The prerequisites for QoL of people with intellectual disabilities

Abstract

Quality of life (QoL) is seldom described in terms of the essence of what it is. Also, an essential task for the research community is to create space for the voices of people with intellectual disabilities. The aim of the present study was to understand the lived meaning and the essence of QoL in adults with this disability. Using a phenomenological approach, 21 informants living in a Swedish county were interviewed. The interviews were audio taped and analyzed with the empirical phenomenological psychological method. The results indicate that the general essence of QoL consists of well-being and five themes: social adult status, control of life, personal safety, social belonging and self-chosen solitude. The results challenge the stereotype of the informants as passive receivers of support from others. The interrelatedness between the five themes of QoL should be further studied.

Keywords:

• quality of life
• intellectual disabilities
• adult
• phenomenology