Unheard voices: the views of traveller and non-traveller mothers and children with ASD

References

• AITHS (All Ireland Traveller Health Study) 2010. Dublin: Pavee Point Traveller's Centre. ISBN 1-897598-32-7.
   Google Scholar
• Bagatell, N. 2007. “Orchestrating Voices: Autism, Identity and the Power of Discourse.” Disability & Society 22 (4): 413–426. doi:10.1080/09687590701337967.
   Web of Science ®Google Scholar
• Baio, J. 2012. “Prevalence of Autism Spectrum Disorders: Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008.” Morbidity and Mortality Weekly Report. Surveillance Summaries 61 (3): 1–19.
   Google Scholar
• Boyd, B. A., S. L. Odom, B. P. Humphreys, and A. M. Sam. 2010. “Infants and Toddlers with Autism Spectrum Disorder: Early Identification and Early Intervention.” Journal of Early Intervention 32 (2):75–98. doi:10.1177/1053815110362690.
   Web of Science ®Google Scholar
• Bronfenbrenner, U. 1979. The Ecology of Human Development. Cambridge, MA: Harvard University Press.
   Google Scholar
• Bronfenbrenner, U. 2005. “The Bioecological Theory of Human Development.” In Making Human Beings Human: Bioecological Perspectives on Human Development, edited by U. Bronfenbrenner, 3–15. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Carlson, H. M., and C. M. Casavant. 1995. “Education of Irish Traveller Children: Some Social Issues.” The Irish Journal of Psychology 16 (2): 100–116. doi:10.1080/03033910.1995.10558048.
   Web of Science ®Google Scholar
• Cassidy, A., R. McConkey, M. Truesdale-Kennedy, and E. Slevin. 2008. “Preschoolers with Autism Spectrum Disorders: The Impact on Families and the Supports Available to Them.” Early Child Development and Care 178 (2): 115–128. doi:10.1080/03004430701491721.
   Google Scholar
• Central Statistics Office Ireland. 2011. The Statistical Yearbook of Ireland 2011. http://www.cso.ie/en/releasesandpublications/statisticalyearbookofireland/statisticalyearbookofireland2011edition/.
   Google Scholar
• Clark, A., S. McQuail, and P. Moss. 2003. Exploring the Field of Listening To and Consulting With Young Children. Research report RR445. Nottingham: Department for Education and Skills.
   Google Scholar
• Commission for Racial Equality. 2006. Common Ground: Equality, Good Relations and Sites for Gypsies and Irish Travellers. Report of a CRE inquiry in England and Wales. London: CRE.
   Google Scholar
• Davis, N. O., & A. S. Carter. 2008. “Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics.” Journal of Autism and Developmental Disorders 38 (7): 1278–1291. doi:10.1007/s10803-007-0512-z.
   PubMed Web of Science ®Google Scholar
• Department of Education (NI). 2009. Every School a Good School – The Way Forward for Special Educational Needs and Inclusion. Bangor: Department of Education.
   Google Scholar
• Dolby, R., and B. Swan. 2003. “Strengthening Relationships between Early Childhood Staff, High-needs Children and Their Families in the Preschool Setting.” Developing Practice: The Child, Youth and Family Work Journal 6 (18): 18–26.
   Google Scholar
• Dolby, R., J. A. Ungerer, L. J. Harrison, G. Cooper, and M. Aarts. 2006–2009. Attachment Matters: From Relationships to Learning at Preschool – Research Project. Sydney: Christie Foundation and K.U. Children's Services.
   Google Scholar
• DSM-IV-TR. 2000. Diagnostic and Statistical Manual of Mental Disorders. 4th ed. (Text Revision). Washington, DC: American Psychiatric Publishing.
   Google Scholar
• Duck, S. 2012. The Basics of Communication: A Relational Perspective. 2nd ed. Thousand Oaks, CA: Sage.
   Google Scholar
• Ebisch, S. J., T. Aureli, D. Bafunno, D. Cardone, G. L. Romani, and A. Merla. 2012. “Mother and Child in Synchrony: Thermal Facial Imprints of Autonomic Contagion.” Biological Psychology 89 (1): 123–129. doi:10.1016/j.biopsycho.2011.09.018.
   PubMed Web of Science ®Google Scholar
• Education Act. 1996. c56. Department for Education. Crown Copyright.
   Google Scholar
• ETI (Education and Training Inspectorate) 2000. EOTAS/SSPPR. Bangor: ETI.
   Google Scholar
• Franklin, A., and P. Sloper. 2009. “Supporting the Participation of Disabled Children and Young People in Decision-making.” Children and Society 23 (1): 3–15. doi:10.1111/j.1099-0860.2007.00131.x.
   Web of Science ®Google Scholar
• Freeman, M. 2007. “Why it Remains Important to Take Children's Rights Seriously.” The International Journal of Children's Rights 15 (1): 5–23. doi:10.1163/092755607X181711.
   Google Scholar
• Frost, L., and A. Bondy. 1996. PECS: The Picture Exchange Communication System (training manual). Newark, DE: Pyramid Educational Consultants Inc.
