“Earth angels” and parking spots: qualitative perspectives on healthy aging with spinal cord injury

References

• McGlinchey-Berroth R, Morrow L, Ahlquist M, et al. Late-life spinal cord injury and aging with a long term injury: characteristics of two emerging populations. J Spinal Cord Med. 1995;18(3):183–193.
   PubMedGoogle Scholar
• Frontera JE, Mollett P. Aging with spinal cord injury: an update. Phys Med Rehabil Clin N Am. 2017;28(4):821–828.
   PubMed Web of Science ®Google Scholar
• Charlifue S, Jha A, Lammertse D, et al. Aging with spinal cord injury. Phys Med Rehabil Clin N Am. 2010;21(2):383–402.
   PubMed Web of Science ®Google Scholar
• Noonan VK, Fingas M, Farry A, et al. Incidence and prevalence of spinal cord injury in Canada: a national perspective. Neuroepidemiology. 2012;38(4):219–226.
   PubMed Web of Science ®Google Scholar
• Rowe JW, Kahn RL. Successful aging 2.0: conceptual expansions for the 21st century. J Gerontol B Psychol Sci. 2015;70(4):593–596.
   PubMed Web of Science ®Google Scholar
• Lundstrom U, Wahman K, Seiger A, et al. Participation in activities and secondary health complications among persons aging with traumatic spinal cord injury. Spinal Cord. 2017;55(4):367–372.
   PubMed Web of Science ®Google Scholar
• Molton IR, Yorkston KM. Growing older with a physical disability: a special application of the successful aging paradigm. J Gerontol: Series B. 2017;72(2):290–299.
   Google Scholar
• Clarke P, Latham K. Life course health and socioeconomic profiles of Americans aging with disability. Disabil Health J. 2014;7(1 Suppl):S15–S23.
   PubMed Web of Science ®Google Scholar
• Jensen MP, Truitt AR, Schomer KG, et al. Frequency and age effects of secondary health conditions in individuals with spinal cord injury: a scoping review. Spinal Cord. 2013;51(12):882–892.
   PubMed Web of Science ®Google Scholar
• Tate DG, Charlifue S, Forchheimer M, et al. Comorbidities and age related conditions among persons with spinal cord injury/disease (SCI/D). Arch Phys Med Rehabil. 2015;96(10):e49.
   PubMed Web of Science ®Google Scholar
• Charlifue SW, Weitzenkamp DA, Whiteneck GG. Longitudinal outcomes in spinal cord injury: aging, secondary conditions, and well-being. Arch Phys Med Rehabil. 1999;80(11):1429–1434.
   PubMed Web of Science ®Google Scholar
• Cook KF, Molton IR, Jensen MP. Fatigue and aging with a disability. Arch Phys Med Rehabil. 2011;92(7):1126–1133.
   PubMed Web of Science ®Google Scholar
• Waters RL, Sie IH. Upper extremity changes with SCI contrasted to common aging in the musculoskeletal system. Top Spinal Cord Inj Rehabil. 2001;6(3):61–68.
   Google Scholar
• Dixon-Ibarra A, Krahn G, Fredine H, et al. Adults aging ‘with’ and ‘into’ paralysis: epidemiological analyses of demography and health. Disabil Health J. 2016;9(4):575–583.
   PubMed Web of Science ®Google Scholar
• Bloemen-Vrencken JH, Post MW, Hendriks JM, et al. Health problems of persons with spinal cord injury living in the Netherlands. Disabil Rehabil. 2005;27(22):1381–1389.
   PubMed Web of Science ®Google Scholar
• McColl MA, Rosenthal C. A model of resource needs of aging spinal cord injured men. Paraplegia. 1994;32(4):261–270.
   PubMedGoogle Scholar
• Pentland W, McColl MA, Rosenthal C. The effect of aging and duration of disability on long-term health outcomes following spinal cord injury. Paraplegia. 1995;33(7):367–373.
   PubMedGoogle Scholar
• Mccoll MA, Stirling P, Walker J, et al. Expectations of independence and life satisfaction among ageing spinal cord injured adults. Disabil Rehabil. 1999;21(5–6):231–240.
   PubMed Web of Science ®Google Scholar
• Jörgensen S, Iwarsson S, Lexell J. Secondary health conditions, activity limitations, and life satisfaction in older adults with long-term spinal cord injury. Pm R. 2017;9(4):356–366.
   PubMedGoogle Scholar
• Krause J, Coker J. Aging after spinal cord injury: a 30-year longitudinal study. J Spinal Cord Med. 2006;29(4):371–376.
   PubMed Web of Science ®Google Scholar
• Liem NR, McColl MA, King W, et al. Aging with a spinal cord injury: factors associated with the need for more help with activities of daily living. Arch Phys Med Rehabil. 2004;85(10):1567–1577.
   PubMed Web of Science ®Google Scholar
• Groah SL, Charlifue S, Tate D, et al. Spinal cord injury and aging: challenges and recommendations for future research. Am J Phys Med Rehabil. 2012;91(1):80–93.
   PubMed Web of Science ®Google Scholar
• Meade MA, Reed KS, Krause JS. The impact of health behaviors and health management on employment after sci: physical health and functioning. Top Spinal Cord Inj Rehabil. 2016;22(1):39–48.
   PubMedGoogle Scholar
• Rimmer JH, Chen MD, Hsieh K. A conceptual model for identifying, preventing, and managing secondary conditions in people with disabilities. Phys Ther. 2011;91(12):1728–1739.
   PubMed Web of Science ®Google Scholar
• Hitzig SL, Campbell KA, McGillivray CF, et al. Understanding age effects associated with changes in secondary health conditions in a Canadian spinal cord injury cohort. Spinal Cord. 2010;48(4):330–335.
