Clinicians and individuals with acquired brain injury perspectives about factors that influence mobility: creating a core set of mobility domains among individuals with acquired brain injury

Figures & data

Table 1. Focus group questions.

Clinicians guiding questions
(1)	What are the questions that you have in relation to your practice delivering rehabilitation to individuals with acquired brain injury (ABI)?
(2)	In general, what are the areas that you would like to improve either in your individual practice or rehabilitation among individuals with ABI?
(3)	How do you define mobility? [The focus group members will agree on a definition on mobility that will be read back to the focus group participants (i.e. clinicians)]
(4)	What are the important factors that you believe influence mobility?
(5)	What do you feel you need to evaluate to have a good picture of a person’s mobility while the person with ABI in rehabilitation (inpatient/outpatient)?
(6)	What do you feel you need to evaluate to have a good picture of a person’s mobility while the person with ABI in community?
(7)	From the inventory, how did you choose these measures? Is it capturing all aspects of mobility?
(8)	What is your perception in regards to mobility measures that were captured from the literature and were not proposed in the inventory?
(9)	Consider mobility in rehabilitation setting; what do you see are the challenges of using outcome measures in this environment and what can be done to make it easier to use them?
(10)	Now consider mobility in the community; What do you see are the challenges of using outcome measures in this environment and what can be done to make it easier to use them?
(11)	From your experience regarding the use of mobility measures, how do you use the scores to guide the development of the intervention plan?
Individuals with acquired brain injury guiding questions
(1)	As an individual with stroke or traumatic brain injury, what are the questions that you have in relation to your condition and to care you received since you have your incidence. (This can include care at the hospital, rehabilitation, or with community care providers including your family doctor)?
(2)	What are the areas that you would like to improve in rehabilitation health care system (if any) to get better care?
(3)	What has been your experience in terms of your daily activities, including work or school, or in participating in social activities with family and friends?
(4)	Were you involved as much as you wanted to be in decisions about your care and treatment?
(5)	How do you define mobility? [The focus group members will discuss a definition of mobility that will be read back to the focus group participants (i.e. individuals with ABI)]
(6)	What are the important factors (e.g. cognition, and environment) that you believe influence mobility?
(7)	As someone lives with stroke or traumatic brain injury, what do you feel needs to be measured or monitored in relation to mobility while someone is in the hospital?
(8)	As someone lives with stroke or traumatic brain injury, what do you feel needs to be measured or monitored in relation to mobility in community?
(9)	Please explain how rehabilitation care prepared you to return home/ back to your work (if relevant)/ school (if relevant), and community?
(10)	Consider mobility in rehabilitation setting; what are the challenges that you face in this environment and what can be done to overcome these challenges?
(11)	Now consider mobility in the community; what are the challenges that you face in this environment and what can be done to overcome these challenges?

Table 2. Characteristics of clinicians.

Variables	Focus groups (n = 3); sample size: (n = 17) n (%)
Age (years)
20–39	6 (35)
40–59	11 (65)
Age (M ± SD) years	41.35 ± 10.28 years
Sex
Male	1 (6)
Female	16 (94)
Affiliated rehabilitation sites of CRIR
CRDM	4 (23)/Stroke care
IURDPM	3 (17)/Stroke care
JRH	10 (59)/TBI care
Profession
Physiotherapists	6 (35)
Occupational therapists	6 (35)
Speech therapists	1 (6)
Psychologist	2 (12)
Social worker	2 (12)
Work position
Full time/Permanent	13 (76)
Full time/Temporary	1 (6)
Part time/Permanent	2 (12)
Part time/Temporary	1 (6)
Work settings
Primary care	2 (12)
Secondary care	10 (59)
Tertiary care	5 (29)
Years of work experience (M ± SD) years
Practice (in general)	15.79 ± 8
Practice with stroke	11.89 ± 7.04
Practice with TBI	10.82 ± 7.05

ABI: acquired brain injury; CRIR: Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal; CRDM: Constance Lethbridge Rehabilitation Centre; IURDPM: Institut universitaire sur la eadaptation en déficience physique de Montréal; JRH: Jewish Rehabilitation Hospital; TBI: traumatic brain injury.

Table 3. Characteristics of individuals with acquired brain injury.

Variables	Individuals with stroke Focus group (n = 1); sample size (n = 5) n (%)	Individuals with TBI Focus group (n = 1); sample size (n = 5) n (%)
Age (years)
20–39	1 (20)	2 (40)
40–59	2 (40)	3 (60)
60–79	2 (20)
Age (M ± SD) years	58.4 ± 15.69	43 ± 17.24
Sex
Male	4 (80)	5 (100)
Female	1 (20)
Affiliated rehabilitation sites of CRIR
CRDM	5 (100)	5 (100)
Education
Secondary school	2 (40)
Bachelor degree	3 (60)	5 (100)
Marital status
Married	3 (60)	2 (40)
Divorced	1 (20)	1 (20)
Single	1 (20)	2 (40)
Employment
Full time worker	1 (20)	2 (40)
Part time worker		1 (20)
Unemployment	2 (40)
Retired	2 (40)	2 (40)
Severity of injury
Mild	2 (40)	4 (80)
Moderate	3 (60)	1 (20)
Severe
Number of years living with ABI
≤6 months	1 (20)	1 (20)
6 months–1 year		2 (40)
1–2 years	4 (80)	2 (40)
Number of years (range)	9 months–3 years	6 months–2 years
Type of focus group	Face-to-face	Virtual-conferencing
Type of technology used
Iphone/ipad	Not applicable	2 (40)
Desktop		2 (40)
Laptop		1 (20)

ABI: acquired brain injury; CRIR: Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal; CRDM: Constance Lethbridge Rehabilitation Centre.

Data availability statement

Data available within the article.