   Google Scholar
• Glover, G., F. Evison, and E. Emerson. 2011. How Rates of Learning Disabilities and Autism in Children Vary Between Areas. Improving Health and Lives: Learning Disability Observatory. Department of Health. IHAL-2011-2007.
   Google Scholar
• Goodman, S. H. 2007. “Depression in Mothers.” Annual Review of Clinical Psychology 3 (1): 107–135. doi:10.1146/annurev.clinpsy.3.022806.091401.
   PubMed Web of Science ®Google Scholar
• Gray, C. 2009. “A Qualitatively Different Experience: Mainstreaming Pupils with a Visual Impairment in Northern Ireland.” European Journal of Special Needs Education 24 (2): 169–182. doi:10.1080/08856250902793644.
   Google Scholar
• Gray, C. 2012. “Gate-keepers and Ethics: Barriers to Work and Research involving Vulnerable Groups.” In Ethics in Early Years, edited by I. Palaiologou, 64–83. London: Sage.
   Google Scholar
• Gray, C., and E. Winter. 2011. “The Ethics of Participatory Research involving Young Children with Special Needs.” In Researching Young Children's Perspectives: Ethics and Dilemmas of Educational Research with Children, edited by D. Harcourt, B. Perry, and T. Waller, 26–37. Oxon: Routledge.
   Google Scholar
• Hayes, S. A., and S.L. Watson. 2013. “The Impact of Parenting Stress: A Meta-analysis of Studies Comparing the Experience of Parenting Stress in Parents of Children with and without Autism Spectrum Disorder.” Journal of Autism and Developmental Disorders 43 (3): 629–642. doi:10.1007/s10803-012-1604-y.
   PubMed Web of Science ®Google Scholar
• Hill, E. L., and U. Frith. 2003. “Understanding Autism: Insights from Mind and Brain.” Philosophical Transactions of the Royal Society B: Biological Sciences 358 (1430): 281–289. doi:10.1098/rstb.2002.1209.
   PubMed Web of Science ®Google Scholar
• Jarman, N. 2009. Prejudice and Tolerance in Northern Ireland. ARK Social and Political archive: No. 63.
   Google Scholar
• Jones, A. P., and N. Frederickson. 2010. “Multi-informant Predictors of Social Inclusion for Students with Autism Spectrum Disorders Attending Mainstream School.” Journal of Autism and Developmental Disorders 40 (9): 1094–1103. doi:10.1007/s10803-010-0957-3.
   PubMed Web of Science ®Google Scholar
• Lane, P., S. Spencer, and M. McCready. 2012. Perspectives on Ageing in Gypsy Families. York: Joseph Rowntree Society. REF: 2684. ISSN: 0958-3804.
   Google Scholar
• Leith, H., and C. Gray. 2006. “Gender Stereotyping in the Classroom: Perpetuating the Gender Divide.” In Devolution and Pluralism in Education in Northern Ireland, edited by C. Donnelly, P. McKeown, and B. Osborne, 79–91. Manchester: Manchester University Press.
   Google Scholar
• Levinson, M. P. 2005. “The Role of Play in the Formation and Maintenance of Cultural Identity: Gypsy Children in Home and School Contexts.” Journal of Contemporary Ethnography 34 (5): 499–532. doi:10.1177/0891241605279018.
   Web of Science ®Google Scholar
• Levinson, M. P., and A. C. Sparkes. 2003. “Gypsy Masculinities and the School-home Interface: Exploring Contradictions and Tensions.” British Journal of Sociology of Education 24 (5): 587–603. doi:10.1080/0142569032000127152.
   Web of Science ®Google Scholar
• Lindsay, G., S. Pather, and S. Strand. 2006. Special Educational Needs and Ethnicity: Issues of Over- and Under-representation. RR 757. Nottingham: DfES.
   Google Scholar
• Lovaas, O. I. 1987. “Behavioural Treatment and Normal Education and Intellectual Functioning in Young Autistic Children.” Journal of Consulting and Clinical Psychology 155: 3–9. doi:10.1037/0022-006X.55.1.3.
   Web of Science ®Google Scholar
• McGaughey, F. 2011. Irish Travellers and Roma: Shadow Report. Dublin: Pavee Point Traveller's Centre.
   Google Scholar
• McLeod, A. 2008. Listening to Children: A Practitioner's Guide. London: Jessica Kingsley Publishers.
   Google Scholar
• Montes, G., and J. S. Halterman. 2007. “Bullying among Children with Autism and the Influence of Co-morbidity with ADHD: A Population-based Study.” Ambulatory Pediatrics 7 (3): 253–257. doi:10.1016/j.ambp.2007.02.003.
   PubMedGoogle Scholar
• Moss, P., A. Clark, and A. Kjørholt. 2005. “Introduction.” In Beyond Listening: Children's Perspectives on Early Childhood Services, edited by A. Clark, A. Kjørholt, and P. Moss, 1–16. Bristol: Policy Press.
   Google Scholar
• Noterdaeme, M., H. Amorosa, K. Mildenberger, S. Sitter, and F. Minow. 2001. “Evaluation of Attention Problems in Children with Autism and Children with a Specific Language Disorder.” European Child & Adolescent Psychiatry 10 (1): 58–66. doi:10.1007/s007870170048.