   PubMed Web of Science ®Google Scholar
• Krause JS. Changes in adjustment after spinal cord injury: a 20-year longitudinal study. Rehabil Psychol. 1998;43(1):41–55.
   Web of Science ®Google Scholar
• Krause JS, Carter RE. Risk of mortality after spinal cord injury: relationship with social support, education, and income. Spinal Cord. 2009;47(8):592–596.
   PubMed Web of Science ®Google Scholar
• Saunders LL, Krause JS, Acuna J. Association of race, socioeconomic status, and health care access with pressure ulcers after spinal cord injury. Arch Phys Med Rehabil. 2012;93(6):972–977.
   PubMed Web of Science ®Google Scholar
• Botticello AL, Chen Y, Cao Y, et al. Do communities matter after rehabilitation? The effect of socioeconomic and urban stratification on well-being after spinal cord injury. Arch Phys Med Rehabil. 2011;92(3):464–471.
   PubMed Web of Science ®Google Scholar
• Botticello AL, Rohrbach T, Cobbold N. Differences in the community built environment influence poor perceived health among persons with spinal cord injury. Arch Phys Med Rehabil. 2015;96(9):1583–1590.
   PubMed Web of Science ®Google Scholar
• Rimmer JH, Rowland JL. Health promotion for people with disabilities: implications for empowering the person and promoting disability-friendly environments. Am J Lifestyle Med. 2008;2(5):409–420.
   Google Scholar
• Hill JN, Balbale S, Lones K, LaVela SL. Starting a new conversation: engaging Veterans with spinal cord injury in discussions of what function means to them, the barriers/facilitators they encounter, and the adaptations they use to optimize function. Disabil Health J. 2017;10(1):114–122.
   PubMed Web of Science ®Google Scholar
• Whiteneck G, Meade MA, Dijkers M, et al. Environmental factors and their role in participation and life satisfaction after spinal cord injury. Arch Phys Med Rehabil. 2004;85(11):1793–1803.
   PubMed Web of Science ®Google Scholar
• Rimmer JH, Riley B, Wang E, et al. Physical activity participation among persons with disabilities: Barriers and facilitators. Am J Prev Med. 2004;26(5):419–425.
   PubMed Web of Science ®Google Scholar
• Wiley EA. Aging with a long-term disability: voices unheard. Phys Occup Ther Geriatr. 2004;21(3):33–47.
   Google Scholar
• Newitt R, Barnett F, Crowe M. Understanding factors that influence participation in physical activity among people with a neuromusculoskeletal condition: a review of qualitative studies. Disabil Rehabil. 2016;38(1):1–10.
   PubMed Web of Science ®Google Scholar
• Kerstin W, Gabriele B, Richard L. What promotes physical activity after spinal cord injury? An interview study from a patient perspective. Disabil Rehabil. 2006;28(8):481–488.
   PubMed Web of Science ®Google Scholar
• Rolfe DE, Yoshida K, Renwick R, et al. Negotiating participation: how women living with disabilities address barriers to exercise. Health Care Women Int. 2009;30(8):743–766.
   PubMed Web of Science ®Google Scholar
• Pentland W, Walker J, Minnes P, et al. Women with spinal cord injury and the impact of aging. Spinal Cord. 2002;40(8):374–387.
   PubMed Web of Science ®Google Scholar
• Clarke P, Riedman E, Scott H, et al. Environmental factors associated with healthy aging after spinal cord injury. Arch PhysMed Rehab. 2019;100(10):e72.
   Web of Science ®Google Scholar
• World Health Organization (WHO). International classification of functioning, disability and health. Geneva, Switzerland: World Health Organization; 2001.
   Google Scholar
• Creswell JW, Clark VLP. Designing and conducting mixed methods research. Thousand Oaks (CA): Sage publications; 2017.
   Google Scholar
• Alschuler KN, Gibbons LE, Rosenberg DE, et al. Body mass index and waist circumference in persons aging with muscular dystrophy, multiple sclerosis, post-polio syndrome, and spinal cord injury. Disabil Health J. 2012;5(3):177–184.
   PubMed Web of Science ®Google Scholar
• Capoor J, Stein AB. Aging with spinal cord injury. Phys Med Rehabil Clin N Am. 2005;16(1):129–161.
   PubMedGoogle Scholar
• Holicky R, Charlifue S. Ageing with spinal cord injury: the impact of spousal support. Disabil Rehabil. 1999;21(5–6):250–257.
   PubMed Web of Science ®Google Scholar
• Brose SW, Boninger ML, Fullerton B, et al. Shoulder ultrasound abnormalities, physical examination findings, and pain in manual wheelchair users with spinal cord injury. Arch Phys Med Rehabil. 2008;89(11):2086–2093.
   PubMed Web of Science ®Google Scholar
• Heinemann AW, Magasi S, Hammel J, et al. Environmental factors item development for persons with stroke, traumatic brain injury, and spinal cord injury. Arch Phys Med Rehabil. 2015;96(4):589–595.
   PubMed Web of Science ®Google Scholar
• Gray DB, Hollingsworth HH, Stark S, et al. A subjective measure of environmental facilitators and barriers to participation for people with mobility limitations. Disabil Rehabil. 2008;30(6):434–457.
   PubMed Web of Science ®Google Scholar
• Strauss A, Corbin J. Basics of qualitative research. London: Sage publications; 1990.
   Google Scholar
• McColl MA, Charlifue S, Glass C, et al. International differences in ageing and spinal cord injury. Spinal Cord. 2002;40(3):128–136.
   PubMed Web of Science ®Google Scholar