Abstract
Communication disorder and mental health professionals may assume that once novel clinical techniques have been refuted by research, they will be promptly abandoned. Using facilitated communication (FC) for autism as a recent case example, we provide evidence to the contrary. Although FC was scientifically discredited by the mid-to-late 1990s, data we review demonstrate that it is still frequently administered in clinical and educational settings. We examine evidence for FC’s (a) continued use as an intervention for autism, (b) persistence in academic and institutional settings, (c) popularity in online and print sources, (d) promotion in the media, and (e) ongoing risk to caregivers accused of sexual abuse. We analyze the sources of these troubling developments, explore their ethical implications, and offer recommendations for addressing the spread of FC and other fad interventions.
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Notes
1 The formal term for autism in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM–5; American Psychiatric Association, Citation2013) is now autism spectrum disorder. Nevertheless, because most of the literature on FC antedated DSM–5, we use the terms “autism” and “autism spectrum disorder” interchangeably in this manuscript.
2 After declining to follow suit for two decades, The International Society for Augmentative and Alternative Communication issued a policy statement criticizing FC in 2014 (International Society for Augmentative and Alternative Communication, Citationin press).
3 These articles include Ashby (Citation2011); Ashby and Causton-Theoharis (Citation2009, Citation2011); Bernardi and Tuzzi (Citation2011); Bigozzi et al. (Citation2012); Biklen (Citation2005, 2007); Biklen and Burke (Citation2006); Biklen and Kliewer (Citation2006); Block, Shuttleworth, Pratt, Block, and Rammler (Citation2012); Broderick (Citation2009); Broderick and Kasa-Hendrickson (Citation2006); Causton-Theoharis, Ashby, and Cozier (Citation2009); Emerson and Dearden (Citation2013); Grayson, Emerson, Howard-Jones, and O’Neil (Citation2012); Kasa-Hendricksen (Citation2006); Kasa-Hendrickson, Broderick, and Hanson (Citation2009); Kasnitz and Block (Citation2012); Kliewer et al. (Citation2005); Mirenda (Citation2008); Rossetti, Ashby, Arndt, Chadwick, and Kasahara (Citation2008); Orlievsky and Cukier (Citation2013); Robledo and Donnellan (Citation2008); Rubin and Rubin (Citation2005); Savarese and Zunshine (Citation2014); Sipilä and Määttä (Citation2011); Sipilä, Uusiautti, and Määttä (Citation2013); Stubblefield (Citation2011); and Wilson, de Jonge, deSouza, and Carlson, (Citation2014).
4 4A recent tragic case also involves allegations of sexual abuse reported obtained using FC.
Ashby, C. E. (2011). Whose “voice” is it anyway?: Giving voice and qualitative research involving individuals that type to communicate. Disability Studies Quarterly, 31, 55–66. http://dsq-sds.org/article/view/1723/1771 Ashby, C. E., & Causton-Theoharis, J. N. (2009). Disqualified in the human race: A close reading of the autobiographies of individuals identified as autistic. International Journal of Inclusive Education, 13, 501–516.10.1080/13603110801886673 Ashby, C. E. (2011). Whose “voice” is it anyway?: Giving voice and qualitative research involving individuals that type to communicate. Disability Studies Quarterly, 31, 55–66. http://dsq-sds.org/article/view/1723/1771 Bernardi, L., & Tuzzi, A. (2011). Analyzing Written Communication in AAC Contexts: A statistical perspective. Augmentative and Alternative Communication, 27, 183–194.10.3109/07434618.2011.610353 Bigozzi, L., Zanobini, M., Tarchi, C., Cozzani, F., & Camba, R. (2012). Facilitated communication and autistic children: The problem of authorship. Life Span and Disability, 15, 55–74. Biklen, D. (2005). Autism and the myth of the person alone. New York, NY: NYU Press. Biklen, D., & Burke, J. (2006). Presuming competence. Equity & Excellence in Education, 39, 166–175. Biklen, D., & Kliewer, C. (2006). Constructing competence: Autism, voice and the ‘disordered’ body. International Journal of Inclusive Education, 10, 