   PubMed Web of Science ®Google Scholar
• “Number of Children with Autism Soars by More than 50 Per cent in Five Years.” Telegraph, 22 March 2012. Accessed April 4, 2013. http://www.telegraph.co.uk/health/9160322/Number-of-children-with-autism-soars-by-more-than-50-per-cent-in-five-years.html.
   Google Scholar
• Ozonoff, S., G. S. Young, M. B. Steinfeld, M. M. Hill, and I. Cook. 2009. “How Early Do Parent Concerns Predict Later Autism Diagnosis?” Journal of Developmental and Behavioural Pediatrics 30 (5): 367–375. doi:10.1097/DBP.0b013e3181ba0fcf.
   PubMed Web of Science ®Google Scholar
• Parekh Report. 2000. The Future of Multi-ethnic Britain. Report commissioned by the Runnymede Trust. London: Profile Books Ltd.
   Google Scholar
• Pascal, C., and T. Bertram. 2009. “Listening to Young Citizens: The Struggle to Make Real a Participatory Paradigm in Research with Young Children.” European Early Childhood Education Journal 17 (2): 249–262. doi:10.1080/13502930902951486.
   Web of Science ®Google Scholar
• Power, C. 2004. Room to Roam: England's Irish Travellers. Funded by the Community Fund and published by a consortium led by the Action Group for Irish Youth. Made available on the Statewatch website. Accessed March 15, 2012. http://www.statewatch.org/news/2005/feb/Room-to-Roam-England's-Irish-Travellers.pdf.
   Google Scholar
• Race Relations Order (Northern Ireland). 1997. No. 869 (N.I. 6). Crown Copyright.
   Google Scholar
• Race Relations Order (Amendment) Regulations (Northern Ireland). 2003. No. 341. Crown Copyright.
   Google Scholar
• Reynolds, M., D. McCartan, and D. Knipe. 2003. “Traveller Culture and Lifestyle as Factors Influencing Children's Integration into Mainstream Secondary Schools in West Belfast.” International Journal of Inclusive Education 7 (4): 403–414. doi:10.1080/1360311032000110972.
   Google Scholar
• Rogers, S.J., and H. Lewis. 1989. “An Effective Day-treatment Model for Young Children with Pervasive Developmental Disorders.” Journal of the American Academy of Child and Adult Psychiatry 28 (2): 207–214. doi:10.1097/00004583-198903000-00010.
   PubMed Web of Science ®Google Scholar
• Rust, L. 1993. “Parents and Children Shopping Together: A New Approach to the Qualitative Analysis of Observational Data.” Journal of Advertising Research 33 (4): 65–70.
   Web of Science ®Google Scholar
• Ryder, A. 2012. Hearing the Voice of Gypsies and Travellers: The History, Development and Challenges of Gypsy and Traveller Tenants and Residents Associations. Working Paper 84. TSRC Informing Civil Society: Third Sector Research Centre.
   Google Scholar
• SENDA (Special Educational Needs and Disability Act) 2001. UK Statutes. Crown Copyright: The Stationery Office.
   Google Scholar
• Shah, K. 2001. “What Do Medical Students Know about Autism?” Autism 5 (2): 127–133. doi:10.1177/1362361301005002003.
   PubMed Web of Science ®Google Scholar
• Shevell, M., A. Majnemer, P. Rosenbaum, and M. Abrahamowicz. 2001. “Profile of Referrals for Early Childhood Developmental Delay to Ambulatory Subspecialty Clinics.” Journal of Child Neurology 16 (9): 645–650. doi:10.1177/088307380101600904.
   PubMed Web of Science ®Google Scholar
• Sices, L., C. Feudtner, J. McLaughlin, D. Drotar, and M. Williams. 2003. “How Do Primary Care Physicians Identify Young Children with Developmental Delays? A National Survey.” Journal of Developmental and Behavioural Pediatrics 24 (6): 409–417. doi:10.1097/00004703-200312000-00002.
   PubMed Web of Science ®Google Scholar
• Taylor, A. 1997. “Literacy and the New Work Place: The Fit between Employment-oriented Literacy and Aboriginal Language Use.” British Journal of Sociology of Education 18 (1): 63–80. doi:10.1080/0142569970180104.
   Web of Science ®Google Scholar
• United Nations. 1989. The United Nations Convention on the Rights of the Child. New York: UNICEF.
   Google Scholar
• Wiggins, L. D., J. Baio, and C. Rice. 2006. “Examination of the Time between First Evaluation and First Autism Spectrum Diagnosis in a Population-based Sample.” Journal of Developmental and Behavioral Pediatrics 27(Suppl2): S79–S87. doi:10.1097/00004703-200604002-00005.
   Google Scholar
• Wilkin, A., C. Derrington, R. White, K. Martin, B. Foster, K. Kinder, and S. Rutt. 2010. Improving Outcomes for Gypsy, Roma and Traveller Pupils: Final Report. DFE-RR043. London: National Foundation for Educational Research.
   Google Scholar