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Abstract
This article reports findings from a small-scale project that employs a two-stage approach. Informed by the rights of minority ethnic groups to self-determination, the first aspect of the study focuses on the experiences of mothers of children with an autistic spectrum disorder (ASD) from two ethnically diverse groups: Irish Traveller and non-Traveller communities. The second aspect seeks to give voice to children with ASD by including them in discussions using a range of research techniques and tools. Findings suggest that, irrespective of ethnicity, parental concerns are frequently dismissed by health professionals, school choices are made by educators and family lifestyle is profoundly affected when parenting a child with ASD. Engaging young children with ASD in discussion about their school-related likes and dislikes is not without challenge. Nonetheless, we argue that the challenges encountered in involving minority groups in research are far outweighed by their need for self-expression and self-determination. As Elle, a child with ASD (aged 7.8 years), observed, ‘No one asked me before. I don't know if they are listening but I liked talking’.