169–188.10.1080/13603110600578208 Block, P., Shuttleworth, R., Pratt, J., Block, H., & Rammler, L. (2012). Disability, sexuality and intimacy (p. 162). Politics of occupation-Centred practice: Reflections on occupational engagement across cultures. Broderick, A. A. (2009). Autism, “recovery (to normalcy),” and the politics of hope. Intellectual and Developmental Disabilities, 47, 263–281.10.1352/1934-9556-47.4.263 Broderick, A. A., & Kasa-Hendrickson, C. (2006). “I am thinking that speech is asinine”: Narrating complexities and rethinking the notion of “independence” in communication. Equity & Excellence in Education, 39, 176–186. Causton-Theoharis, J., Ashby, C., & Cosier, M. (2009). Lands of loneliness: Exploring social interaction through the autobiographies of individuals with autism. Intellectual and Developmental Disabilities, 47, 84–96.10.1352/1934-9556-47.2.84 Emerson, A., & Dearden, J. (2013). The effect of using ‘full’ language when working with a child with autism: Adopting the ‘least dangerous assumption’. Child Language Teaching and Therapy, 29, 233–244.10.1177/0265659012463370 Grayson, A., Emerson, A., Howard-Jones, P., & O’Neil, L. (2012). Hidden communicative competence: Case study evidence using eye-tracking and video analysis. Autism, 16(1), 75–86.10.1177/1362361310393260 Kasa-Hendrickson, C. (2006). Typing to communicate: Understanding facilitated communication. Autism Advocate, 3(1), 14–22. Kasa-Hendrickson, C., Broderick, A., & Hanson, D. (2009). Sorting out speech: understanding multiple methods of communication for persons with autism and other developmental disabilities. Journal of Developmental Processes, 4, 116–133. Kasnitz, D., & Block, P. (2012). 14 Participation, time, effort and speech disability justice (p. 197). Politics of occupation-Centred practice: Reflections on Occupational engagement across cultures. Kliewer, C., Broderick, A., Oyler, C., Cardinal, D. N., Kluth, P., Moescheler, J. B., & Schneiderman, H. (2005). Response to “Scientifically Unsupported and Supported Interventions for Childhood Psychopathology: A Summary.”. Pediatrics, 116, 290.10.1542/peds.2005-0742 Mirenda, P. (2008). A back door approach to autism and AAC. Augmentative and Alternative Communication, 24, 220–234.10.1080/08990220802388263 Rossetti, Z., Ashby, C., Arndt, K., Chadwick, M., & Kasahara, M. (2008). “I Like Others to Not Try to Fix Me”: Agency, Independence, and Autism. Intellectual and Developmental Disabilities, 46, 364–375.10.1352/2008.46:364-375 Orlievsky, D., & Cukier, S. (2013). Language, writing, and activity disorder in the autistic spectrum. Frontiers in Integrative Neuroscience, 7, 42. Robledo, J. A., & Donnellan, A. M. (2008). Properties of supportive relationships from the perspective of academically successful individuals with autism. Intellectual and Developmental Disabilities, 46, 299–310.10.1352/1934-9556(2008)46[299:POSRFT]2.0.CO;2 Rubin, R., & Rubin, R. A. (2005). Response to “scientifically unsupported and supported interventions for childhood psychopathology: A summary. Pediatrics, 116, 289–289.10.1542/peds.2005-0713 Savarese, R. J., & Zunshine, L. (2014). The critic as neurocosmopolite: or what cognitive approaches in literature can learn from disabilities studies. Narrative, 22, 17–44.10.1353/nar.2014.0000 Sipilä, A. K., & Määttä, K. (2011). Can the facilitated communication method support autistic people, according to facilitators’ opinions? Psychology of Language and Communication, 15(1), 1–26.10.2478/v10057-011-0001-5 Sipilä, A.-K., Uusiautti, S., & Määttä, K. (2013). The significance of physical aid in facilitated communication according to the facilitators’ opinions. International journal of Science Commerce and Humanities, 1(2), 116–129. Stubblefield, A. (2011). Sound and fury: When opposition to facilitated communication functions as hate speech. Disability Studies Quarterly, 31. Wilson, M., de Jonge, D., de Souza, N., & Carlson, G. (2014). Facilitated communication training: Exploration of perceptions of ability and reducing physical support. Disability Studies Quarterly, 34. http://dsq.sds.org/article/view/1741/3532
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