“Earth angels” and parking spots: qualitative perspectives on healthy aging with spinal cord injury

Abstract

Purpose

People aging with spinal cord injury (SCI) can experience the premature onset of comorbid conditions, as well as the development and progression of secondary health conditions. The aim of this study was to understand the subjective experiences of persons aging with SCI in relation to their surrounding social and physical environments, including the impact of barriers and facilitators.

Material/Methods: Eleven individuals who had an SCI for more than ten years and were 45 years or older participated in a semi-structured phone interview about their experiences with healthy aging, social participation, social supports, and community barriers.

Results

Four main themes emerged in the qualitative data that captured the subjective experience of aging with SCI. These were: (1) Maintaining Physical Independence; (2) Importance of Resources and Special Equipment; (3) Planning Ahead; and (4) Finding Ways to Adapt.

Conclusions

The findings from this study highlight the importance of looking beyond individual factors to consider the social and environmental factors that support continued independence and participation in society as people living with long term SCI experience their aging process. Qualitative research that delves further into the dynamics behind this process is needed to fully anticipate the needs of this growing population.

IMPLICATIONS FOR REHABILITATION

• People aging with spinal cord injury (SCI) who are engaged in their social and physical environments have become increasingly adaptive when faced with accelerating and secondary comorbidities.

• Programs and facilities should ensure universal access to prevention and self-management programs that target physical activity and health habits when considered in the context of a patient’s socio-environmental constraints and resources.

• Clinical healthcare providers need to engage with their patients to develop an early intervention approach to preserve functional capacity while navigating potential future health problems.

• Clinicians should act as advocates for ongoing policy changes that help promote an environment more inclusive towards people aging with SCI.

Keywords:

• Spinal cord injury
• Healthy aging
• qualitative
• social environment barriers

Disclosure statement

Research was funded by the Craig H. Neilsen Foundation. The authors report no conflict of interest.

Additional information

Funding

This work was supported by the Craig H. Neilsen Foundation through a Psychosocial Research Project [Award Number 542445].