Young women with breast cancer: Needs and experiences

Figures & data

Figure 1. Moderator’s guide for the young women with breast ca study.

Table 1. Participant recurrent theme table

Recurring themes	Focus group 1			Focus group 2				Focus group 3			Individual interviews
	R1	R2	R3	R4	R5	R6	R7	R8	R9	R10	R11	R12	R13	R14	R15	R16
Initial diagnosis—what went well, what didn’t?
Delayed		•	•				•				•
Timely	•			•	•	•		•	•	•		•	•	•	•	•
Poorly communicated		•	•	•			•
Treatment: Informed decision making
How well informed did you feel by your oncology team when making decision about your treatment?
Well-informed		•	•		•	•		•		•	•				•	•
Not well-informed	•			•			•		•			•	•	•
Bilateral mastectomy: Did you have, or do you plan to have, bilateral mastectomy?
Yes		•		•	•						•		•
Breast reconstruction: Did you decide to do reconstruction? If so, was it immediate or delayed?
Immediate					•					•			•	•
Delayed		•		•
Fertility information: (effects of cancer treatment on fertility, options for birth control, family planning)
Needs unmet						•			•	•		•		•		•
Sexuality information: (the effect of cancer treatment on intimate relationship, libido, vaginal dryness)
Needs unmet		•										•		•	•	•
Support: Did you seek support from the treatment team between appointments?
Yes	•	•	•					•	•	•	•	•	•	•	•
Were you provided information about additional supports like Social Work or Community Services?
No				•	•	•	•							•	•	•
Yes, information was provided about:
Social worker	•										•	•	•
Comm. services	•	•	•					•	•	•	•	•	•
Did you utilize supports from additional services?
No				•	•	•	•	•	•	•				•	•	•
Yes, I utilized supports from:
Social worker	•						•				•	•	•
Comm. services	•	•	•								•	•
Distress: What has been the most distressing aspect of your cancer treatment
Telling kids	•	•		•			•				•		•
Telling parents			•			•							•
Waiting for biopsy results			•					•	•	•		•
Having surgery			•	•
Fear of recurrence	•	•					•							•

Table 2. Participant demographics

Focus group/interview	Respondent (R#)	Age	Stage	Time from diagnosis (months)
Focus group 1	R1	39	2	10
	R2	36	3	11
	R3	40	1	3
Focus group 2	R4	34	3	6
	R5	40	2	5
	R6	30	2	11
	R7	39	2	12
Focus group 3	R8	31	3	4
	R9	36	2	3
	R10	40	1	3
Interview	R11	37	2	11
Interview	R12	33	1	7
Interview	R13	35	3	11
Interview	R14	40	0	12
Interview	R15	40	3	12
Interview	R16	37	2	3