Swedish cause of death register. Eur J Epidemiol. 2017;32(9):765–773.
- Swedish National Board of Health and Welfare. Available from: https://www.socialstyrelsen.se/en/statistics-and-data/registers/register-information/swedish-cancer-register.
- Ludvigsson JF, Andersson E, Ekbom A, et al. External review and validation of the Swedish national inpatient register. BMC Public Health. 2011;11:450.
- R Core Team. R: A language and environment for statistical computing. R Foundation for Statistical Computing. Vienna; 2019. Available from: https://www.R-project.org/.
- Ludvigsson JF, Almqvist C, Bonamy AK, et al. Registers of the Swedish total population and their use in medical research. Eur J Epidemiol. 2016;31(2):125–136.
- Bray F, Parkin DM. Evaluation of data quality in the cancer registry: principles and methods. Part I: comparability, validity and timeliness. Eur J Cancer. 2009;45(5):747–755.
- Mattsson B, Wallgren A. Completeness of the Swedish Cancer Register. Non-notified cancer cases recorded on death certificates in 1978. Acta Radiol Oncol. 1984;23(5):305–313.
- Barlow L, Westergren K, Holmberg L, et al. The completeness of the Swedish Cancer Register: a sample survey for year 1998. Acta Oncol. 2009;48(1):27–33.
- Kilander C, Mattsson F, Ljung R, et al. Systematic underreporting of the population-based incidence of pancreatic and biliary tract cancers. Acta Oncol. 2014;53(6):822–829.
- Lambe M, Eloranta S, Wigertz A, et al. Pancreatic cancer; reporting and long-term survival in Sweden. Acta Oncol. 2011;50(8):1220–1227.
- Tettamanti G, Ljung R, Ahlbom A, et al. Central nervous system tumor registration in the Swedish Cancer Register and Inpatient Register between 1990 and 2014. Clin Epidemiol. 2019;11:81–92.
- Nilsson M, Tavelin B, Axelsson B. A study of patients not registered in the Swedish Cancer Register but reported to the Swedish Register of Palliative Care 2009 as deceased due to cancer. Acta Oncol. 2014;53(3):414–419.
- Fest J, Ruiter R, van Rooij FJ, et al. Underestimation of pancreatic cancer in the national cancer registry - Reconsidering the incidence and survival rates. Eur J Cancer. 2017;72:186–191.