Meet and eat, an interdisciplinary group intervention for patients with myotonic dystrophy about healthy nutrition, meal preparation, and consumption: a feasibility study

Figures & data

Figure 1. Process of feasibility study, explained per step, using the design-based research method.

Table 1. Aims of the intervention Meet and Eat.

Aim of the Meet and Eat intervention: the participant is aware of disease-related consequences regarding nutrition, meal preparation and consumption and possibly change eating behavior

Sub-goals;

1) Regarding nutrition:

The participant is aware of healthy nutrition in general

The participant knows about the most common symptoms concerning nutrition and DM1

The participant can adjust his or her dietary intake to his/her dietary energy needs and fiber needs

The participant knows how to prepare meals easily but healthy

Family members are aware of healthy nutrition and needs in relation to DM1

2) Regarding swallowing and food consistency

The participant is aware of posture and its effect on swallowing and choking

The participant chooses consistencies of foods and drinks matching his or her needs

The family member advises consistencies matching the needs of the participant

3) Regarding planning and preparing meals

The participant takes an active role in planning and deciding what to eat

The participant applies energy conservation techniques on meal preparation

The patient is informed about techniques and tools to handle objects for food preparation

Family is aware of techniques and tools to support an easier way of cooking

Figure 2. Facilitators and content of group intervention Meet and Eat.

Table 2. Results COPM, mean performance and satisfaction scores per participant and difference before and after intervention.

Participant	Mean performance t0	Mean performance t1	Difference performance	Mean satisfaction t0	Mean satisfaction t1	Difference satisfaction
1	5.5	6.5	1.0	4.3	5.5	1.2
2	6.8	6.0	−0.8	7.4	6.0	−1.4
3	6.0	8.0	2.0	5.8	8.0	2.2
4	4.3	6.3	2.0	6.7	7.3	0.6
5	6.0	6.0	0.0	4.7	5.7	1.0

t0 = Baseline measurement before intervention, t1 = Follow up measurement after intervention.