From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing

Figures & data

Table 1. Demographic information for focus group participants and interviews analyzed.

Demographics	Focus group (n = 56)	Interviews (n = 40)
Age
18–24	16	0
25–49	14	15
50–80	26	25
Gender
Female	34	27
Male	22	13
Education
University Educated (either completed or currently studying)	42	26
Types of Personal Genomic Testing Undertaken*
Health testing (carrier, serious, non-preventable conditions, serious preventable conditions and pharmacogenomic testing)	1^#	19
Ancestry (family history tracing and paternity)	1^#	36
Nutrition and/or wellness testing	1^#	16
Physical trait and/or fitness testing	1^#	7

All participants are labeled in-text according to their participant number as it was recorded for the focus groups and interviews (e.g., FGS-X); interview participant labels in text include the type(s) of testing they experienced.

*Many interview participants had experience with more than one test type; therefore, the overall total number of tests taken is greater than the number of interviews analyzed.

^#This is the same participant.

Data availability

The data that support the findings of this study will be available from the study lead, Sylvia Metcalfe, upon reasonable request after the study team has completed publications and up until the data storage time limit has been reached.